126 patient evaluations for Carbidopa-Levodopa

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Tulabee
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Tulabee
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Tulabee's full Carbidopa-Levodopa history

Sep 23, 2016 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Dyskinesia)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: Have stopped this and have been on Rytary since about August 2015
Cost: < $25 monthly
Side effects: Dyskinesia

Feb 1, 2015 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Dyskinesia)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: On the average, it is best to take 0.75 tablet every 4.00 to 4.25 hrs. If I am doing something physical like a long walk or if I have to keep moving my whole body for 2-3 hours, then 1.00 tablet. Do not do this if sitting at a desk-dyskinesia.
Cost: < $25 monthly
Side effects: Dyskinesia

Nov 8, 2014 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Moderate (Dyskinesia)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: It's the fall/winter season, and I made a med change. IT coincides with the daylight getting shorter. About mid-to late Sept I increase the Cymbalta(depression) from 60mg to 120mg. This seems to affect how the L-dopa is metabolized. For a few weeks I was taking 1 whole tablet (100/25), every 5-6 hrs. The 0.75 dose wasn't doing its work. I also start on modafinil for alertness. Due to Rx screw up I wasn't able to start in Oct, but had to start in Nov. I was maintaining, but now I feel better with the modafinil. Like someone turning up the TV brightness switch just a little bit. But now I think I am very sensitive to the amount of L-dopa. I will work it out.
Cost: < $25 monthly
Side effects: Dyskinesia

Apr 18, 2013 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Moderate (Dyskinesia)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost: < $25 monthly
Side effects: Dyskinesia

  • 0 helpful marks
margie99
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margie99
Sex: F
Data Quality: 3 stars
On
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See margie99's full Carbidopa-Levodopa history

Sep 14, 2016 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Slight (for Dystonia)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: crackers help
Cost: < $25 monthly

Jul 13, 2016 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Slight (for Dystonia)
  • Side effects
    Moderate (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: I continue to be nausea, but crackers help.
Cost: < $25 monthly

  • 0 helpful marks
garden35
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garden35
Sex: M
Data Quality: 2 stars
On
Mouth/throat: none
Arms: none
Chest: none
Legs: none
I am: vg
I have:
Parkinson's

See garden35's full Carbidopa-Levodopa history

Jun 16, 2016 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Dec 22, 2015 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Nov 21, 2013 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Dec 6, 2012 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 5, 2011 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
MossyRock
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MossyRock
Sex: M
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See MossyRock's full Carbidopa-Levodopa history

Jun 11, 2016 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Moderate (Muscle and joint pain, Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 12 x 25-100 mg Five times daily
Advice & Tips: During a month long stay in hospital I did not have a problem with the nausea and vomiting.
Cost: $25-49 monthly

Jun 30, 2013 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: In spite of the recommendation of taking the pills an hour before eating, I take it with food.
Cost: $25-49 monthly

  • 0 helpful marks
Trainman
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Trainman
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: none
I am: g
I have:
Parkinson's

See Trainman's full Carbidopa-Levodopa history

May 30, 2016 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Moderate (On to off fluctuations worsening, Balance problems, Dizziness, Nausea, Dyskinesia, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25-100 mg Five times daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Effectiveness
    Slight (for Tremor(s))
  • Side effects
    Mild (Nausea, Sleep problems)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

  • 0 helpful marks
reikihh
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reikihh
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See reikihh's full Carbidopa-Levodopa history

Apr 24, 2016 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: The carbidopa/levodopa works the best for me to lessen the symptoms of PD. Other Rx drugs I tried didn't work as well or they worked well for symptoms but caused syncope or near syncope and left me feeling drained. It took many months to find the right med & the right dose. I do realize that carb/levo may cause tardive dyskinesia before it's over. But right now it is the best I can do & I want to enjoy it while I can. I can do quite a bit still . I owe that to the carb/levo.
Cost: < $25 monthly

Nov 26, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: My niece showed me how to set my iPhone clock to have a timer go off every day at 1pm to remind me to take my mid day dose of carb/levo & pramipexole. It works!!! It has worked. I have not missed a day since using the timer. I now am aware of "wearing off" of the meds. I never noticed it until a few months ago. At my last appt with Neurologist he increased my carb/levo to 1 1/2 TID. He said to increase gradually. I haven't increased just yet because I want to be firmly on the previous dose first which I am with this timer helping me. Soon I will try the new increase.
Cost: < $25 monthly

Jun 5, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: Now I am taking a new dose-1 TID-gradually titrating up from 1/2 TID. I still miss my noon dose although not as often. It is difficult remembering. I do notice the increase in dose is helping me stand up straighter longer & within about an hour of taking my dose. It is a pain in the neck to take 3 x a day but it improves my symptoms.
Cost: < $25 monthly

Feb 11, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Major (for RLS (Restless Legs Syndrome))
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I no longer am seeing any improvement. Maybe I have just gotten used to it & no longer notice it. Maybe it is time to increase again.
Cost: < $25 monthly

Nov 10, 2014 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
Penni
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Penni
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: none
I am: g
I have:
Parkinson's

See Penni's full Carbidopa-Levodopa history

Apr 24, 2016 (Started Jun 30, 2012)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Involuntary movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I look and feel better taking the meds.  My hand writing is much better.  I don't stare as much.  I move better.
Cost: < $25 monthly

  • 0 helpful marks
rch21
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rch21
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See rch21's full Carbidopa-Levodopa history

Mar 31, 2016 (Started Dec 15, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side effects
    Mild (Involuntary head movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Bullydawg3
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Bullydawg3
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See Bullydawg3's full Carbidopa-Levodopa history

Mar 23, 2016 (Started Jul 16, 2014)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
rachenitsa
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rachenitsa
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See rachenitsa's full Carbidopa-Levodopa history

Jan 13, 2016 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Balance problems)
  • Side effects
    Mild (Dyskinesia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Jan 10, 2009 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take as directed and call the doctor f there are any problems
Cost: < $25 monthly

Dec 14, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: take at least 1/2 hr before having a meal with protein - or wait about an hour after a large protein meal ....If Im in need of an extra boost I take with a high sugar beverage - adding sugar to water works just as well
Cost: < $25 monthly

Oct 20, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 19, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Aug 18, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take it on time on a regular schedule that works best with yoour activity level in order to get maximum benefit
Cost: < $25 monthly

  • 1 helpful mark
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