109 patient evaluations for Riluzole
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Aug 30, 2016 (Started Oct 18, 2001)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Aug 13, 2011 (Started Oct 18, 2001)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Nov 17, 2010 (Started Oct 18, 2001)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
- 0 helpful marks
Oct 6, 2016 (Started Oct 11, 2010)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Advice & Tips:
Stopped taking because the VA stopped sending it to us. Also after 4 years of taking did not see any results.
Jul 1, 2015 (Started Oct 11, 2010)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Did not see any changes from taking this drug.
- 0 helpful marks
Oct 25, 2016 (Started Sep 15, 2013)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceNever taken as prescribed
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BurdenNot at all hard to take
Advice & Tips:
stopped now that I can no longer eat, drink, or breathe without a ventilator
Cost:
< $25 monthly
Oct 23, 2016 (Started Sep 15, 2013)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceNever taken as prescribed
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Cost:
< $25 monthly
Oct 14, 2015 (Started Sep 15, 2013)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Advice & Tips:
I don't think it's doing anything.
Cost:
< $25 monthly
Feb 8, 2015 (Started Sep 15, 2013)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Cost:
< $25 monthly
- 0 helpful marks
Dec 2, 2016 (Started Oct 01, 2016)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
-
BurdenA little hard to take
Dosage:
50 mg
Twice daily
- 0 helpful marks
Dec 9, 2016 (Started Mar 15, 2016)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Advice & Tips:
Hard to judge how effective this is because the disease doesn't progress at a steady rate
Nov 21, 2016 (Started Mar 15, 2016)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Nov 14, 2016 (Started Mar 15, 2016)
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EffectivenessSlight (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
- 0 helpful marks
Feb 15, 2016 (Started Oct 10, 2010)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsMild (dry skin)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
- 0 helpful marks
Jan 15, 2018 (Started Jan 01, 2002)
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EffectivenessSlight (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
It is impossible to evaluate the effectiveness for oneself. However, statistical studies do show it extends life expectancy. I would start ASAP after diagnosis.
Cost:
< $25 monthly
- 0 helpful marks
Feb 15, 2018 (Started Dec 15, 2017)
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EffectivenessModerate (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
- 0 helpful marks
Jan 5, 2019 (Started Aug 07, 2018)
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EffectivenessMajor (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceUsually
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BurdenNot at all hard to take
Dosage:
50 mg
Daily
Advice & Tips:
It controls my mood.I don't cry every day any more.
Cost:
< $25 monthly
Aug 7, 2018 (Started Aug 07, 2018)
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EffectivenessMajor (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Daily
Advice & Tips:
I don't notice any difference with this drug
Cost:
< $25 monthly
- 0 helpful marks
Last updated:
Showing 9 of 109 patient evaluations for Riluzole