11 patient evaluations for Stem Cell Transplant

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Aug 6, 2017 (Started Feb 20, 2017)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Every 3 months
Advice & Tips: I live in the U.S. but go to Israel for this. It's a long and expensive trip. I cannot tell whether I have seen any improvement from it, but I also have not had any side effect. The headache was temporary and was gone by the 3rd day. So far I have received two treatments and plan to get one more.

  • 1 helpful mark

Dec 5, 2013 (Started Dec 02, 2013)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: $200+ monthly

  • 0 helpful marks

Feb 11, 2013 (Started Jan 28, 2013)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: It is time for my second week update. i had the Precision Stem stem cell transplant two weeks ago. I am afraid all my gains have disappeared already. I again require a cane to maintain balance and I am using a pillow on the couch to sit on so that I have a higher starting height when I get out of the seated position. Now that the improvements are gone I am even more sure that I did indeed have a temporary increase in strength in my legs. But with such a short period it is really hard to say if it was in fact due to the transplant. So now the question is will the procedure lead to any kind of stabilization. In my case this should be relatively easy to determine. To date except for the period I was on NP001 my FRS curve has almost perfectly followed the average progression 'shape' as you can see on PLM.
Cost: $200+ monthly

Feb 4, 2013 (Started Jan 28, 2013)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: 1 week post procedure evaluation: Objective Observations: Before procedure was 100% dependent on cane, after procedure I do not need to use the cane. Before procedure could not climb stairs without cane. After procedure I am able to climb stair without cane. Before procedure had difficulty raising myself from a seated position on my couch. Required the use of two cushions which add about 5 inches of height to the seat in order to get in and out of seated position. After procedure no longer need cushions. I have minimal trouble getting in and out of seated position. Subjective Observations: Legs feel significantly stronger, I still only have a small fraction of my original strength but I am walking much better and don't need a cane anymore. I still take it if I go outside (which is rare) just to be safe. I am able to turn myself better in bed. However, I am in a different bed because we are renovating our master bathroom for accessibility. My grip strength seems to be a little better. It seems easier to put my socks on. All improvements have been gradual over the course of the week. For instance a couple days after the procedure I kept forgetting to grab my cane, then a couple days after that I just stopped using it altogether. Every night it just seems a little easier to turn in bed, and to get out of be.

  • 8 helpful marks

Sep 2, 2010 (Started Dec 28, 2009)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: 1.Maybe the placebo effect, if I had not done it would I be worse than I am now 2.Not to many benifits , other than my progression is slow
Cost: $200+ monthly

  • 0 helpful marks

Aug 20, 2010 (Started Aug 20, 2010)

  • Effectiveness
    Slight (for tol either freeze the symptoms or slow them down)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: Not to many benifits , other than my progression is slow
Cost: $200+ monthly

  • 0 helpful marks

Aug 15, 2010 (Started Apr 22, 2010)

  • Effectiveness
    None (for CD133+ stem cell transplant in frontal cortex)
  • Side effects
    Mild (numbness and tingling with pins and needles)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: The treatment has shown no benefits as yet.
Cost: $200+ monthly
Side effects: numbness and tingling with pins and needles

Apr 22, 2010 (Started Apr 22, 2010)

  • Effectiveness
    Can’t tell (for CD133+ stem cell transplant in frontal cortex)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: One time
Advice & Tips: This is an experimental treatment that I hope will slow and stop the progression of ALS.
Side effects: numbness and tingling with pins and needles

  • 0 helpful marks

May 21, 2010 (Started Oct 08, 2009)

  • Effectiveness
    Slight (for CD133+ stem cell transplant in frontal cortex)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: At present, axon growth is renewed in both sides of the brain to the brain stem. LMN damage is substantial, so little clinical change. Severe eye burning has subsided though. One time expense of $18,000.
Cost: $200+ monthly

  • 4 helpful marks

Mar 15, 2010 (Started Dec 30, 2009)

  • Effectiveness
    Slight (for inability to manipulate tongue)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: It arrested the progression of the disease for the last 5 months.
Cost: < $25 monthly

  • 1 helpful mark

Nov 4, 2009 (Started Nov 04, 2009)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: One time
Cost: < $25 monthly

  • 0 helpful marks

Jun 27, 2009 (Started Jun 08, 2009)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Advice & Tips: Go for it!
Cost: $200+ monthly

  • 1 helpful mark
Last updated:
Showing 10 of 11 patient evaluations for Stem Cell Transplant