74 patient evaluations for Naltrexone

Parker's son
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Parker's son
Sex: M
Data Quality: 0 stars
On
Mouth/throat: severe
Arms: severe
Chest: mild
Legs: moderate
I have:
Parkinson's

See Parker's son's full Naltrexone history

May 18, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: < $25 monthly
Side effects: Freezing of feet, Stiffness/Spasticity, Stiffness/Spasticity

Mar 16, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1.5 mg Daily
Advice & Tips: try it...you'll like it!
Cost: < $25 monthly
Side effects: Freezing of feet, Stiffness/Spasticity, Stiffness/Spasticity

  • 2 helpful marks
i'm a believer
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i'm a believer
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: moderate
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See i'm a believer's full Naltrexone history

Apr 16, 2010 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: Less fatigued since beginning
Cost: < $25 monthly

Jun 30, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 3 mg Daily
Advice & Tips: The first 2 weeks I experienced Insomnia buts its no longer a problem. Be aware its not covered by insurance as its not been approved for treatment of MS even though its approved by the FDA in higher doses for other illnesses.
Cost: < $25 monthly

May 9, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: I personally would use this with or without other tx. I was no longer able to tolerate the injections and the Imuran made me very ill so even though this is not a FDA approved drug for MS it seems to be working for me.
Cost: < $25 monthly

Mar 12, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: caused insomnia the first week but no other problem noted. advised to take at bedtime per pharmacist.
Cost: < $25 monthly

  • 1 helpful mark
calanz
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calanz
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See calanz's full Naltrexone history

Apr 8, 2010 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: I take a 3mg LDN capsule every evening at or after 10:00pm. The first dose of LDN made my breathing easier (I also have COPD) The first week of taking LDN the spacidity pain in my legs became less and less. I began having more energy and less fatigue and an over all good feeling. After 6 months I was able to stop using a cane when walking.
Cost: Not specified monthly

  • 1 helpful mark
Bramblina
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Bramblina
Gender: F
Data Quality: 0 stars
Pain: Some
Fatigue: Most
Sleep: Some
Stiffness: All
function: Some
external_stress: Little
Stickman: most
Description:F31y
FM:8y Dx
I have:
Fibromyalgia

See Bramblina's full Naltrexone history

Mar 25, 2010 (Started Feb 26, 2010)

  • Perceived effectiveness for Fibromyalgia: None
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 3 mg Daily
Advice & Tips: I was perscribed larger pills to hack down, which was a pain in the butt and probably made for wonky dosages. I seemed to get more restful sleep while taking LDN. Didn't notice anything for my pain though.

Mar 13, 2010 (Started Feb 26, 2010)

  • Perceived effectiveness for Fibromyalgia: Can’t tell
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: Sleeping very well so far. Starting to do things in my sleep I don't remember.

  • 6 helpful marks
ireckon
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ireckon
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

See ireckon's full Naltrexone history

Feb 18, 2010 (Started Jan 26, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 4.5 mg Daily
Advice & Tips: going to try lower dose
Cost: < $25 monthly
Side effects: Sleepiness

  • 0 helpful marks
akita
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akita
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: b
I have:
ALS

See akita's full Naltrexone history

Dec 16, 2009 (Started Sep 24, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
mochafroggy
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mochafroggy
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: Little
external_stress: Some
Stickman: all
Description:F55y
FM:14y Dx
I am: b
I have:
Fibromyalgia

See mochafroggy's full Naltrexone history

Dec 1, 2009 (Started Oct 30, 2009)

  • Perceived effectiveness for Fibromyalgia: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: It seemed to help initially but after 2 weeks I was in a pain place where I hadn't been in over a year. Doctor putting me back on Ultam.
Side effects: Nausea

  • 2 helpful marks
SammyJo
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SammyJo
Sex: F
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I have:
MS

See SammyJo's full Naltrexone history

Oct 25, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: Spacticity increased over time, and it qit helping my MS. Quit using it when I did CCSVI treatment. But LDN worked great for 4 years.
Cost: < $25 monthly

Oct 2, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: LDN was a lifesaver for me.
Cost: < $25 monthly

  • 2 helpful marks
clippedwings
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clippedwings
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
I have:
ALS

See clippedwings's full Naltrexone history

Sep 24, 2009 (Started May 13, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: My chain yawning has been a thing of the past, and I am starting to experience an easier time when food is concerned. There is a noticeable reduction in the number of choking/coughing episodes. My FRS is stable, but this may result from some other aspect of my treatment protocol.
Cost: Not specified monthly

May 30, 2009 (Started May 13, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: At the three week stage, I am sleeping much better and my ALS chain yawning has ceased. All other ALS symptoms appear stable, but at least three months will have to pass for meaningful results to become evident. My 4.5mg dose is derived from the standard 50mg tablet.
Cost: Not specified monthly

  • 6 helpful marks
janik
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janik
Sex: F
Data Quality: 3 stars
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
I am: n
I have:
PLS

See janik's full Naltrexone history

Sep 2, 2009 (Started Aug 20, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: Not specified monthly

Dec 1, 2008 (Started Aug 20, 2006)

  • Perceived effectiveness for PLS (Primary Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3.5 mg Daily
Cost: Not specified monthly

  • 2 helpful marks
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