251 patient evaluations for Glatiramer acetate

2,168 members have decided to share their profiles only with other members of PatientsLikeMe.

snowbird1948
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snowbird1948
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See snowbird1948's full Glatiramer acetate history

Nov 15, 2011 (Started May 15, 2011)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: I had a difficult time remembering to administer the daily injections.

  • 0 helpful marks
AJteacher
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AJteacher
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See AJteacher's full Glatiramer acetate history

Nov 11, 2011 (Started Nov 01, 2010)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Occasional panic attacks (breathing), Copaxone Flush, Cold chills, Nausea and vomiting)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: I had experienced one rare episode of having shortness of breath, anxiety, warm flushing, shaking and subsequent chills. The episode lasted for about 20-30 minutes.I feel the Copaxone is helping lengthen the time between exacerbations.
Cost: $25-49 monthly

  • 0 helpful marks
Grandmoms
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Grandmoms
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Grandmoms's full Glatiramer acetate history

Oct 20, 2011 (Started Jul 14, 2005)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I developed lumps/knots under my skin that may not have been related to the Copaxone. After ultra-sound and MRI, no conclusive diagnoses for the knots. I was so tired of the daily shots and the sudden development of the knots I decided to stop the treatment.
Cost: < $25 monthly

Aug 20, 2010 (Started Jul 14, 2005)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I get tired of taking this shot every day, however, I have had no major flare ups since beginning this medication. Very soon after I began this medication I lost 15 pounds and that was an unexpected benefit. In the beginning and for six or eight months the injection site itched and nearly drove me nuts. I ignored the itching and one day realized the itching had stopped.

  • 0 helpful marks
mollymac
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mollymac
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See mollymac's full Glatiramer acetate history

Oct 7, 2011 (Started Apr 07, 2001)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take

Jul 12, 2010 (Started Apr 07, 2001)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 20 Daily

  • 0 helpful marks
tmmjclole
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tmmjclole
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Severe
Overall: Severe
Cognition: severe
Vision: moderate
Speech: severe
Swallowing: severe
Upper limb: severe
Walking: moderate
I am: vb
I have:
MS

See tmmjclole's full Glatiramer acetate history

Sep 2, 2011 (Started Feb 04, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Stefie/MS
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Stefie/MS
Sex: F
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Stefie/MS's full Glatiramer acetate history

Aug 31, 2011 (Started Jul 27, 2005)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
stax23
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stax23
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: mild
I am: b
I have:
MS

See stax23's full Glatiramer acetate history

Aug 26, 2011 (Started Aug 26, 2010)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild (Injection site bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: Injection site bruising

  • 0 helpful marks
kcj1963
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kcj1963
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See kcj1963's full Glatiramer acetate history

Aug 24, 2011 (Started Mar 01, 2011)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: get your veins ballooned... because you have CCSVI... it was very ez with no problems... and even though one-third of people treated don't get symptom relief, like myself, it's still worth a shot and at least you will have better blood flow to your lesions among other things, and this is the main point in getting venoplasty...
Cost: < $25 monthly

Apr 16, 2011 (Started Mar 01, 2011)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
tired old me
16436 thumb
tired old me
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: vb
I have:
MS

See tired old me's full Glatiramer acetate history

Aug 15, 2011 (Started Mar 05, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Injection site reaction)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: Injection site reaction, Lumps and bumps, Injection site itching

May 15, 2009 (Started Mar 05, 2008)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild (Injection site reaction)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: Injection site reaction, Lumps and bumps, Injection site itching

  • 0 helpful marks
caseyd
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caseyd
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: vg
I have:
MS

See caseyd's full Glatiramer acetate history

Jul 29, 2011 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Swelling, Injection site itching, Injection site pain, Lumps and bumps, Redness, Lipodystrophy (lipoatrophy or loss of fatty tissue), Bruising, Nausea, Itching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I've only tried the auto-ejector once and since that first time, it's been manual for me. I've been on this med for two years and I've done well on it - - that's enough of a motivator to continue with whatever inconvenience the daily injection poses.
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site itching, Injection site pain, Bruising, Itching, Nausea, Redness, Swelling

Aug 11, 2010 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Swelling, Injection site itching, Injection site pain, Lumps and bumps, Redness, Lipodystrophy (lipoatrophy or loss of fatty tissue), Bruising, Nausea, Itching)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: Recent MRI shows no new or enhancing lesions. Before Copax and estriol, fresh attacks hit every 2-3 months. Free of attacks since 9/09. Hallelujah!
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site itching, Injection site pain, Bruising, Itching, Nausea, Redness, Swelling

Mar 26, 2010 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (Swelling, Injection site itching, Injection site pain, Lumps and bumps, Redness, Lipodystrophy (lipoatrophy or loss of fatty tissue), Bruising, Nausea, Itching)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: From what I understand, Copaxone takes 4 - 6 months to kick in. In my case I began taking it 8/09. One month after I began treatment I had another attack. But this flare-up was much milder than previous ones (they had been running every 2 - 3 months, putting me in bed for days). Since 9/09, I've had fatigue hit me pretty hard but my balance has recovered enough so that I'm walking without a cane and the fatigue has diminished enough so that I can walk roughly a mile. For a bit of perspective, in the late Fall I had to sleep for an hour after taking a shower in the a.m. Please keep in mind that I take this med with other pills.
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site itching, Injection site pain, Bruising, Itching, Nausea, Redness, Swelling

Oct 22, 2009 (Started Aug 28, 2009)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild (Swelling, Injection site itching, Injection site pain, Lumps and bumps, Redness, Bruising, Nausea, Itching)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: I did a bit of research on patients taking copaxone prior to beginning treatment and I decided to go with manual injection. Compared to the one instance I used the autoinjector (with the SS nurse during training), I believe this was the right choice for me as the manual injections seem less uncomfortable. That being said, I'm still keeping an eye on oral meds slated for FDA approval in the near future.
Cost: < $25 monthly
Side effects: Lipodystrophy (lipoatrophy or loss of fatty tissue), Lumps and bumps, Injection site itching, Injection site pain, Bruising, Itching, Nausea, Redness, Swelling

  • 1 helpful mark
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