130 patient evaluations for Modafinil

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Keeper of the Flame
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Keeper of the Flame
Gender: F
Data Quality: 3 stars
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: Most
Stickman: all
Description:F58y
CFS:?y
FM:8y Dx
I am: g
I have:
Fibromyalgia

See Keeper of the Flame's full Modafinil history

Jan 28, 2016 (Started Jan 07, 2014)

  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I talked to Dr. O about me still being so tired all of the time and he increased my dosage to 400 mg a day. Hopefully that will help. I don't know if my CFS has gotten worse, I have Winter Sun Deprivation, or I am building up a tolerance to the Provigil. I hope it is not the third choice. Wish me luck folks at the new dosage. Today it really didn't wake me up as I really wanted to take a nap today but I was able to resist the urge which was an improvement I guess. :)
Cost: < $25 monthly

Nov 21, 2015 (Started Jan 07, 2014)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    Mild (Loss of appetite)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: On my last visit with Dr. O I asked him to increase my Provigil so he upped me to 300mg a day. I thought that 200mg was max but he told me to break one in half. That is okay with me. They don't taste bad. I really needed my dose adjusted as I was starting to lose the benefits of the medicine. Since September I have been getting up every day but some days have been a real struggle for me. I don't want to sleep my day away. My depression has also lifted from my MIL passing away and that helps to get me out of bed. Abilify helped with that too. Depression on top of CFS really put me down for awhile. The increase to 300mg is making a difference in how I am feeling. I hope that the feelings continue at least for awhile and I don't become accustomed to this dose too soon. My appetite is still down so I can pretty much eat whatever I want to because I am down to my ideal weight. That was certainly an unexpected benefit!!!
Cost: < $25 monthly

Sep 21, 2015 (Started Jan 07, 2014)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: I try to take the Provigil every day but some days my fatigue is so terrible that I forget that I even have the Provigil even though I have been taking it for over a year and a half. I will be surprised when I realize that I have forgotten that I even have it and I have stayed a day or two in bed, unable to get up. I have thought about bringing the Provigil into my bedroom so that I never have to get out of bed to take it. I did talk to Dr. O who rx's the Provigil and asked him to think about upping my dose to 250mg a day (this is the maximum dose) as some other days I will take the Provigil and then lay back down and fall back to sleep and sleep through some of the day and this is not what the Provigil is supposed to do. It is supposed to prevent this. I still say though that Provigil has changed my life by giving me the ability to stay awake and one of the added benefits is that it has helped me to lose the last of the weight that the Lyrica put on me. I am glad to lose the last of that weight as it was so hard for me to get around. I am thankful every day for the Provigil!!!
Cost: < $25 monthly

Apr 17, 2014 (Started Jan 07, 2014)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: I take the Provigil with my morning meds and it has made a significant improvement in my daytime fatigue. I have benefited from feeling mentally alert and able to function better. I feel as if some of the weight has been lifted off of my shoulders. I did not notice a real change until after the 4th week.
Cost: < $25 monthly

  • 0 helpful marks
thjuland
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thjuland
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See thjuland's full Modafinil history

Jan 26, 2016 (Started Oct 14, 2005)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Provigil remains my fantastic life changer, since it keeps me awake all day.
Cost: < $25 monthly

Apr 28, 2015 (Started Oct 14, 2005)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Provigil continues to be a very effective treatment for fatigue, I would not be able to stay awake without it.
Cost: < $25 monthly

Jan 25, 2012 (Started Oct 14, 2005)

  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: The increased dosage helps to shorten how long I sleep, when I sometimes still fall asleep during the day. I also don't fall back to sleep, right after eating breakfast or lunch.
Cost: < $25 monthly

Jul 19, 2009 (Started Oct 14, 2005)

  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Cost: < $25 monthly

Nov 7, 2008 (Started Oct 14, 2005)

  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Provigil has enabled me to stay awake and function all day, without it I fall asleep when I am sitting down longer than 15 minutes. I am still able to nap or rest, even if I just took it and it does not make me nervous or jittery.
Cost: $200+ monthly

  • 1 helpful mark
rosee2
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rosee2
Sex: F
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: g
I have:
MS

See rosee2's full Modafinil history

Dec 2, 2015 (Started Apr 06, 2006)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Provigil gives me energy to do my daily chores i.e. fixing meals, laundry, showering. I have no side efffects! The generic modafinil is the same as Provigil and much less expensive!

  • 0 helpful marks
rose5
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rose5
Sex: F
Data Quality: 2 stars
On
Mouth/throat: moderate
Arms: moderate
Chest: severe
Legs: moderate
I am: vb
I have:
Parkinson's

See rose5's full Modafinil history

Aug 11, 2015 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I GET TIRED EVERYDAY STILL, BUT I DON'T ALWAYS NAP LIKE I USED TO.
Cost: $25-49 monthly

Aug 11, 2014 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: It is still working well, as my napping and dozing has decreased quite a bit. Thumbs Up to Provigil!!
Cost: $25-49 monthly

Jul 14, 2012 (Started Aug 31, 2010)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: DEFINITELY HELPS SO I'M NOT ALWAYS DOZING OFF.
Cost: $25-49 monthly

Dec 1, 2011 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: The insurance company stopped paying for Provogil. It took a month to get it approved.
Cost: $25-49 monthly

