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4 patient evaluations for Heat avoidance with a burden rating of Very hard to take

13 members have decided to share their profiles only with other members of PatientsLikeMe.

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tazbaby4eva
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tazbaby4eva
Sex: F
Data Quality: 0 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See tazbaby4eva's full Heat avoidance history

Jan 18, 2013 (Started Jun 01, 2008)

  • Effectiveness
    Major (for Fatigue)
  • Side effects
    Severe (Makes me very edgy)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Daily
Advice & Tips: The heat is very touch and go with MS
  • 0 helpful marks
wantitgone
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wantitgone
Sex: F
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: severe
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See wantitgone's full Heat avoidance history

Jul 16, 2009 (Started Mar 01, 2003)

  • Effectiveness
    Major (for General health)
  • Side effects
    Moderate (Loneliness)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: As needed
Side effects: Loneliness
  • 0 helpful marks
kellyannie
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kellyannie
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See kellyannie's full Heat avoidance history

Feb 7, 2009 (Started Jun 19, 1989)

  • Effectiveness
    Major (for Heat intolerance)
  • Side effects
    Severe (Difficulty doing chores, Avoidance of the sun, Tremor in hands, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: As needed
Advice & Tips: this is one of the worst problems I have with MS and most frustrating
Cost: < $25 monthly
Side effects: Difficulty doing chores, Avoidance of the sun, Tremor in hands, Fatigue
  • 0 helpful marks
Impy Ann1
7119 thumb
Impy Ann1
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I have:
MS

See Impy Ann1's full Heat avoidance history

Dec 7, 2008 (Started )

  • Effectiveness
    Major (for Heat intolerance)
  • Side effects
    Severe (Difficulty doing chores, Tremor in hands, Fatigue)
  • Adherence
    Usually
  • Burden
    Very hard to take
Advice & Tips: I use a cooling vest which does help, stay hydrated, stay out of direct sunlight and I stay indoors on days when heat is over 80.
Cost: < $25 monthly
Side effects: Difficulty doing chores, Tremor in hands, Fatigue
  • 0 helpful marks
Last updated:
Showing 4 of 4 patient evaluations for Heat avoidance