14 patient evaluations for Intravenous Immunoglobulin (IVIG)

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Navyarmymom8
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Navyarmymom8
Data Quality: 1 star
  • Gender: F
  • Age: 52
Condition: Myasthenia Gravis 5 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Myasthenia Gravis

See Navyarmymom8's full Intravenous Immunoglobulin (IVIG) history

Jul 20, 2015 (Started Jun 22, 2015)

  • Effectiveness
    None (for Myasthenia Gravis)
  • Side effects
    Severe (Allergic reaction)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: After 15 min at a drip of 36ml an hr....the ivig was turned off due to my body rejecting treatment with allergic reactions or flushing, numbness in mouth and starting of angioedema.

  • 0 helpful marks
sarahbellum
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sarahbellum
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See sarahbellum's full Intravenous Immunoglobulin (IVIG) history

Sep 21, 2013 (Started Nov 15, 2012)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 g Monthly
Advice & Tips: If insurance covers, take it!
Cost: < $25 monthly

  • 0 helpful marks
cpt_c_pike
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cpt_c_pike
Sex: M
Data Quality: 1 star
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
I am: n
I have:
ALS

See cpt_c_pike's full Intravenous Immunoglobulin (IVIG) history

Jun 28, 2013 (Started Aug 29, 2011)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 80 mg Weekly

Mar 30, 2012 (Started Aug 29, 2011)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 40 g Weekly
Advice & Tips: didnt catch any colds over course stop is to evaluate effect severe side effects 1st week only

  • 0 helpful marks
nirvis
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nirvis
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: none
Chest: none
Legs: none
I am: g
I have:
PMA

See nirvis's full Intravenous Immunoglobulin (IVIG) history

Jun 15, 2012 (Started Jun 11, 2012)

  • Effectiveness
    None (for Multifocal Motor Neuropathy)
  • Side effects
    Mild (Headaches, Flu like symptoms)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 40 g Daily
Cost: < $25 monthly

  • 0 helpful marks
capt bubba
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capt bubba
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See capt bubba's full Intravenous Immunoglobulin (IVIG) history

Nov 15, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 1.5 g Monthly
Cost: < $25 monthly

Mar 5, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Moderate (for Other)
  • Side effects
    Mild
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 1.5 g Monthly
Advice & Tips: I think it helped
Cost: < $25 monthly

Feb 4, 2010 (Started Apr 01, 2009)

  • Effectiveness
    Slight (for Other)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1.5 g Monthly
Advice & Tips: one year once a mounth
Cost: < $25 monthly

  • 0 helpful marks
ell
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ell
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See ell's full Intravenous Immunoglobulin (IVIG) history

Jul 16, 2010 (Started Apr 22, 2009)

  • Effectiveness
    Can’t tell (for Cognitive impairment)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 40 mcg Monthly
Advice & Tips: I was very pleased with the results of my infusions,I was able to continue mobility and had fewer relapses til 2010

  • 0 helpful marks
JnSma6
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JnSma6
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See JnSma6's full Intravenous Immunoglobulin (IVIG) history

Jun 9, 2010 (Started May 15, 2010)

  • Effectiveness
    None (for Immune system weak)
  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Severe (Shaky hands)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 5 g Monthly
Advice & Tips: I have the shakes/ hot flashes and my spasms and weakness has become worsened, I also am having balance problems and also having to take a steroid during the IV, I just started a long range of treatments as my immune system has not come up like it should.
Cost: $200+ monthly
Side effects: Shaky hands

  • 0 helpful marks
Koendv
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Koendv
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
I am: vg
I have:
PMA

See Koendv's full Intravenous Immunoglobulin (IVIG) history

Dec 14, 2009 (Started Dec 10, 2009)

  • Effectiveness
    None (for Misdiagnosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Cost: $200+ monthly

  • 0 helpful marks
Nisa
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Nisa
Sex: F
Data Quality: 0 stars
Sensation: Mild
Overall: Mild
Cognition: mild
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See Nisa's full Intravenous Immunoglobulin (IVIG) history

Nov 7, 2009 (Started Sep 07, 2002)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Effectiveness
    Moderate (for Fatigue)
  • Side effects
    Mild (Headaches, Elevated blood pressure)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 5 g Monthly
Advice & Tips: I am on a very aggressive treatment plan and I feel that the IVIG is a big part of the reason that I am in as good of shape as I am. I have been diagnosed for over 14 years, 47 years old and feel pretty good. I can tell when my treatment time comes around because the fatigue becomes much worse. I say that the IVIG "recharges my batter". I actually go every third week.
Cost: < $25 monthly
Side effects: Elevated blood pressure, Headaches

  • 3 helpful marks
TriC
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TriC
Sex: M
Data Quality: 0 stars
Mood: Very bad
Cognition: Mild
Autonomic: Moderate
Head: mild
Arms: moderate
Legs: moderate
Tremors: none
I have:
MSA

See TriC's full Intravenous Immunoglobulin (IVIG) history

May 1, 2009 (Started Feb 18, 2009)

  • Effectiveness
    Moderate (for Other)
  • Effectiveness
    Moderate (for MSA (Multiple System Atrophy))
  • Side effects
    Mild (Edema in hands, Ankle edema, Edema in feet)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 442 mg Monthly
Advice & Tips: You prob. need to join this particular trial (at UMass Med. Ctr. in Worcester) to get this treatment for MSA right now.
Cost: < $25 monthly
Side effects: Edema in feet, Edema in hands, Ankle edema

  • 0 helpful marks
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Showing 10 of 14 patient evaluations for Intravenous Immunoglobulin (IVIG)