4 patient evaluations for Alemtuzumab

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asdf1179
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asdf1179
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: moderate
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I have:
MS

See asdf1179's full Alemtuzumab history

Nov 28, 2015 (Started Sep 21, 2015)

  • Effectiveness
    None (for Multiple Sclerosis)
  • side effects
    Mild (Muscle weakness, Urine smell abnormal, Body Aches, Headaches, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Not seeing any difference from before the treatment, and now.

Oct 16, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Moderate (Muscle weakness, Urine smell abnormal, Body Aches, Headaches, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: Can't overdo anything before serious fatigue, pace myself throughout the day. Had a stomach flu that went away last week. Getting better though.

Oct 3, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Moderate (Muscle weakness, Urine smell abnormal, Body Aches, Headaches, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: Having bad and good days. Today is the best day yet. I also slept 10 hours last night.

Sep 29, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Moderate (Muscle weakness, Urine smell abnormal, Body Aches, Headaches, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: Off steroids, and reality set it. Experienced a lot of pain and weakness over the weekend, but already first decent day since treatment ended.

Sep 25, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Mild (Muscle weakness, Urine smell abnormal, Body Aches, Headaches, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 10 mg Daily
Advice & Tips: 5 day infusion ended today. Still have steroids in my system.

  • 4 helpful marks
shep0454
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shep0454
Sex: M
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: severe
I am: n
I have:
MS

See shep0454's full Alemtuzumab history

Jun 9, 2015 (Started Jul 01, 1900)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I HAVE 'NEVER' BEEN PRESCRIBED THIS MEDICATION.....I DO 'NOT' HAVE ANY IDEA OF HOW IT WAS POSTED AS A TREATMENT FOR MY MS DIAGNOSIS!! I AM CURRENTLY 'NOT' TAKING ANY FDA APPROVED DISEASE MODIFYING DRUGS FOR MY MS DIAGNOSIS.....'NONE'......THE LAST DMD THAT IS WAS APPROVED WAS 'TECFIDERA' AND THAT WAS DISCONTINUED JULY 2014 DUE TO SIDE EFFECTS!

  • 1 helpful mark
danaeich
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danaeich
Sex: F
Data Quality: 0 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: vg
I have:
MS

See danaeich's full Alemtuzumab history

Sep 1, 2009 (Started Jan 03, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Yearly
Advice & Tips: This drug was a blessing to me!

  • 0 helpful marks
GPS
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GPS
Sex: M
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See GPS's full Alemtuzumab history

Jan 28, 2009 (Started Jan 12, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Moderate (Allergic reaction, Rash on stomach back and legs, Headaches, Fever/chills, Fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 1 dose Yearly
Advice & Tips: So far I have only had the first 5 day course of Alemtuzumab. I had most of the expected side effects, chills/fever, rash, fatigue and headaches. In addition, during the actual infusions, I had a number of asthma attacks that caused the treatment to be prolonged while I recovered with Benadryl IV and my rescue inhaler. Some days I was in the infusion center for over 9.5 hours. I'm hoping things go a little smoother next year! ;-)
Cost: < $25 monthly
Side effects: Headaches, Rash on stomach back and legs, Allergic reaction, Fatigue, Fever/chills

  • 4 helpful marks
Last updated:
Showing 4 of 4 patient evaluations for Alemtuzumab