2 patient evaluations for Clobazam with a side effects rating of Mild

7 members have decided to share their profiles only with other members of PatientsLikeMe.

dhaniboi
19508 thumb
dhaniboi
Data Quality: 3 stars
  • Gender: M
  • Age: 45y
  • Duration: 42 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
19 seizures
this week
I am: vg
I have:
Epilepsy

See dhaniboi's full Clobazam history

May 24, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Overly talkative (talk too much), Finger tapping, fidgeting and excess physical energy, Constipation, Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: Took way longer then it should have.  He said give him at least 5 days.  I  did call the refill in within 5 days but Kmart had not transfered it yet, so Victor told me to call back in a day or 2.  Whhich I did but it still was not transferedd yet.
Cost: $200+ monthly

Apr 26, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Finger tapping, fidgeting and excess physical energy, Constipation, Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Mar 31, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Finger tapping, fidgeting and excess physical energy, Constipation, Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Mar 2, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Feb 5, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: lowered keppra rage.
Cost: $200+ monthly

Jan 7, 2016 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Dec 15, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: filled: 12/06/15
Cost: $200+ monthly

Oct 12, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Sep 10, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: refill called in 9/6/15, requests sent in 9/6, 9/8, 2 on 9/9. Couldn't pick it up till 9/10, by then I was out of meds. Called Cathy and shes on vacation, i called who she said and I was told the PA was sent at 2:59pm Everytime I need a PA walmart always said the doctor always said the doctor wasn't getting back till days later. It is now happening at Kmart so I now believe the slowness is at the doctors office. Its pitiful I have to wait until medication is out. Last problem was with keppra. I think Dr. Labiner has too many locations which means too many patients now. I love him because he is an epeileptologist but the only other epileptologist is at mayo clinic in phoenix and may have more patients, have been with Dr. Labiner over 20 years.
Cost: $200+ monthly

Aug 17, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Jul 14, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Finger tapping, fidgeting and excess physical energy, Constipation, Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: lowers keppra-rage. Eddie says no but I say yes.
Cost: $200+ monthly

Jun 19, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

May 14, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: Sue filled it and it was double checked so there was her initials and a double checked initials by a tech.
Cost: $200+ monthly

Apr 22, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: picked up the 18 Onfi I was owed. Let Sue know There were no Pharmacist initials and no tech double checked it. Like the one Pablo said was filled with 60 and only had 42. He said each time I always got 60. Took the bottle in to show him and he said its ok I believe you.
Cost: $200+ monthly

Apr 21, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: got the refill yesterday, finally. by the time I got to Bisbee and opened them it look different so i poured out the bottle and there were only 42. But Pablo says every time medications are double checked so 60 were dispensed. Problem is there are NO pharmacist initials or initials by a tech. above the quantity as required on a controlled substance. I basically don't appreciate the implication I am lying, but don't want to get anyone in trouble.
Cost: $200+ monthly

Apr 20, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: got the refill yesterday, finally. by the time I got to Bisbee and opened them it look different so i poured out the bottle and there were only 42. But Pablo says every time controled medications are double checked so 60 were dispensed, because there are 60 per bottle, so 60 have to be there because I am the only person taking that medication. Problem is there are NO pharmacist initials or initials by a tech. above the quantity as required on a controlled substance. I basically don't appreciate the implication I am lying, but don't want to get anyone in trouble. next time tell Sue and report it to the pharmacist board.
Cost: $200+ monthly

Apr 13, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: Now having problems getting this medication. Glad it lowers my temper
Cost: $200+ monthly

Mar 18, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: temper is better with it.
Cost: $200+ monthly

Feb 20, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Feb 19, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: talkative & fidgity if I dont eat and I am better at holding my tongue.
Cost: $200+ monthly

Feb 12, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Feb 8, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: takes 4-8 ounces at dinner to "help" me.
Cost: $200+ monthly

Feb 6, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: reduces keppra rage & so days makes me talkative but makes me talkative most nights.
Cost: $200+ monthly

Jan 27, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: lessened temper and constipation is fixed with prune juice.
Cost: $200+ monthly

Jan 21, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: has lowered my urge to snap at people feels to be lessened but Edward says I still have a short fuse.
Cost: $200+ monthly

Jan 20, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Cost: $200+ monthly

Jan 14, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: making my temper easier to control than before. Everyone on keppra needs to also get on Onfi. 8 fl. ounces of prune juice worked like a dream. Generic works best on me.
Cost: $200+ monthly

Jan 3, 2015 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: the constipation is going away and this stuff cuts keppra rage.
Cost: $200+ monthly

Dec 28, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: lessens Keppra Rage, and constipation isnt as bad as it was before. Just a few glasses of prune juice help now.
Cost: $200+ monthly

Dec 24, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Sleepiness, Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: feel constipates so borrowed 3 equate peri colace from my mom.
Cost: $200+ monthly

Dec 23, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: Moving to kmart 12/26 or 27
Cost: $200+ monthly

Dec 21, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Twice daily
Advice & Tips: felt even better temper wise. had the shivers real bad and then was burning up. I was afraid it was the medication but it didnt occur the next day so just had a 24 hour flu. I still slept long with the combo of onfi and fycompa.
Cost: $200+ monthly

Dec 18, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: changed to 10 BID
Cost: $200+ monthly

Dec 15, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Cost: $200+ monthly

Nov 28, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: Only one 1.5 a day. 2 make me to "zombie" like. If Dr. Labiner wants me to go to 2 BID I would like a script fr colace or peri colace. I cant do the constipation all the time, that was uncomfortable. and ex-lax gave memajor cramps.
Cost: $200+ monthly

