15 patient evaluations for Clonidine

88 members have decided to share their profiles only with other members of PatientsLikeMe.

retardaggie
Portrait default thumb
retardaggie
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See retardaggie's full Clonidine history

Dec 1, 2015 (Started Aug 01, 2015)

  • Effectiveness
    None (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 tablet(s) Twice daily
Advice & Tips: Only on HRT a month. I will go back to GP in a month if no great improvement of night flushes. Can cope with day ones!
Cost: < $25 monthly

Sep 26, 2015 (Started Aug 01, 2015)

  • Effectiveness
    Moderate (for Hot flashes)
  • Side effects
    Mild (Dry mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 tablet(s) Twice daily
Advice & Tips: Flashes not gone completely. One at night usually that wakes me but better than nothing/HRT

  • 0 helpful marks
woofhound
47567 thumb
woofhound
Gender: M
Data Quality: 3 stars
Pain: Little
Fatigue: Some
Sleep: All
Stiffness: Little
function: All
external_stress: Most
Stickman: some
Description:M58y
CFS:10y Dx
FM:17y Dx
I am: g
I have:
Fibromyalgia

See woofhound's full Clonidine history

Dec 4, 2013 (Started Mar 15, 2013)

  • Effectiveness
    Major (for Withdrawal effects)
  • Effectiveness
    Slight (for Elevated blood pressure)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.2 mg Daily

  • 0 helpful marks
IlliniMS
12481 thumb
IlliniMS
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: b
I have:
MS

See IlliniMS's full Clonidine history

Mar 4, 2013 (Started Jun 01, 2009)

  • Effectiveness
    Slight (for Elevated blood pressure)
  • Effectiveness
    None (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

Dec 2, 2012 (Started Jun 01, 2009)

  • Effectiveness
    None (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

Nov 13, 2011 (Started Jun 01, 2009)

  • Effectiveness
    Major (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

Oct 19, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Slight (for Hot flashes)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

Jul 7, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Major (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

May 31, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Moderate (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

Jan 1, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Moderate (for Hot flashes)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.2 mg Daily

  • 0 helpful marks
DannyD
13 thumb
DannyD
Sex: M
Data Quality: 3 stars
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
I am: n
I have:
ALS

See DannyD's full Clonidine history

Nov 8, 2012 (Started Jan 31, 2008)

  • Effectiveness
    Slight (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 720.8 mcg Daily
Advice & Tips: Clonidine was added to my pump in early 2008 because we thought Baclofen was causing bladder & blood pressure issues. After my pump failure and subsequent replacement we decided to discontinue the intrathecal clonidine. It was refilled with the baclofen every few months & I didn't have to remember to take it. The cost was covered by insurance so for me it was inexpensive. It appears to have had more of an impact on my B/P than previously thought as after it was discontinued my B/P was quite high and took several days and additional medication to control.
Cost: < $25 monthly

  • 0 helpful marks
shell052169
27098 thumb
shell052169
Data Quality: 2 stars
  • Gender: M
  • Age: 47y
  • Duration: 36 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
70 weeks ago
I am: g
I have:
Epilepsy

See shell052169's full Clonidine history

Sep 10, 2012 (Started Jun 26, 2003)

  • Effectiveness
    Major (for Elevated blood pressure)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Jun 18, 2012 (Started Jun 26, 2003)

  • Effectiveness
    Major (for Elevated blood pressure)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Oct 1, 2007 (Started Jun 26, 2003)

  • Effectiveness
    Major (for Elevated blood pressure)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.1 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Ladywolf319
40465 thumb
Ladywolf319
Data Quality: 1 star
  • Gender: F
  • Age: 32
Condition: CRPS II 29 additional condition(s)
Quality of life:
  • Mental: Moderate
  • Physical: Severe
I am: vb
I have:
CRPS II

See Ladywolf319's full Clonidine history

Jun 15, 2012 (Started Jun 15, 2012)

  • Effectiveness
    Can’t tell (for Poor circulation in legs and feet)
  • Side effects
    Severe (Balance problems, Vertigo, Hangover effect in morning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.1 mg Daily
Advice & Tips: Only tried for 2 nights, but the side effects were too extreme

  • 0 helpful marks
freedom38
Portrait default thumb
freedom38
Data Quality: 0 stars
  • Gender: F
  • Age: 42
Condition: Systemic Lupus Erythematosus 10 additional condition(s)
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
I have:
Systemic Lupus Erythematosus

See freedom38's full Clonidine history

Feb 19, 2012 (Started Jan 02, 2008)

  • Effectiveness
    Major (for Hypertension)
  • Side effects
    Mild (Loopy feeling, Sleepiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.6 mg Daily

  • 0 helpful marks
bellatrix_amnell
29770 thumb
bellatrix_amnell
Gender: F
Data Quality: 1 star
Pain: Some
Fatigue: All
Sleep: All
Stiffness: All
function: Little
external_stress: Most
Stickman: all
Description:F27y
CFS:10y Dx
FM:13y Dx
I am: g
I have:
Fibromyalgia

See bellatrix_amnell's full Clonidine history

Jan 4, 2012 (Started Oct 13, 2010)

  • Effectiveness
    Slight (for Insomnia)
  • Side effects
    Mild (Low blood pressure)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.1 mg Daily
Cost: < $25 monthly

Nov 25, 2010 (Started Oct 13, 2010)

  • Effectiveness
    Moderate (for Insomnia)
  • Side effects
    Mild (Low blood pressure)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.1 mg Daily
Advice & Tips: Take about 2 hours before you need to go to bed. Once you get sleepy, don't fight it, or else it will take a long time to fall asleep.

  • 0 helpful marks
dsseak
Portrait default thumb
dsseak
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Little
Stiffness: All
function: Little
external_stress: Some
Stickman: most
Description:F48y
CFS:8y Dx
FM:8y Dx
I am: b
I have:
Fibromyalgia

See dsseak's full Clonidine history

May 5, 2011 (Started Oct 28, 2010)

  • Effectiveness
    Slight (for Fatigue)
  • Effectiveness
    Major (for Excessive sweating)
  • Effectiveness
    Slight (for Exhaustion)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.1 mg/24 hr Weekly
Advice & Tips: The patches don't always stick well and they do leave a mark for a few weeks and sometimes irritate my skin. The generic is less irritating for me, I can't use the brand name. Patch is much more expensive but I require a lower dosage and I like that.
Cost: $50-99 monthly

Dec 4, 2010 (Started Oct 28, 2010)

  • Effectiveness
    Moderate (for Fatigue)
  • Effectiveness
    Moderate (for Excessive sweating)
  • Effectiveness
    Moderate (for Exhaustion)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Cost: < $25 monthly

  • 0 helpful marks
debraread
458 thumb
debraread
Sex: F
Data Quality: 0 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: none
I am: vg
I have:
Parkinson's

See debraread's full Clonidine history

Aug 18, 2010 (Started Jul 15, 2009)

  • Effectiveness
    Major (for Elevated blood pressure)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed

  • 0 helpful marks
Last updated:
Showing 10 of 15 patient evaluations for Clonidine