22 patient evaluations for Deep Brain Stimulation (DBS) with a adherence rating of Always

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rmabey
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rmabey
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See rmabey's full Deep Brain Stimulation (DBS) history

Jun 8, 2016 (Started Feb 11, 2014)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: The current voltage settings on my neuro-stimulator are 3.5volts on my right side and 2.4volts on left side. These settings can be adjusted as needed by using my neuro-stimulator However, these settings have not been changed in several months as there has not been a need to change these. DBS helps with tremor but not with balance.
Cost: < $25 monthly

  • 0 helpful marks
daddytom
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daddytom
Sex: M
Data Quality: 3 stars
On
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See daddytom's full Deep Brain Stimulation (DBS) history

May 27, 2016 (Started May 06, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Be sure to ask lots of questions and make sure your neuro surgeon has done a number of DBS surgeries. Ask for references

  • 0 helpful marks
gk dayton oh
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gk dayton oh
Sex: M
Data Quality: 2 stars
On
Mouth/throat: moderate
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See gk dayton oh's full Deep Brain Stimulation (DBS) history

Mar 31, 2016 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for On to off fluctuations worsening)
  • Side effects
    Mild (Slurred speech)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily

Dec 15, 2015 (Started Feb 01, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for On to off fluctuations worsening)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: DBS is critical for me to live a more normal life!! When I have experienced my DBS being turned off, I can't hardly move, my face becomes a mask, I feel terrible, can't dress my self, etc.   If you have had PD for 4-5 years, I recommend that you definitely should check if you are a candidate for the procedure!!

  • 2 helpful marks
stickyfingers
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stickyfingers
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: none
I am: vg
I have:
Parkinson's

See stickyfingers's full Deep Brain Stimulation (DBS) history

Nov 8, 2015 (Started Aug 26, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Cost: < $25 monthly

Sep 27, 2013 (Started Aug 26, 2013)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Advice & Tips: Still balancing meds. I have about 3 hrs on time and 3 hrs off presently when meds wear off.
Cost: < $25 monthly

  • 0 helpful marks
Shakin
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Shakin
Sex: M
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See Shakin's full Deep Brain Stimulation (DBS) history

Oct 27, 2012 (Started May 10, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Moderate (Uncomfortable, Headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: DO IT!!! Find an excellent Movement Disorder Specialist go through all the evaluation process and get the implants. It will change your life. Very little and mostly no shaking any more. I am completely off the medications (I insisted). I can now sleep again (that is the best benefit) although my body is still trying to catch up for all the nights that I only got 2~3 hours sleep.

  • 3 helpful marks
Dr Duhhh
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Dr Duhhh
Sex: M
Data Quality: 0 stars
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See Dr Duhhh's full Deep Brain Stimulation (DBS) history

May 5, 2012 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Moderate (Dyskinesia)
  • Adherence
    Always
  • Burden
    A little hard to take
Cost: < $25 monthly

  • 0 helpful marks
jazzfan
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jazzfan
Sex: M
Data Quality: 0 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See jazzfan's full Deep Brain Stimulation (DBS) history

Jan 12, 2012 (Started Jun 28, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Dystonia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: My DBS Neurostimulator FINALLY kicked in after close to one year of monthly programming visits to the DBS clinic at Robert Wood Johnson medical center. I am doing MUCH better now. I have not reduced my meds but that's OK. It has brought me back to life and some days I almost feel like my old self.
Cost: $25-49 monthly
Side effects: Dizziness, Neck and shoulder muscle soreness

Nov 18, 2010 (Started Jun 28, 2010)

  • Effectiveness
    Can’t tell (for Dystonia)
  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • Side effects
    Mild (Neck and shoulder muscle soreness, Dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: AS OF 11/2010: Right now I am in the middle of programming sessions for the IPG battery in my chest. I go once a month to a "DBS clinic" Robert Wood Johnsohn Medical Center in New Brunswick NJ, USA. I see the DBS programmer and a neurologist. Even though I only have PD on my left side, it is quite severe. Unfortunately, the neuro has INCREASED my meds and the DBS programming has been very very slow - each time I get the voltage increased the PD seems to "compensate" It has been 5 months since the surgery and so far the benefits have been minimal. One unexpected positive effect has been reduced sense of bladder urgency. The surgery itself was not bad since they only had to install the wire lead on the right side of my brain.
Side effects: Dizziness, Neck and shoulder muscle soreness

  • 1 helpful mark
mary60
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mary60
Sex: F
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: moderate
Chest: mild
Legs: moderate
I have:
Parkinson's

See mary60's full Deep Brain Stimulation (DBS) history

May 17, 2011 (Started May 17, 2011)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: One time
Advice & Tips: Still take meds q 2hrs--must increase volts slowly over time to improove this ; one month later, meds still the same. I'm nauseated --is this related?
Cost: < $25 monthly
Side effects: Word fishing

  • 0 helpful marks
Shaky Paws Grampa
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Shaky Paws Grampa
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Shaky Paws Grampa's full Deep Brain Stimulation (DBS) history

Mar 7, 2011 (Started Mar 07, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: Blog article posted at http://shakypawsgrampa.blogspot.com/2011/09/deep-brain-stimulation.html
Cost: < $25 monthly

  • 0 helpful marks
mono
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mono
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See mono's full Deep Brain Stimulation (DBS) history

Dec 21, 2010 (Started Oct 08, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Mild (Dependent on doctor, Problems with focusing eyes, Excess saliva)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: no problem at all EVERY THING ; TREMORS; PHISICAL ; THINKING WORKING:DRIVING I AM FREE AGAIN 100%
Cost: $200+ monthly
Side effects: Problems with focusing eyes, Excess saliva, Dependent on doctor

Feb 16, 2010 (Started Oct 08, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Mild (Dependent on doctor, Excess saliva)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: I have all ready explain this, i am more or absoluty streight, much more alert , less depresion,i am working in nano technologic and electronic, i have already practicing golf again, reading much more. beter position and beter balance out side off home i don´t know wy probabily because i tray harder. and my steps are more longer and slower. The impact was all ,to my family and me i am a more hapier person i have a new pet that it is a cokerspaniel blcak who i take hin out every day to play at a park
Cost: $200+ monthly
Side effects: Problems with focusing eyes, Excess saliva, Dependent on doctor

  • 1 helpful mark
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