6 patient evaluations for ALS Phase 3 Study Dexpramipexole (KNS-760704)

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Jan 16, 2013 (Started Aug 24, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly

Nov 26, 2012 (Started Aug 24, 2011)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: Been rolled over to open-label for DEX. We hope to have a read-out soon (Dec/Jan) on results. I either have a really slow onset or this drug is really working... maybe both. While I've lost much strength in my right hand, all else is good for the last 2 years. My only negative was an early spike in Liver enzimines...
Cost: < $25 monthly

  • 0 helpful marks

Oct 11, 2012 (Started Jun 16, 2011)

  • Effectiveness
    Can’t tell (for Participate in clinical trial)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Advice & Tips: This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.

  • 0 helpful marks

Oct 10, 2012 (Started Sep 10, 2011)

  • Effectiveness
    Can’t tell (for Participate in clinical trial)
  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 Daily

  • 0 helpful marks

Mar 26, 2012 (Started Jul 05, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly

Jul 20, 2011 (Started Jul 05, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly

  • 5 helpful marks

Jan 31, 2012 (Started Sep 09, 2011)

  • Effectiveness
    None (for Participate in clinical trial)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Cost: $100-199 monthly

  • 1 helpful mark

Sep 7, 2011 (Started Jun 14, 2011)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (Sleep problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 Daily
Advice & Tips: Struggling to believe this is doing anything for me in terms of slowing progression, if anything its as though its sped up! maybe i'm on the dummy drug.
Cost: < $25 monthly
Side effects: Sleep problems

Aug 23, 2011 (Started Jun 14, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (Sleep problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 Daily
Cost: < $25 monthly
Side effects: Sleep problems

Aug 9, 2011 (Started Jun 14, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (Sleep problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 Daily
Advice & Tips: This may be a result of Dex or may not but since the i started 2 months ago my breath test improved from 86 to 93! either way it gave me a lift.
Cost: < $25 monthly
Side effects: Sleep problems

Jun 14, 2011 (Started Jun 14, 2011)

  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 Daily
Advice & Tips: The only side effects i have noticed is a change in my sleeping and slightly more indegestion
Cost: < $25 monthly
Side effects: Sleep problems

  • 4 helpful marks
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Showing 6 of 6 patient evaluations for ALS Phase 3 Study Dexpramipexole (KNS-760704)