Nov 18, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: taking 1 in AM and .5 in PM. I dont wanna go to 1 and 1 unless I get a script for colace or peri colace. Tempted to drop this if Banzel is raised from 120 to 150(my old dose). But its very effective on complex seizures. And lowers my agitation. Eddie says he can't see it but I definatley feel a diff.
Cost: $200+ monthly

Nov 5, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: lessened the feeling of wanting to choke the dumb out of dumbshits. Edward says he cant tell but more than one of my meds cause temper probs. and I can feel it has lessened.
Cost: $200+ monthly

Nov 3, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: taking 15 mg a day.
Cost: $200+ monthly

Oct 24, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: Feels like it has lessened how easily I lose my temper but Eddie says he can't see it, but I certainly feel it.
Cost: $200+ monthly

Oct 21, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: has lessened the Keppra- rage, but not totally. Hanen't needed prune juice for 5 day. I a, consuming more coffee, but out of nerves right now. I even smoke on "the night" because I is so nervous.
Cost: $200+ monthly

Oct 17, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: lessenes temper occurance, but Keppra rage is still there. Not gonna even think of taking more than 15mg a day till I cam have a BM daily without help i.e. prune juice, OTC peri colace, mineral oil or olive oil.
Cost: $200+ monthly

Oct 12, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: I might need colace, I had no BM today but chalking that up to stress, gotta talk to Eddie about lessening his alcohol intake.
Cost: $200+ monthly

Oct 11, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: my system seems to be getting used to the Onfi. just have used prune juice or coffee.
Cost: $200+ monthly

Oct 9, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: think my body is finally getting used to Onfi because I had a BM about 2 hours after coffee like normal. taking 1 pill in the AM and 1/2 at night. Not ready to go to 1 BID unless I get a script for pericolace in case it "clogs" me up again.
Cost: $200+ monthly

Oct 8, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: first BM with no help for about 2 weeks.
Cost: $200+ monthly

Oct 6, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Occasional shallow breathing, Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: lessens my bad moods.
Cost: $200+ monthly

Oct 5, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: my body is getting used to it because it doesn't make me as sleepy. The constipation is better to but that may be because I have mineral oil in AM and a glass of prune juice with dinner.
Cost: $200+ monthly

Oct 2, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 15 mg Daily
Advice & Tips: did a small glass of prune juice with dinner. More than a glass feels like a colon clease diet.
Cost: $200+ monthly

Sep 28, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: took 3 yesterday and that helped. the 1 today didnt. may need perscription peri-colace.
Cost: $200+ monthly

Sep 27, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: works great at 10mg in the AM then 5mg at night. I love this medication but it makes me very constipated.
Cost: $200+ monthly

Sep 26, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: temper has lessened in my view. Started on 5 mg and 5 mg for a week, didnt do squat. After 7 days I still felt bad so went to 10mg in am and 5 in pm when I went to 10 mg I started having numerous complex partials and one drop attack. I went back to 10mg in am and 5 in pm and everything is back to good.
Cost: $200+ monthly

Sep 25, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $200+ monthly

Sep 23, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: had 2 drop attacks ans 2 partial complex in the last 2 days. I Did feal much better on 1 in am an 1/2 in pm. raising Fycompa to three to night it I sleep past noon I am emailing him ASAP. I was so happy with onfi.
Cost: $200+ monthly

Sep 21, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: no no seizures for a few days. had one now. maybe take a fycompa at 6:00pm?
Cost: $200+ monthly

Sep 20, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $200+ monthly

Sep 18, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: temper is better
Cost: < $25 monthly

Sep 17, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I dont "lose it" as easy. I dropped1 Pill of Fycompa and I woke up at 10:30am. I think I was on to many sedating medications at night. Pills are 9.68.
Cost: < $25 monthly

Sep 16, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Slept till about 2 pm today so dropping 4 MG of Fycompa.
Cost: < $25 monthly

Sep 15, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Increased sleepiness, Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: slept till almost 1 pm. not sure if fycompa should be lowered 4 MG.
Cost: < $25 monthly

Sep 12, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: seizures are still increasing so increase to 1 tablet in am and .5 pill at pm, seizures have decresed by 1/2 if not more.
Cost: < $25 monthly

Sep 11, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: full dose helped .5 dose helps a little
Cost: < $25 monthly

Sep 10, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Somnolence, Bitter taste)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Started on 1/2 a pill twice a day. I want to up it because the seizure feeling is there from waking till sleeping. Last year at this time it was 8 a day at max and all occured after 4pm. dont take with water.
Cost: < $25 monthly

Sep 6, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Sep 4, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I woke up at 10 am then sat in a chair and fell asleep again till 1pm
Cost: < $25 monthly

Sep 3, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: lets me wake rested.
Cost: < $25 monthly

Aug 30, 2014 (Started Sep 29, 2014)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I just started it but it allowed me to get a sound sleep and awake with NO seizures as of yet.
Cost: < $25 monthly

  • 0 helpful marks
pheonix61
45106 thumb
pheonix61
Data Quality: 1 star
  • Gender: M
  • Age: 64
Condition: COPD 43 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
COPD

See pheonix61's full Clobazam history

Jul 17, 2012 (Started Oct 03, 1991)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg Daily
Advice & Tips: being a minor tranquilizer as well clobazam helps with the occasional flutters I get from my GAD problems
Cost: < $25 monthly

Apr 30, 2012 (Started Oct 03, 1991)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg Daily
Cost: < $25 monthly

Apr 28, 2012 (Started Oct 03, 1991)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg Daily
Advice & Tips: being of the benzodiazipine class of drugs it has also had somewhat a marked effect on my psycosis.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Clobazam