37 patient evaluations for Non-invasive Ventilator

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SusyQ
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SusyQ
Sex: F
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: b
I have:
PLS

See SusyQ's full Non-invasive Ventilator history

Sep 3, 2010 (Started Jun 28, 2009)

  • Effectiveness
    Major (for PLS (Primary Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 10 hr Daily
Advice & Tips: it is a little difficult to use by yourself as you get weaker and nursing staff are a litle afraid of equipment. Inservicing new personnel when you don't talk is difficult.

  • 0 helpful marks
Dsmith
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Dsmith
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
I am: vg
I have:
ALS

See Dsmith's full Non-invasive Ventilator history

Dec 18, 2009 (Started Jun 01, 2008)

  • Effectiveness
    Major (for Breathing difficulty)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 8 hr Daily

  • 0 helpful marks
Skymaster47
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Skymaster47
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
I am: g
I have:
ALS

See Skymaster47's full Non-invasive Ventilator history

Oct 15, 2010 (Started Jul 28, 2010)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 8 hr Daily
Advice & Tips: Greatly added to the quality of my sleep
Cost: < $25 monthly

  • 0 helpful marks
mompeach
726 thumb
mompeach
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: b
I have:
ALS

See mompeach's full Non-invasive Ventilator history

Nov 9, 2010 (Started Apr 03, 2006)

  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Moderate (Pressure sore)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 24 hr Daily
Side effects: Pressure sore

  • 0 helpful marks
Cricketjbs
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Cricketjbs
Sex: F
Data Quality: 1 star
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
I am: vb
I have:
ALS

See Cricketjbs's full Non-invasive Ventilator history

Dec 20, 2010 (Started Sep 09, 2010)

  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Moderate (Eye floaters)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 hr Daily
Advice & Tips: eyes bothering got new Nasal apparatus
Side effects: Eye floaters, Dry mouth at night

  • 0 helpful marks
Rolling Stone
31858 thumb
Rolling Stone
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
I am: g
I have:
ALS

See Rolling Stone's full Non-invasive Ventilator history

Jan 15, 2010 (Started Feb 10, 2009)

  • Effectiveness
    Major (for Insomnia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take

  • 0 helpful marks
Suzinmotion
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Suzinmotion
Gender: F
Data Quality: 1 star
Mental Symptoms : mild
Physical Symptoms : mild
97
VL 201k
I am: g
I have:
HIV

See Suzinmotion's full Non-invasive Ventilator history

Feb 3, 2011 (Started Dec 20, 2010)

  • Effectiveness
    Moderate (for HIV related neurological symptoms)
  • Side effects
    Moderate (Acne breakout)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 6 hr Daily
Side effects: Acne breakout

  • 0 helpful marks
moolaw
27024 thumb
moolaw
Sex: F
Data Quality: 0 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: b
I have:
ALS

See moolaw's full Non-invasive Ventilator history

Feb 12, 2011 (Started Jan 05, 2011)

  • Effectiveness
    Major (for Decreased respiratory function)
  • Side effects
    Mild (Dry mouth at night)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 16 hr Daily
Advice & Tips: I sleep much better. I recommend starting as soon as possible.
Cost: < $25 monthly
Side effects: Dry mouth at night

  • 0 helpful marks
JohnBFisher
43022 thumb
JohnBFisher
Data Quality: 1 star
  • Gender: M
  • Age: 60
Condition: Spinocerebellar Ataxia 7 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: g
I have:
Spinocerebellar Ataxia

See JohnBFisher's full Non-invasive Ventilator history

Mar 1, 2012 (Started Oct 15, 2010)

  • Effectiveness
    Major (for Obstructive Sleep Apnea)
  • Effectiveness
    Major (for Central Sleep Apnea)
  • Side effects
    Mild (Edema (fluid retention))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 hr Daily
Advice & Tips: Use mask liner for a full face mask. See: http://www.remzzzs.com/ http://padacheek.com/ http://quietusliners.com/
Cost: $100-199 monthly

  • 0 helpful marks
Rachael
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Rachael
Sex: F
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: vb
I have:
ALS

See Rachael's full Non-invasive Ventilator history

Jul 28, 2012 (Started Apr 26, 2011)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Effectiveness
    Moderate (for Fatigue)
  • Side effects
    Mild (trapped wind, Headaches, Abdominal wind pain)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 4 hr Daily
Advice & Tips: I used a bipap when I had my Supra Pubic Catheter Insertion done. I found it so beneficial for fatigue symptoms that I petitioned my consultant for a prescription despite good blood gas levels

  • 0 helpful marks
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