28 patient evaluations for Deep Brain Stimulation

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Oct 30, 2017 (Started Feb 01, 2010)

  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: My DBS operation was in 2010 at the University of Cincinnati Hospital, Dr. Mandybur with the Mayfield Clinic. DBS is critical for me to live a more normal life!! When I have experienced my DBS being turned off, I can't hardly move, my face becomes a mask, I feel terrible, can't dress my self, etc. If you have had PD for 7 years, I recommend that you definitely should check if you are a candidate for the procedure!! Update: I now go to 7 hours of PD specific exercise classes including 3 hours per week at Rock Steady Boxing for conditioning, weight training and boxing. Exercise is the new medicine for Parkinson's. If you are not involved, get moving. The more we sit around the worse our symptoms will be.

Mar 31, 2016 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Side effects
    Mild (slurred speech)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily

Dec 15, 2015 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: DBS is critical for me to live a more normal life!! When I have experienced my DBS being turned off, I can't hardly move, my face becomes a mask, I feel terrible, can't dress my self, etc.   If you have had PD for 4-5 years, I recommend that you definitely should check if you are a candidate for the procedure!!

  • 2 helpful marks

May 20, 2017 (Started Jan 15, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: I am sure most people that are contemplating DBS have seen "YouTube" videos on the subject. I watched part of one today and it was totally different than what I experienced as far as the actually surgery was concerned. However, the outcome was just as amazing. Like I have said before, it is not a cure, but it has improved my quality of life tremendously and also helped with the ole pocketbook due to a major decrease in meds.

  • 0 helpful marks

Apr 15, 2017 (Started Dec 15, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (walking slower, balance problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: My balance is a little worse than before; I walk a little slower than my best on days; my speech is actually a little better than before. See https://www.patientslikeme.com/forum/pd/topics/147582?page=1&post_id=2369462#post-2369462 for details. My out of pocket costs were around a thousand dollars. The total cost (most of which was paid by medicare) was about $150,000!
Cost: < $25 monthly

  • 1 helpful mark

Jun 8, 2016 (Started Feb 11, 2014)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: The current voltage settings on my neuro-stimulator are 3.5volts on my right side and 2.4volts on left side. These settings can be adjusted as needed by using my neuro-stimulator However, these settings have not been changed in several months as there has not been a need to change these. DBS helps with tremor but not with balance.
Cost: < $25 monthly

  • 0 helpful marks

May 27, 2016 (Started May 06, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Be sure to ask lots of questions and make sure your neuro surgeon has done a number of DBS surgeries. Ask for references

  • 0 helpful marks

Nov 13, 2015 (Started Jul 01, 2015)

  • Effectiveness
    Can’t tell (for essential tremor)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: One time
Cost: $100-199 monthly

  • 0 helpful marks

Nov 8, 2015 (Started Aug 26, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Cost: < $25 monthly

Sep 27, 2013 (Started Aug 26, 2013)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Advice & Tips: Still balancing meds. I have about 3 hrs on time and 3 hrs off presently when meds wear off.
Cost: < $25 monthly

  • 0 helpful marks

Feb 25, 2014 (Started Dec 01, 2013)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 1 other Every Other Week
Advice & Tips: Ii ask my self the question "if you needed dbs as you know it , would you take it again" answer = yes
Cost: $200+ monthly

  • 0 helpful marks

Oct 27, 2012 (Started May 10, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (uncomfortable, headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: DO IT!!! Find an excellent Movement Disorder Specialist go through all the evaluation process and get the implants. It will change your life. Very little and mostly no shaking any more. I am completely off the medications (I insisted). I can now sleep again (that is the best benefit) although my body is still trying to catch up for all the nights that I only got 2~3 hours sleep.

  • 3 helpful marks

May 5, 2012 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    A little hard to take
Cost: < $25 monthly

  • 0 helpful marks
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