76 patient evaluations for Naltrexone

Zeldacat1
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Zeldacat1
Data Quality: 0 stars
  • Gender: F
  • Age: 61
Condition: 2 additional condition(s)
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported

See Zeldacat1's full Naltrexone history

Jun 7, 2010 (Started Dec 25, 2009)

  • Perceived effectiveness for Pain: Major
  • Perceived effectiveness for Fatigue: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 mg Daily
Advice & Tips: I have been doing really well on LDN for the last few months, better energy and much less pain. In the beginning I had some vivid dreams but that passed. In the last 2-3 weeks however, I have begun having vivid bad dreams and even nightmares - as of last night, I am decreasing from 4.5 mg to 3 mg to see if that will eliminate the bad dreams.

  • 5 helpful marks
kgcfgh
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kgcfgh
Gender: F
Data Quality: 1 star
Pain: Little
Fatigue: Little
Sleep: None
Stiffness: None
function: All
external_stress: Most
Stickman: little
Description:F55y
FM:6y Dx
CFS:?y
I am: g
I have:
Fibromyalgia

See kgcfgh's full Naltrexone history

May 18, 2010 (Started May 01, 2010)

  • Perceived effectiveness for Fibromyalgia: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: Started out on 4.5 mg every night and that's where I have continued...I believe it has made a difference...not completely pain free but better....has also cleared up some acne...
Cost: Not specified monthly
Side effects: Morning nausea

  • 3 helpful marks
Parker's son
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Parker's son
Sex: M
Data Quality: 0 stars
On
Mouth/throat: severe
Arms: severe
Chest: mild
Legs: moderate
I have:
Parkinson's

See Parker's son's full Naltrexone history

May 18, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: < $25 monthly
Side effects: Freezing of feet, Stiffness/Spasticity, Stiffness/Spasticity

Mar 16, 2010 (Started Mar 16, 2010)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1.5 mg Daily
Advice & Tips: try it...you'll like it!
Cost: < $25 monthly
Side effects: Freezing of feet, Stiffness/Spasticity, Stiffness/Spasticity

  • 2 helpful marks
i'm a believer
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i'm a believer
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: moderate
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See i'm a believer's full Naltrexone history

Apr 16, 2010 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: Less fatigued since beginning
Cost: < $25 monthly

Jun 30, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 3 mg Daily
Advice & Tips: The first 2 weeks I experienced Insomnia buts its no longer a problem. Be aware its not covered by insurance as its not been approved for treatment of MS even though its approved by the FDA in higher doses for other illnesses.
Cost: < $25 monthly

May 9, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: I personally would use this with or without other tx. I was no longer able to tolerate the injections and the Imuran made me very ill so even though this is not a FDA approved drug for MS it seems to be working for me.
Cost: < $25 monthly

Mar 12, 2009 (Started Feb 23, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: caused insomnia the first week but no other problem noted. advised to take at bedtime per pharmacist.
Cost: < $25 monthly

  • 1 helpful mark
calanz
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calanz
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See calanz's full Naltrexone history

Apr 8, 2010 (Started Aug 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: I take a 3mg LDN capsule every evening at or after 10:00pm. The first dose of LDN made my breathing easier (I also have COPD) The first week of taking LDN the spacidity pain in my legs became less and less. I began having more energy and less fatigue and an over all good feeling. After 6 months I was able to stop using a cane when walking.
Cost: Not specified monthly

  • 1 helpful mark
Bramblina
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Bramblina
Gender: F
Data Quality: 0 stars
Pain: Some
Fatigue: Most
Sleep: Some
Stiffness: All
function: Some
external_stress: Little
Stickman: most
Description:F31y
FM:8y Dx
I have:
Fibromyalgia

See Bramblina's full Naltrexone history

Mar 25, 2010 (Started Feb 26, 2010)

  • Perceived effectiveness for Fibromyalgia: None
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 3 mg Daily
Advice & Tips: I was perscribed larger pills to hack down, which was a pain in the butt and probably made for wonky dosages. I seemed to get more restful sleep while taking LDN. Didn't notice anything for my pain though.

Mar 13, 2010 (Started Feb 26, 2010)

  • Perceived effectiveness for Fibromyalgia: Can’t tell
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 3 mg Daily
Advice & Tips: Sleeping very well so far. Starting to do things in my sleep I don't remember.

  • 6 helpful marks
ireckon
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ireckon
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

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Feb 18, 2010 (Started Jan 26, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 4.5 mg Daily
Advice & Tips: going to try lower dose
Cost: < $25 monthly
Side effects: Sleepiness

  • 0 helpful marks
akita
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akita
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: b
I have:
ALS

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Dec 16, 2009 (Started Sep 24, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
mochafroggy
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mochafroggy
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: Little
external_stress: Some
Stickman: all
Description:F55y
FM:14y Dx
I am: b
I have:
Fibromyalgia

See mochafroggy's full Naltrexone history

Dec 1, 2009 (Started Oct 30, 2009)

  • Perceived effectiveness for Fibromyalgia: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: It seemed to help initially but after 2 weeks I was in a pain place where I hadn't been in over a year. Doctor putting me back on Ultam.
Side effects: Nausea

  • 2 helpful marks
SammyJo
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SammyJo
Sex: F
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I have:
MS

See SammyJo's full Naltrexone history

Oct 25, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: Spacticity increased over time, and it qit helping my MS. Quit using it when I did CCSVI treatment. But LDN worked great for 4 years.
Cost: < $25 monthly

Oct 2, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: LDN was a lifesaver for me.
Cost: < $25 monthly

  • 2 helpful marks
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