17 patient evaluations for Intravenous Immunoglobulin (IVIG)

212 members have decided to share their profiles only with other members of PatientsLikeMe.

firefly84
88141 thumb
firefly84
Data Quality: 3 stars
  • Gender: F
  • Age: 32
Condition: autonomic neuropathy 26 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
autonomic neuropathy

See firefly84's full Intravenous Immunoglobulin (IVIG) history

Jan 16, 2017 (Started Nov 12, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Mild (Weight gain, Abdominal pain, migraine, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Monthly
Advice & Tips: My 12/6/16 infusion had a lot fewer side effects the next day and also the night of. My new immunologist had D5NS infuse at 20 mL/hr in addition to the Gammagard Liquid at my maximum tolerable rate of 40 mL/hr. Having the D5NS really seemed to make a big difference in the decreased side effects. Basically I was just really fatigued for a couple days.

Aug 27, 2016 (Started Nov 12, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Mild (Weight gain, Abdominal pain, migraine, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 g Monthly
Advice & Tips: With the Gammagard, I have noticed that my weight jumps about 9 pounds after each infusion. The weight change takes place overnight and after about 7 days, my weight is back to baseline. My insurance requires a new prior authorization every 3 months, which makes it something else that I have to keep tabs on. 

Nov 16, 2015 (Started Nov 12, 2015)

  • Effectiveness
    Can’t tell (for hypogammaglobulinemia)
  • Side effects
    Moderate (Weight gain, Abdominal pain, migraine, Fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 25 g Monthly

  • 1 helpful mark
firefly84
88141 thumb
firefly84
Data Quality: 3 stars
  • Gender: F
  • Age: 32
Condition: autonomic neuropathy 26 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
autonomic neuropathy

See firefly84's full Intravenous Immunoglobulin (IVIG) history

Nov 1, 2015 (Started May 15, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Moderate (Abdominal pain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25000 mg Monthly

  • 0 helpful marks
Navyarmymom8
72817 thumb
Navyarmymom8
Data Quality: 1 star
  • Gender: F
  • Age: 53
Condition: Myasthenia Gravis 5 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Myasthenia Gravis

See Navyarmymom8's full Intravenous Immunoglobulin (IVIG) history

Jul 20, 2015 (Started Jun 22, 2015)

  • Effectiveness
    None (for myasthenia gravis)
  • Side effects
    Severe (Allergic reaction)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: After 15 min at a drip of 36ml an hr....the ivig was turned off due to my body rejecting treatment with allergic reactions or flushing, numbness in mouth and starting of angioedema.

  • 0 helpful marks
sarahbellum
14185 thumb
sarahbellum
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See sarahbellum's full Intravenous Immunoglobulin (IVIG) history

Sep 21, 2013 (Started Nov 15, 2012)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 g Monthly
Advice & Tips: If insurance covers, take it!
Cost: < $25 monthly

  • 0 helpful marks
cpt_c_pike
36942 thumb
cpt_c_pike
Sex: M
Data Quality: 1 star
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
I am: n
I have:
ALS

See cpt_c_pike's full Intravenous Immunoglobulin (IVIG) history

Jun 28, 2013 (Started Aug 29, 2011)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 80 mg Weekly

Mar 30, 2012 (Started Aug 29, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 40 g Weekly
Advice & Tips: didnt catch any colds over course stop is to evaluate effect severe side effects 1st week only

  • 0 helpful marks
LSK
12214 thumb
LSK
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See LSK's full Intravenous Immunoglobulin (IVIG) history

Aug 1, 2012 (Started Jul 09, 2012)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Severe (Nausea and vomiting, Back pain, Headaches)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 65 g Monthly

  • 0 helpful marks
nirvis
Portrait default thumb
nirvis
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: none
Chest: none
Legs: none
I am: g
I have:
PMA

See nirvis's full Intravenous Immunoglobulin (IVIG) history

Jun 15, 2012 (Started Jun 11, 2012)

  • Effectiveness
    None (for multifocal motor neuropathy)
  • Side effects
    Mild (Headaches, Flu like symptoms)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 40 g Daily
Cost: < $25 monthly

  • 0 helpful marks
capt bubba
13060 thumb
capt bubba
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See capt bubba's full Intravenous Immunoglobulin (IVIG) history

Nov 15, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 1.5 g Monthly
Cost: < $25 monthly

Mar 5, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Moderate (for Other)
  • Side effects
    Mild
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 1.5 g Monthly
Advice & Tips: I think it helped
Cost: < $25 monthly

Feb 4, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Slight (for Other)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1.5 g Monthly
Advice & Tips: one year once a mounth
Cost: < $25 monthly

  • 0 helpful marks
ell
Portrait default thumb
ell
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See ell's full Intravenous Immunoglobulin (IVIG) history

Jul 16, 2010 (Started Apr 22, 2009)

  • Effectiveness
    Can’t tell (for Cognitive impairment)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 40 mcg Monthly
Advice & Tips: I was very pleased with the results of my infusions,I was able to continue mobility and had fewer relapses til 2010

  • 0 helpful marks
JnSma6
25409 thumb
JnSma6
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See JnSma6's full Intravenous Immunoglobulin (IVIG) history

Jun 9, 2010 (Started May 15, 2010)

  • Effectiveness
    None (for Immune system weak)
  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Severe (Shaky hands)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 5 g Monthly
Advice & Tips: I have the shakes/ hot flashes and my spasms and weakness has become worsened, I also am having balance problems and also having to take a steroid during the IV, I just started a long range of treatments as my immune system has not come up like it should.
Cost: $200+ monthly
Side effects: Shaky hands

  • 0 helpful marks
Last updated:
Showing 10 of 17 patient evaluations for Intravenous Immunoglobulin (IVIG)