4 patient evaluations for FTY720 (Fingolimod) Clinical Trial

JesswithMS
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JesswithMS
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See JesswithMS's full FTY720 (Fingolimod) Clinical Trial history

Sep 22, 2010 (Started Oct 02, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: Daily
Advice & Tips: Don't know if I was really on the real drug or not, but it has been a very positive experience for me.
Cost: < $25 monthly
Side effects: Nausea, Gas, Slowed heart rate, Diarrhea, Dizziness, Lightheadedness, Fatigue, Acid reflux

Mar 22, 2010 (Started Oct 02, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: Daily
Advice & Tips: I am in a two year double blind placebo study for this drug. I truly feel I am taking the real medicine. It has enabled me to literally start living my life again. I have relapsed while taking this drug, however, the relapses themselves have so mild, I have not needed IV steroids. In the past, while on other DMDs, I would have certainly needed the IV steroids. I am really looking forward to this drug getting FDA approved so others will hopefully have the wonderful benefits I have had.
Cost: < $25 monthly
Side effects: Nausea, Gas, Slowed heart rate, Diarrhea, Dizziness, Lightheadedness, Fatigue, Acid reflux

Feb 13, 2009 (Started Oct 02, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: Daily
Advice & Tips: For now and for me this drug may be a blessings, especially financially. It has come at a great time when I was out of options for DMDs with the exception of chemo and I wasn't ready or willing to do that. My advice for everyone who is thinking or doing a drug study, make sure you keep a journal, it is truly beneficial.
Cost: < $25 monthly
Side effects: Nausea, Gas, Slowed heart rate, Diarrhea, Dizziness, Lightheadedness, Fatigue, Acid reflux

Oct 3, 2008 (Started Oct 02, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: Daily
Advice & Tips: This is a phase 3 drug study and is not approved by the FDA yet. Will keep a journal for those who may be interested in starting this treatment.
Cost: < $25 monthly
Side effects: Nausea, Gas, Slowed heart rate, Diarrhea, Dizziness, Lightheadedness, Fatigue, Acid reflux

  • 1 helpful mark
shenannigans99
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shenannigans99
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See shenannigans99's full FTY720 (Fingolimod) Clinical Trial history

Aug 3, 2010 (Started Oct 29, 2007)

  • Perceived effectiveness for Participate in clinical trial: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I LOVE not having to do injections anymore. I am in my 2nd year and was told at my last visit that my visits will continue until drug approval or if I should have a major reaction that has been reported, such as macular degeneration. So far, this has been wonderful!!

  • 1 helpful mark
Singer
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Singer
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See Singer's full FTY720 (Fingolimod) Clinical Trial history

Jun 1, 2009 (Started Apr 08, 2003)

  • Perceived effectiveness for Other: None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly
Side effects: Slowed heart rate

  • 0 helpful marks
grumpy40
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grumpy40
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See grumpy40's full FTY720 (Fingolimod) Clinical Trial history

Jan 10, 2009 (Started Jan 11, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 1 Daily
Advice & Tips: it's still part of the clinical trial.
Cost: < $25 monthly
Side effects: Slowed heart rate

  • 0 helpful marks
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Showing 4 of 4 patient evaluations for FTY720 (Fingolimod) Clinical Trial