70 patient evaluations for Naltrexone

ireckon
9074 thumb
ireckon
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

See ireckon's full Naltrexone history

Feb 18, 2010 (Started Jan 26, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 4.5 mg Daily
Advice & Tips: going to try lower dose
Cost: $25-49 monthly
Side effects: Sleepiness

  • 0 helpful marks
akita
428 thumb
akita
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: b
I have:
ALS

See akita's full Naltrexone history

Dec 16, 2009 (Started Sep 24, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
mochafroggy
13963 thumb
mochafroggy
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: Little
external_stress: Some
Stickman: all
Description:F55y
FM:13y Dx
I am: b
I have:
Fibromyalgia

See mochafroggy's full Naltrexone history

Dec 1, 2009 (Started Oct 30, 2009)

  • Perceived effectiveness for Fibromyalgia: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: It seemed to help initially but after 2 weeks I was in a pain place where I hadn't been in over a year. Doctor putting me back on Ultam.
Side effects: Nausea

  • 2 helpful marks
SammyJo
560 thumb
SammyJo
Sex: F
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I have:
MS

See SammyJo's full Naltrexone history

Oct 25, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: Spacticity increased over time, and it qit helping my MS. Quit using it when I did CCSVI treatment. But LDN worked great for 4 years.
Cost: $25-49 monthly

Oct 2, 2009 (Started Feb 01, 2004)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: LDN was a lifesaver for me.
Cost: $25-49 monthly

  • 2 helpful marks
clippedwings
11181 thumb
clippedwings
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
I have:
ALS

See clippedwings's full Naltrexone history

Sep 24, 2009 (Started May 13, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: My chain yawning has been a thing of the past, and I am starting to experience an easier time when food is concerned. There is a noticeable reduction in the number of choking/coughing episodes. My FRS is stable, but this may result from some other aspect of my treatment protocol.
Cost: < $25 monthly

May 30, 2009 (Started May 13, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: At the three week stage, I am sleeping much better and my ALS chain yawning has ceased. All other ALS symptoms appear stable, but at least three months will have to pass for meaningful results to become evident. My 4.5mg dose is derived from the standard 50mg tablet.
Cost: < $25 monthly

  • 6 helpful marks
janik
3694 thumb
janik
Sex: F
Data Quality: 3 stars
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
I am: vg
I have:
PLS

See janik's full Naltrexone history

Sep 2, 2009 (Started Aug 20, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: < $25 monthly

Dec 1, 2008 (Started Aug 20, 2006)

  • Perceived effectiveness for PLS (Primary Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3.5 mg Daily
Cost: < $25 monthly

  • 2 helpful marks
SParker
15871 thumb
SParker
Sex: F
Data Quality: 2 stars
Bulbar: mild
Arms: moderate
Chest: mild
Legs: severe
I am: n
I have:
ALS

See SParker's full Naltrexone history

Aug 28, 2009 (Started Nov 05, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Advice & Tips: I have been on LDL for almost 10 months now - every time I go to the neurologists - he says if there is any change - he can't tell - and to keep doing what I'm doing. So with that said - I will always take LDN -
Cost: $25-49 monthly

May 14, 2009 (Started Nov 05, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4.5 mg Daily
Cost: $25-49 monthly

  • 7 helpful marks
Pete-Air
7422 thumb
Pete-Air
Sex: M
Data Quality: 0 stars
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
I am: g
I have:
ALS

See Pete-Air's full Naltrexone history

Aug 17, 2009 (Started Aug 07, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 mg Daily
Advice & Tips: When I first started to take Low Dose Naltrexon, the days were very tiring for me. I was suffering form diarrhoea and often had a headache as well. Yes, the Low Dose Naltrexon triggers more and heavier fasciculations. I notice this in an instant when I go to bed, but I can feel it the next morning as well. The fasciculations slowly disappear during the day. I wonder if this all is a side-effect of LDN or could it be the exhaustion and irregularity? Although this is unlikely, this could also be the result of some other new supplements like Adaptonyl and Vitamin B5 500, which I began using since short time. After I had discussed this with my orthomoleculair therapist, I decided to quit using LDN after a usage of 11 days. The heavier fasciculations have not yet returned and I have heard a likewise reaction from another ALS patient, who had quit after 2 weeks of usage.
Side effects: Muscle spasms in legs, Diarrhea, Headaches

  • 1 helpful mark
Pennyvane
9844 thumb
Pennyvane
Sex: F
Data Quality: 2 stars
Bulbar: none
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
PLS

See Pennyvane's full Naltrexone history

Aug 12, 2009 (Started Jun 10, 2009)

  • Perceived effectiveness for PLS (Primary Lateral Sclerosis): Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1.75 mg Daily
Advice & Tips: to avoid adverse effects, have a snack with LDN find your own optimum dose
Cost: < $25 monthly
Side effects: Antsy, Hot flashes, Nausea

Jun 18, 2009 (Started Jun 10, 2009)

  • Perceived effectiveness for PLS (Primary Lateral Sclerosis): Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 2.5 mg Daily
Advice & Tips: After i week, I would say, expect the unexpected and persevere for a reasonable time. All I hoped for was to look back in a few months and see little or no progression. The balance improvement was a wonderful, unexpected blessing.
Cost: $25-49 monthly
Side effects: Antsy, Hot flashes, Nausea

  • 5 helpful marks
MSGIRLINME
6395 thumb
MSGIRLINME
Sex: F
Data Quality: 0 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See MSGIRLINME's full Naltrexone history

Jun 26, 2009 (Started Jan 27, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

Jan 3, 2009 (Started Jan 27, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
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