1 patient evaluation for Sodium chlorite with a adherence rating of Usually

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Dec 1, 2012 (Started Jan 05, 2012)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 200 mg Weekly
Advice & Tips: Performed self injection of sodium chlorite after end of NP001 trial but no longer seemed to be working.
Cost: < $25 monthly

Jun 19, 2012 (Started Jan 05, 2012)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 200 mg Weekly
Advice & Tips: On Monday June 18 I self administered my weekly infusion of 4 ml = 200 mg of sodium chlorite. About one hour later I went for my daily 1/2 hour swim. For the first time since starting this swimming program about 3 weeks ago I didn't feel like I was on the verge of drowning, i.e., just barely able to keep my head above water. Also, my breathing felt more 'productive'. Previously I would swim one lap and rest at the end breathing very hard, but it felt as if I couldn't get enough air into my lungs and I would breath hard for along time. This time it felt normal where I would breath hard for only a short time.
Cost: < $25 monthly

May 1, 2012 (Started Jan 05, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: May 30 infusion. No improvements.
Cost: < $25 monthly

Apr 20, 2012 (Started Jan 05, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: Daily
Advice & Tips: Performed an infusion Friday April 20. Unlike the previous infusion I did not experience an improvement in swallowing.
Cost: < $25 monthly

Apr 14, 2012 (Started Jan 05, 2012)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: Daily
Advice & Tips: I have now given myself two rounds of IV infusions of off the shelf sodium chlorite. I was ready to give up on sodium chlorite because its effect has been diminishing since the tail end of the NP001 study. However, was pleasantly surprised this time. Lately I have been drinking seltzer water rather than tap water because I find it much easier to swallow. In fact, I have not been able to swallow plain water for over a month now. Last night I grabbed my glass of water and was drinking it while watching my son on the swing. While I usually focus like a laser on the task of drinking I wasn't paying attention, rather I was focused on my son. After a few sips of water I realized that the water had gone flat and I was still able to drink it. Also I could drink it without doing the chin tuck, which has also been necessary for the last couple of months. The difference is small but unquestionably real. I am approaching my one year 'chlorite' anniversary. I had my first infusion in June of 2011. This is very encouraging and tells me that chlorite is still having some effect.
Cost: < $25 monthly

  • 1 helpful mark
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Showing 1 of 1 patient evaluation for Sodium chlorite