131 patient evaluations for Carbidopa-Levodopa

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Aug 15, 2017 (Started Jun 12, 2007)

  • Effectiveness
    Moderate (for Walking difficult without aid)
  • Effectiveness
    Moderate (for Tremor in hands)
  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Slow movement (bradykinesia))
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Effectiveness
    Moderate (for Mobility decreased)
  • Effectiveness
    Moderate (for Loss of balance)
  • Effectiveness
    Moderate (for Balance problems)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25-100 mg Three times daily
Advice & Tips: I am taking three sinemet per day after Dbs
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia), Drowsiness

Jan 15, 2017 (Started Jun 12, 2007)

  • Effectiveness
    Major (for Walking difficult without aid)
  • Effectiveness
    Major (for Tremor in hands)
  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Effectiveness
    Major (for Slow movement (bradykinesia))
  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for Mobility decreased)
  • Effectiveness
    Moderate (for Loss of balance)
  • Effectiveness
    Moderate (for Balance problems)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: As of January 2017 I have stopped taking sinemet because I had DBS.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia), Drowsiness

May 11, 2014 (Started Jun 12, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia), Drowsiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: As of today, I am still taking six sinemet daily, two pills at a time. Even when I am off, I can write and type almost as well as ever. And even when off, I have no tremor (unless I try to walk, then my right hand shakes.) And when I am on, my walking is generally normal. (I sometimes have problems with freezing when on.) My balance is also much better when I'm on. When off, I have difficulty standing on one leg, but I can do so for a minute or more when on.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia), Drowsiness

Sep 19, 2010 (Started Jun 12, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia), Drowsiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: At my most recent neurologist visit, she told me I had dyskinesias. My wife has also noticed them. I'm not sure how long I"ve had them, probably a few months. At my previous visit, three months ago (when I saw the Nurse Practitioner, not the neurologist), the Nurse did not mention them. They are quite mild - at least mild enough that I don't notice. My neurologist has suggested I take more Amantadine to see if this reduces them.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia), Drowsiness

Mar 29, 2009 (Started Jun 12, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Drowsiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: The first neurologist I saw, in March 2006, had me try a couple of sinemet per day. They had absolutely no effect. The second neurologist I saw, in April 2007, had me take a half tablet per day for the first week, one tablet daily the second, one and a half daily the third, and so on until I was taking four daily after eight weeks. It had no effect until the fifth week, when I started taking two and a half tablets daily. At that time, it improved my eating, dressing, and showering, but did not improve my writing or typing or walking. Later in 2007 I went to five sinemet daily, with little change. During the summer of 2008 I went to six, and my writing and typing essentially became normal. Even when off I’m able to write and type almost as well as ever. And I have no tremor. My walking improved dramatically as well – I could walk a mile or more first thing in the morning after taking my medication. But I would be off a substantial part of the day. I was taking one pill at 5 AM, 9 AM, noon, 3 PM, 6 PM, and 9 PM. In the fall of 2008 I went to taking two pills at 5 AM, 8 AM, and 1 PM. This improved my walking considerably.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia), Drowsiness

  • 0 helpful marks

Aug 10, 2017 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for dystonia)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: I eat crackers before taking the medication so I don't vomit. I take 2 tablets times 4 times daily of the 25/100 mg. tablets
Cost: < $25 monthly

May 25, 2017 (Started Jul 01, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Moderate (for dystonia)
  • Side effects
    Moderate (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: I eat crackers before taking the medication so I don't vomit. I take 2 tablets times 4 times daily of the 25/100 mg. tablets
Cost: < $25 monthly

Jan 17, 2017 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Effectiveness
    Moderate (for dystonia)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: I eat crackers before taking the medication so I don't vomit.
Cost: < $25 monthly

Oct 10, 2016 (Started Jul 01, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Slight (for dystonia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 14, 2016 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Effectiveness
    Slight (for dystonia)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: crackers help
Cost: < $25 monthly

Jul 13, 2016 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Effectiveness
    Slight (for dystonia)
  • Side effects
    Moderate (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Daily
Advice & Tips: I continue to be nausea, but crackers help.
Cost: < $25 monthly

  • 0 helpful marks

Jun 27, 2017 (Started Jun 03, 2007)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Mild (paroxysmal dyskinesia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25-250 mg Five times daily

  • 0 helpful marks

Jun 13, 2017 (Started Jun 01, 2016)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Involuntary head movement)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1400 mg Daily
Cost: < $25 monthly

Mar 31, 2016 (Started Jun 01, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Involuntary head movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

  • 0 helpful marks

Apr 20, 2017 (Started Sep 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25-100 mg Three times daily

  • 0 helpful marks

Apr 20, 2017 (Started Sep 28, 2012)

