12 patient evaluations for Deep Brain Stimulation with a cost of Not specified

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Oct 30, 2017 (Started Feb 01, 2010)

  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: My DBS operation was in 2010 at the University of Cincinnati Hospital, Dr. Mandybur with the Mayfield Clinic. DBS is critical for me to live a more normal life!! When I have experienced my DBS being turned off, I can't hardly move, my face becomes a mask, I feel terrible, can't dress my self, etc. If you have had PD for 7 years, I recommend that you definitely should check if you are a candidate for the procedure!! Update: I now go to 7 hours of PD specific exercise classes including 3 hours per week at Rock Steady Boxing for conditioning, weight training and boxing. Exercise is the new medicine for Parkinson's. If you are not involved, get moving. The more we sit around the worse our symptoms will be.

Mar 31, 2016 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Side effects
    Mild (slurred speech)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily

Dec 15, 2015 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for on to off fluctuations worsening)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: DBS is critical for me to live a more normal life!! When I have experienced my DBS being turned off, I can't hardly move, my face becomes a mask, I feel terrible, can't dress my self, etc.   If you have had PD for 4-5 years, I recommend that you definitely should check if you are a candidate for the procedure!!

Feb 10, 2010 (Started Feb 01, 2010)

  • Effectiveness
    None (for on to off fluctuations worsening)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: Ditto all the above. On April 3rd I need to get my rechargeable Medtronic battery changed after 8 years. The replacement is the same battery that I have had, so the same setting can be used. The rechargeable battery has been great. If I had the regular non-rechargeable battery I probably would have had 4 battery replacements during the last 8 years since I am at a fairly high electric level. I thank God that I have had DBS, it has been life giving for me!! DBS won't be effective or approved but if you have had PD for 3-8 years you should look into it.

  • 3 helpful marks

May 20, 2017 (Started Jan 15, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: I am sure most people that are contemplating DBS have seen "YouTube" videos on the subject. I watched part of one today and it was totally different than what I experienced as far as the actually surgery was concerned. However, the outcome was just as amazing. Like I have said before, it is not a cure, but it has improved my quality of life tremendously and also helped with the ole pocketbook due to a major decrease in meds.

  • 1 helpful mark

May 8, 2017 (Started Feb 21, 2017)

  • Effectiveness
    Major (for slow movement (bradykinesia))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Be patient

  • 1 helpful mark

May 27, 2016 (Started May 06, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Be sure to ask lots of questions and make sure your neuro surgeon has done a number of DBS surgeries. Ask for references

  • 1 helpful mark

Oct 27, 2012 (Started May 10, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (uncomfortable, headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: DO IT!!! Find an excellent Movement Disorder Specialist go through all the evaluation process and get the implants. It will change your life. Very little and mostly no shaking any more. I am completely off the medications (I insisted). I can now sleep again (that is the best benefit) although my body is still trying to catch up for all the nights that I only got 2~3 hours sleep.

  • 3 helpful marks

Mar 1, 2012 (Started Mar 01, 2012)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: I just had the surgery a little over a month. The Honeymoon only lasted a week for me. I get the DBS turned on and first programming on April 19, 2012. I can't wait.

  • 0 helpful marks

Nov 12, 2009 (Started Sep 04, 2008)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Effectiveness
    Slight (for stiffness/spasticity)
  • Side effects
    Mild (weight gain)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: Daily
Side effects: weight gain

  • 0 helpful marks

Oct 1, 2009 (Started Oct 01, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Dosage: One time
Advice & Tips: You have to believe that the treatment will work. In my case my quality of life after the treatment became much better. Before i could not do anything after 5:00 PM. Now I feel almost normal.

  • 0 helpful marks

Jan 9, 2009 (Started May 15, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage:
Advice & Tips: Allowed me to reduce my sinemet dosage 80%, eliminated agonist and amantadine, since have restarted to reduce sinemet even further. My balance and speech has declined but cannot say whether due to DBS or progession of disease as it's been 24 years since diagnosis.

  • 2 helpful marks

Nov 18, 2008 (Started )

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: I recommend everyone who has PD to at least be evaluated by a neurologist and neurosurgeon to see if they are candidates.

Nov 17, 2008 (Started )

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I recently had DBS in Denver, it was the best decision concerning my health I have ever made. I can now walk, my tremors are essentially gone, I now have my balance, and do not fall any more.

  • 2 helpful marks
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