Nov 15, 2011 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I get very tired and could sleep all day. I was on Provigil, but then the insurance company denied refills. It took a month to get the insurance company to approve it.
Cost: $25-49 monthly

Aug 1, 2011 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I was on Provigil because e I was sleeping all the time. Then insurance company denied my prescription. It took one month to get me back on it.
Cost: $25-49 monthly

Aug 1, 2010 (Started Aug 31, 2010)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Without this medication, I sleep on & off all day, and I am constantly weak & tired. I don't feel like doing anything. My insurance company stopped paying for it for 1 month while I appealed their decision. I won the appeal and I thank God I was able to take it again.
Cost: $25-49 monthly

  • 0 helpful marks
mbgm14
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mbgm14
Sex: F
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See mbgm14's full Modafinil history

Jun 26, 2015 (Started Jan 10, 2009)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Effectiveness
    Moderate (for Fatigue)
  • Effectiveness
    Major (for Brain fog)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Stick to it. Take before noon. It could otherwise keep you awake at night.
Cost: < $25 monthly

Mar 19, 2009 (Started Jan 10, 2009)

  • Effectiveness
    Can’t tell (for Brain fog)
  • Effectiveness
    None (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
marier
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marier
Data Quality: 1 star
  • Gender: F
  • Age: 24
Condition: Narcolepsy 1 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I have:
Narcolepsy

See marier's full Modafinil history

Feb 28, 2015 (Started Apr 15, 2012)

  • Effectiveness
    Moderate (for Narcolepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg Daily

Oct 7, 2012 (Started Apr 15, 2012)

  • Effectiveness
    Major (for Narcolepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily

  • 0 helpful marks
Tulabee
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Tulabee
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See Tulabee's full Modafinil history

Feb 1, 2015 (Started Sep 01, 2009)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    Mild (Insomnia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: I take 300mg/day.
Cost: < $25 monthly

Nov 8, 2014 (Started Sep 01, 2009)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    Mild (Insomnia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Started on Nov 1. 2014 this season. 300mg modafinil. Yes, I n case I start to doubt if the drug is helpful--it is. Caffeine does not help me feel better. More sleep does not help me feel more lively.
Cost: < $25 monthly

Feb 22, 2014 (Started Sep 01, 2009)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    Mild (Insomnia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: I have been take this seasonally. Note that the "plan" price at Express Scripts was about $1000 for 90 day supply (any dosage); my insurance price was about $100. Now, my insurance price for the same 90 day supply is $20 and I think it's because of generic/patent status.
Cost: < $25 monthly

Apr 18, 2013 (Started Sep 01, 2009)

  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    Moderate (Insomnia)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: I still take this in the fall (when the days are just starting to get short) like the end of August. I then stop in March. I have used Nuvigil or Provigil. If I decrease dose, i am sleepy during day. If i maintain does, it is very easy to stay up until 1am.
Cost: $25-49 monthly

Aug 23, 2011 (Started Sep 01, 2009)

  • Effectiveness
    Moderate (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Helps with sleepiness during the day.
Cost: $25-49 monthly

May 13, 2010 (Started Sep 01, 2009)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I liked Provigil. It counteracted the sleepiness from Cymbalta prescribed by the psychatrist, but the dosage wasn't enough for sleepiness from Mirapex prescribed by the neurologist. Medco wouldn't up my dosage.
Cost: $25-49 monthly

May 2, 2010 (Started Sep 01, 2009)

  • Effectiveness
    Major (for Excessive daytime sleepiness (somnolence))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: This works. My Rx ran out, then Medco wouldn't allow me300mg/day. then the dr. subscribes a new drug Nuvigil for250g/day. Note that Provigil will go generic soon, and the cost will decrease.
Cost: $25-49 monthly

  • 0 helpful marks
hank2555
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hank2555
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: none
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See hank2555's full Modafinil history

Sep 10, 2014 (Started Feb 28, 2013)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Great for people like me..Help you use your brain for positive effects.
Cost: $100-199 monthly

Feb 10, 2014 (Started Feb 28, 2013)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
patrickm
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patrickm
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: b
I have:
MS

See patrickm's full Modafinil history

Aug 19, 2014 (Started Nov 01, 2006)

  • Effectiveness
    Major (for Fatigue)
  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: $25-49 monthly

Oct 14, 2008 (Started Nov 01, 2006)

  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: would be jello without it
Cost: $25-49 monthly

  • 0 helpful marks
desrat
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desrat
Sex: M
Data Quality: 3 stars
Relapse: Moderate
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: mild
I am: n
I have:
MS

See desrat's full Modafinil history

Jul 1, 2014 (Started Mar 18, 2002)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Effectiveness
    Moderate (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Cigna won't cover this through CVS as of 5/2014 Dr said they appealed, have heard nothing, so I wonder about that. I have been taking this medicine for a decade, there's no reason that I see why this isn't covered even if it IS a C-IV.

Oct 8, 2010 (Started Mar 18, 2002)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Effectiveness
    Major (for Fatigue)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: It keeps me awake, which was perfect when I worked 12-hour days. I makes me pretty irascible, but if I take 20mg of fluoxetine with it, my moods are just fine. I wish this wasn't a C-IV controlled substance, it would be easier to get it refilled, but I never have been denied, there's just an extra form the doc has to fax to the pharmacy.
Cost: $25-49 monthly

  • 0 helpful marks
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