  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    Moderate (face grimace)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Four times daily
Cost: < $25 monthly
Side effects: face grimace

Feb 6, 2010 (Started Sep 28, 2012)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Moderate (face grimace)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Cost: < $25 monthly
Side effects: face grimace

  • 0 helpful marks

Mar 22, 2017 (Started Aug 18, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Dec 9, 2016 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Jun 16, 2016 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Dec 22, 2015 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Nov 21, 2013 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Dec 6, 2012 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 5, 2011 (Started Aug 18, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Feb 7, 2017 (Started Dec 01, 2009)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 tablet(s) Daily
Cost: < $25 monthly

Jul 28, 2015 (Started Dec 01, 2009)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 5 tablet(s) Daily
Cost: < $25 monthly

Jul 1, 2014 (Started Dec 01, 2009)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 6 tablet(s) Daily
Cost: < $25 monthly

May 26, 2013 (Started Dec 01, 2009)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I have reintroduced the medication to assist me with the problems of "Freezing Gait"
Cost: < $25 monthly

  • 0 helpful marks

Feb 3, 2017 (Started Jun 21, 2010)

  • Effectiveness
    Moderate (for Tremor in hands)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia), Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Nov 28, 2016 (Started Jun 21, 2010)

  • Effectiveness
    Moderate (for Tremor in hands)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia), Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Dec 15, 2015 (Started Jun 21, 2010)

  • Effectiveness
    Moderate (for Tremor in hands)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia), Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: This summer I had to lower my total intake of carbidopa / levodopa as I began to experience dyskinesia in the evenings.  If I keep my daily levodopa dose at or below 1200 mgs, I seldom experience any dyskinesia.
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Dec 17, 2012 (Started Jun 21, 2010)

  • Effectiveness
    Moderate (for Tremor in hands)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Advice & Tips: I take the regular Sinemet pill as a 'back-up' to my extended release Sinemet when I go to the gym, paint or do something during which time I hope to lesson my tremors - it does seem to help.
Cost: < $25 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Jul 6, 2010 (Started Jun 21, 2010)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Mild (Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Usually
  • Burden
    A little hard to take
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Jun 30, 2010 (Started Jun 21, 2010)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Mild (Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

Jun 29, 2010 (Started Jun 21, 2010)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Mild (Nausea and vomiting, Occasional nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Cost: $25-49 monthly
Side effects: Nausea and vomiting, Occasional nausea and vomiting

  • 0 helpful marks

Jan 12, 2017 (Started Jun 30, 2004)

  • Effectiveness
    Major (for restless legs syndrome)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I am so afraid of increasing my dose of carbidopa/levadopa that I still have not even tried it. I might be able to move better if I increased it but I fear the nausea, the dyskinesia, the near syncope. However, I have such back pain that it interferes with everythingI want to do. I can only walk for a short time before I am looking for a place to sit. That eliminates any tours, any walks in the woods. I used to enjoy walking. And I have gained a lot of weight from being sedentary.
Cost: < $25 monthly

Apr 24, 2016 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for restless legs syndrome)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: The carbidopa/levodopa works the best for me to lessen the symptoms of PD. Other Rx drugs I tried didn't work as well or they worked well for symptoms but caused syncope or near syncope and left me feeling drained. It took many months to find the right med & the right dose. I do realize that carb/levo may cause tardive dyskinesia before it's over. But right now it is the best I can do & I want to enjoy it while I can. I can do quite a bit still . I owe that to the carb/levo.
Cost: < $25 monthly

Nov 26, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for restless legs syndrome)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: My niece showed me how to set my iPhone clock to have a timer go off every day at 1pm to remind me to take my mid day dose of carb/levo & pramipexole. It works!!! It has worked. I have not missed a day since using the timer. I now am aware of "wearing off" of the meds. I never noticed it until a few months ago. At my last appt with Neurologist he increased my carb/levo to 1 1/2 TID. He said to increase gradually. I haven't increased just yet because I want to be firmly on the previous dose first which I am with this timer helping me. Soon I will try the new increase.
Cost: < $25 monthly

Jun 5, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for restless legs syndrome)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: Now I am taking a new dose-1 TID-gradually titrating up from 1/2 TID. I still miss my noon dose although not as often. It is difficult remembering. I do notice the increase in dose is helping me stand up straighter longer & within about an hour of taking my dose. It is a pain in the neck to take 3 x a day but it improves my symptoms.
Cost: < $25 monthly

Feb 11, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Effectiveness
    Major (for restless legs syndrome)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I no longer am seeing any improvement. Maybe I have just gotten used to it & no longer notice it. Maybe it is time to increase again.
Cost: < $25 monthly

Nov 10, 2014 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
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Showing 10 of 131 patient evaluations for Carbidopa-Levodopa