70 patient evaluations for Carbamazepine

philkatie
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philkatie
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See philkatie's full Carbamazepine history

Jun 10, 2006 (Started Jun 20, 2006)

  • Effectiveness
    None (for Trigeminal Neuralgia)
  • Side Effects
    Severe
  • Adherence
    Always
  • Burden
    A little hard to take

  • 0 helpful marks
Ramilla
17457 thumb
Ramilla
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: moderate
Vision: none
Speech: none
Swallowing: mild
Upper limb: none
Walking: none
I am: n
I have:
MS

See Ramilla's full Carbamazepine history

Nov 10, 2005 (Started Oct 03, 2005)

  • Effectiveness
    Major (for Muscle spasms)
  • Side Effects
    Moderate (Brain fog)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 50 mg Daily
Advice & Tips: I started taking this as a treatment for Muscle Spazms on the whole right side of my body during my second MS attack. It worked almost with the first dose, within a week I was no longer having Muscle Spazms at all, and within 3 weeks I was able to wean the dose down to half tab a day, then I discontinued completely. I now keep a bottle handy in case I have another attack, but so far I have not needed it.
Cost: $25-49 monthly
Side effects: Brain fog

  • 0 helpful marks
tootse
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tootse
Data Quality: 0 stars
  • Gender: F
  • Age: 50y
  • Duration: 35 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
29 weeks ago
I am: g
I have:
Epilepsy

See tootse's full Carbamazepine history

May 14, 2005 (Started Jul 29, 1999)

  • Effectiveness
    Slight (for Epilepsy)
  • Side Effects
    Severe (feels like something on right side of throat)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 600 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
JesswithMS
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JesswithMS
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See JesswithMS's full Carbamazepine history

Apr 30, 2003 (Started Feb 02, 2002)

  • Effectiveness
    Moderate (for Nerve pain (neuralgia))
  • Side Effects
    Moderate (Dizziness, Mood swings, Increased appetite)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 800 mg Daily
Advice & Tips: Take medication as prescribed. If you need to stop medication make sure you wean yourself off of the drug according to your doctor due to causing very severe side effects including seizures.
Cost: < $25 monthly
Side effects: Increased appetite, Mood swings, Dizziness

  • 0 helpful marks
Stormborn
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Stormborn
Data Quality: 1 star
  • Gender: M
  • Age: 35y
  • Duration: 33 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
190 weeks ago
I am: vb
I have:
Epilepsy

See Stormborn's full Carbamazepine history

Jun 15, 2002 (Started Nov 15, 2001)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side Effects
    Severe (Nausea, loss of motor control, Headaches, Loss of coordination)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 400 mg Daily

  • 0 helpful marks
thegizzard
30580 thumb
thegizzard
Data Quality: 1 star
  • Gender: F
  • Age: 59y
  • Duration: 34 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
236 weeks ago
I am: n
I have:
Epilepsy

See thegizzard's full Carbamazepine history

May 10, 2001 (Started Jan 01, 1982)

  • Effectiveness
    Major (for Epilepsy)
  • Side Effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: It worked very well for a long time. At my request, under my doctor's care, I stopped taking it to see if I could do without medicine for my epilepsy. I could not. He put me back on the tegretol, but I became toxic on it at any dose.
Cost: < $25 monthly

  • 0 helpful marks
JJWJ
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JJWJ
Data Quality: 1 star
  • Gender: M
  • Age: 59y
  • Duration: 50 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
2 seizures
232 weeks ago
I am: g
I have:
Epilepsy

See JJWJ's full Carbamazepine history

Oct 4, 1996 (Started Apr 16, 1992)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side Effects
    Severe (Difficulty thinking)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 mg Daily
Advice & Tips: 1) If you request a surgical evaluation and the doctor (in my case, Robert Gumnit, M.D.) refuses to let you out of the hospital forcing you to take more medication, get off of it if you can still think. If you cannot think another person will have to get you off of it and file a lawsuit in less than two years for you to have a chance to have a regular life again. 2) Over twenty percent of mothers I have talked with believe that "doctors know everything" and will not help their children survive. (And about 7000 deaths each year in the 1990s were due to a doctor killing a patient.) Make sure the person watching over you when you try a new medication will take action and not leave you a "zombie" (a nurse who told me I was within two days of death and my Dilantin count was up to 36.6 while getting off of Tegretol following the doctor's orders. 3) When I used over 500 mg/day of Tegretol, I could not think at all. When I got under 200 mg/day, then I regained control of my life. It was three years after my right hip shattered that I learned the Tegretol did that.
Side effects: Difficulty thinking

  • 0 helpful marks
raffismommy
47097 thumb
raffismommy
Sex: F
Data Quality: 1 star
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: severe
Upper limb: moderate
Walking: severe
I am: vg
I have:
MS

See raffismommy's full Carbamazepine history

Dec 29, 1989 (Started Dec 01, 1989)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side Effects
    Severe (Pain)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: severe allergic reaction. blisters under the skin on every part of my body. needed i.v. steroids to recover

  • 0 helpful marks
rusty64
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rusty64
Data Quality: 0 stars
  • Gender: F
  • Age: 66y
  • Duration: 51 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
? seizures
I have:
Epilepsy

See rusty64's full Carbamazepine history

Nov 30, 1989 (Started Oct 19, 1964)

  • Effectiveness
    Slight (for Epilepsy)
  • Side Effects
    Severe
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
shep0454
41383 thumb
shep0454
Sex: M
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: severe
I am: n
I have:
MS

See shep0454's full Carbamazepine history

Jul 15, 1988 (Started Jun 30, 1988)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side Effects
    Severe (Bleeding in the joints, BLEEDING AT JOINTS)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: DURING THE YEARS BEFORE THE MS DIAGNOSIS WHEN MY MEDICAL TEAM WAS STILL CONSIDERING EPILE[SY AS A POSSIBLE DIAGNOSIS FOR THE SIEZURE LIKE CONTROTIONS; tEGRETAL PROVIDED ME A FEELING FOR THE FIRST AND ONLY TIME, THAT I HAD MORE 'CONTOL' OVER THE SEIZURES AND JUST GENERALLY 'FELT' BETTER!!

  • 0 helpful marks
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