133 patient evaluations for Carbidopa-Levodopa

1279 members have decided to share their profiles only with other members of PatientsLikeMe.

May 30, 2016 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Moderate (fatigue, sleep problems, nausea, dizziness, balance problems, on to off fluctuations worsening, jerky movements)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25-100 mg Five times daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Moderate (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Effectiveness
    Slight (for tremor(s))
  • Side effects
    Mild (sleep problems, nausea)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

  • 0 helpful marks

Apr 24, 2016 (Started Jun 30, 2012)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (involuntary movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I look and feel better taking the meds.  My hand writing is much better.  I don't stare as much.  I move better.
Cost: < $25 monthly

  • 0 helpful marks

Mar 23, 2016 (Started Jul 16, 2014)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Jan 13, 2016 (Started Nov 25, 2006)

  • Effectiveness
    Major (for balance problems)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Jan 10, 2009 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take as directed and call the doctor f there are any problems
Cost: < $25 monthly

Dec 14, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: take at least 1/2 hr before having a meal with protein - or wait about an hour after a large protein meal ....If Im in need of an extra boost I take with a high sugar beverage - adding sugar to water works just as well
Cost: < $25 monthly

Oct 20, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 19, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Aug 18, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take it on time on a regular schedule that works best with yoour activity level in order to get maximum benefit
Cost: < $25 monthly

  • 1 helpful mark

Jan 5, 2016 (Started Nov 01, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 10 mg-100 mg Daily
Advice & Tips: Take it as long as you can
Cost: < $25 monthly

May 21, 2015 (Started Nov 01, 2013)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 10 mg-100 mg Daily
Advice & Tips: iDK.
Cost: < $25 monthly

  • 1 helpful mark

Dec 15, 2015 (Started May 15, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Oct 28, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Aug 21, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

May 5, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Apr 13, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Mar 4, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Jan 19, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I take my carbidopa/levodopa up to the daily limit as Madopar: 1, Sinemet+1x4 spaced evenly, 1/2 SinemetCRx2 t teatime.
Cost: < $25 monthly

Jan 10, 2015 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: My dose has increased to 6 tablets daily which works well until around 21:00 when I get sleepy &/or other symptoms cut in. Most nights this doesn't matter.
Cost: < $25 monthly

Jun 30, 2014 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Working with PD nurse & consultant over time dosage has changed to better manage symptoms. I now take 3x 25/100, 2x half Sinemet cr & 3x 12.5/50 to chew as a rescue remedy as needed.
Cost: < $25 monthly

Feb 26, 2013 (Started Sep 16, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

Sep 23, 2012 (Started Sep 16, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Daily
Advice & Tips: Timing is important as wearing off can impact on a whole day's activities. I very gradually add a little more time between doses so that I can quickly revert to previous timing. I seem to have more frequent, pronounced & longer lasting tremor. I have also started 'feezing' during walkng as well as at the start & during turning. I am slowing right down, stiff & sore joints & consequent fatigue.
Cost: < $25 monthly

Mar 22, 2012 (Started Sep 16, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

Dec 10, 2011 (Started Sep 16, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 22, 2011 (Started Sep 16, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 4, 2011 (Started Sep 16, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (tremor(s), joint stiffness, slight loss of balance, loss of balance, low blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Sep 16, 2015 (Started Jul 10, 2015)

  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    Moderate (jerky movements)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 4 x 25 mg-100 mg Every Other Week
Cost: $50-99 monthly

Jul 10, 2014 (Started Jul 10, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: do not start this treatment early if you are diaognise for pd.================
Cost: $50-99 monthly

  • 0 helpful marks

Sep 14, 2015 (Started Aug 11, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 9 x 25 mg-250 mg Daily
Cost: < $25 monthly

Jul 23, 2015 (Started Aug 11, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (jerky movements)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 x 25 mg-250 mg Daily
Cost: < $25 monthly

Apr 14, 2015 (Started Aug 11, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (jerky movements)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 x 25 mg-250 mg Daily
Advice & Tips: Crucial to keep to dosage schedule
Cost: < $25 monthly

Jun 1, 2014 (Started Aug 11, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 8 x 25 mg-250 mg Daily
Cost: < $25 monthly

Nov 6, 2011 (Started Aug 11, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 6 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Aug 28, 2015 (Started Jun 15, 2008)

  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 133 patient evaluations for Carbidopa-Levodopa