19 patient evaluations for Vagus Nerve Stimulation (VNS)

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Jan 19, 2011 (Started Dec 01, 2010)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: Thus far it has been only 20 days that i have been on VNS the compliance factor is great and there is a slight cough when i use the magnet otherwise the impact of VNS is dramatic -- i have had only 1 seizure since the operation and it was controlled greatly with the magnet.
Cost: < $25 monthly

  • 2 helpful marks

Nov 10, 2009 (Started Jul 17, 1997)

  • Effectiveness
    Major (for seizures (grand mal or tonic-clonic))
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: this treatment stopped almost all my heavyl seizures!!!
Cost: $200+ monthly

  • 1 helpful mark

Jan 14, 2010 (Started Jan 28, 2006)

  • Effectiveness
    Major (for epilepsy)
  • Effectiveness
    Major (for seizures (grand mal or tonic-clonic))
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: I never thought that this would change my life, as much as it has, but I would, and have recommended this to many others.

  • 1 helpful mark

May 21, 2010 (Started Jul 21, 2009)

  • Effectiveness
    Moderate (for seizures (grand mal or tonic-clonic))
  • Side effects
    Mild
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: One time
Advice & Tips: Has a real pinch when you have to turn it on. I can feel it turn on sometimes and that feeling is a tight feeling in my neck. To get rid of that feeling I lift up my head and stretch it out. I've had 4 seizures with it and it has been adjusted. The electric pulse has been increased twice and the latest adjustment has been how often it turns on.

  • 1 helpful mark

Nov 12, 2008 (Started Jun 28, 2006)

  • Effectiveness
    Moderate (for Shock the vegul nerve)
  • Side effects
    Mild (difficulty sleeping on left side)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: They give you a magnet to you you to where one yourrist or you can clip it to your belt.I clip it to my belt.Its probly better to where it on my rist but I dont because beaple ask me what time it is!!.If I where it on my belt when I need it I always end up thowong it!!!
Cost: < $25 monthly
Side effects: difficulty sleeping on left side

  • 1 helpful mark

Nov 22, 1996 (Started Nov 22, 1996)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (speech problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Along with my AED's, now I have better control with my VNS and my medication. Using the VNS allows me to take control of my life, rather than allow epilepsy to control me.
Side effects: speech problems, trouble turning neck due to pain

  • 1 helpful mark

Oct 20, 2011 (Started May 22, 2001)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Severe (swallowing difficulty (dysphagia))
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Daily
Advice & Tips: Dr. turned it off for a year and that helped. Now I am having the symptoms again.
Cost: < $25 monthly
Side effects: swallowing difficulty (dysphagia)

Sep 15, 2000 (Started May 22, 2001)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: Initially asthma symptoms increased, used O2. I lost my ability to sing, Seizures increased, changed Epileptologist Used all ranges on machine. Changed battery. I wanted it out but seizures started to get better Now w/ low levels my seizures are better under control. Asthma is better Throat is not swollen anymore
Side effects: swallowing difficulty (dysphagia)

  • 1 helpful mark

Jan 3, 2009 (Started Jan 03, 2009)

  • Effectiveness
    None (for epilepsy)
  • Side effects
    Mild (voice changes, chest pain)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: One time
Advice & Tips: I want this device removed but so far none of my doctors will do so.

  • 1 helpful mark

Jun 15, 2010 (Started May 29, 2009)

  • Effectiveness
    None (for epilepsy)
  • Side effects
    Severe (numbness in left side of face, suicidal, myalgic encephalomyelitis/chronic fatigue syndrome, depression with anxiety, numbness in hands and arms in am, cramps in upper back)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: my experience included faulty equipment from Cyberonics (VNS manufacturer) that shocked me twice SEVERELY and would not stop....DO NOT RECIEVE THIS DEVICE. I did however receive authorization for my Michigan Medical Marijuana Permit from a very frightened Neurologist who didn't know what he was signing immediately after I had been shocked =]

  • 1 helpful mark

Aug 10, 2012 (Started Jan 11, 2012)

  • Effectiveness
    Major (for seizures (complex partial))
  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (shortness of breath (dyspnea))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: It takes some getting use to. See a neurophyscologist to help you to accept and adjust. It is a physical and mental challange but once you have gotten over the first hurdle and can see the change it is making it does become easier. Unexpected benifit for me is that I feel more alert and less tired. It has been a positive treatment for me.
Cost: < $25 monthly

  • 1 helpful mark
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Showing 10 of 19 patient evaluations for Vagus Nerve Stimulation (VNS)