1 patient evaluation for Ebixa

3 members have decided to share their profiles only with other members of PatientsLikeMe.

toomanyrabbits
29465 thumb
toomanyrabbits
Sex: M
Data Quality: 0 stars
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
I am: g
I have:
ALS

See toomanyrabbits's full Ebixa history

Dec 12, 2010 (Started Nov 23, 2010)

  • Effectiveness
    Moderate (for trying to get scrip - delay progression)
  • Effectiveness
    Moderate (for slow deterioration)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: increased mental alertness, less fatigue than normal, slight decline in fvc [2%]. initial effects similar to too much caffeine but only lasts 48hrs. currently on 10mg in am, 20mg in pm with no effect on sleeping on cpap - actually, sleeping better. dietary change around the same time to increase protein intake via drink supplements and eating more. much less fatigue but still in a chair most of the time. can still just get up and walk flat and level with a stick a little way - surprised because last week i thought it was all over for walking. fascics still there but not so noticeable.
Cost: $100-199 monthly

Nov 24, 2010 (Started Nov 23, 2010)

  • Effectiveness
    Major (for trying to get scrip - delay progression)
  • Effectiveness
    Can’t tell (for slow deterioration)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: non pbs script is $103 per 28 tabs of 20mg. will take 10mg for 1 week and 20mg thereafter. local gp has offered to document condition changes for the record. will do bloods early dec 2010 as a baseline. this is the start evaluation, and will continue regularly - each week at least.
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Ebixa