27 patient evaluations for CPAP Continuous Positive Airway Pressure

183 members have decided to share their profiles only with other members of PatientsLikeMe.

ChloeMS
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ChloeMS
Data Quality: 3 stars
Pain: Little
Fatigue: Most
Sleep: None
Stiffness: Little
function: None
external_stress: Some
Stickman: little
Description:61y
CFS:18y Dx
FM:18y Dx
I am: b
I have:
ME/CFS

See ChloeMS's full CPAP Continuous Positive Airway Pressure history

Jun 29, 2016 (Started Nov 05, 2013)

  • Effectiveness
    Moderate (for Sleep Apnea Disorder)
  • side effects
    Moderate (Panic attacks)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 8 hr Daily
Advice & Tips: Looking for a replacement to current device (Phillips Respironics System 60) because: 1) I love in area with big humidity shifts between time I go to bed and get up and having to set humidifier for periods when natural humidity levels are low result in water pooling in house and mask when humidity levels rise. 2) Power dropouts especially with heavy rain or snow. This causes a affect which severely disrupts my sleep period and makes using it worthless. 3) Water reservoir for the humidifier can not hold enough water to lay more than 8 hours when set for high humidity in the fall /winter /spring. This results in breathing a heated plastic smell for a few hours until I wake. Found a portable unit that resolves ALL of the problems but it is newly FDA approved and not yet available with my insurance.

Sep 7, 2014 (Started Nov 05, 2013)

  • Effectiveness
    Moderate (for Sleep Apnea Disorder)
  • side effects
    Severe (Panic attacks)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 hr Daily
Advice & Tips: I am now using a wisp nasal mask. Prior to the mask change, I started having severe dry mouth/throat and I still have it with the new mask. I let a Ricola dissolve in my mouth during the night but sometimes I wake mid-sleep to add another because the dryness keeps waking me. I dropped effectiveness to moderate because I have been increasingly waking feeling worse that I did before going to sleep.

Nov 9, 2013 (Started Nov 05, 2013)

  • Effectiveness
    Moderate (for Sleep Apnea Disorder)
  • side effects
    Mild (Panic attacks)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 8 hr Daily
Advice & Tips: Only using for a few days. Full, light weight, face mask. Still have problem with expiration pressure and heat in mask upon expiration. Inspiration pressure is OK. Have to get used to it. Need a Bluetooth module to use SleepMapper iPad/iPhone app which I hope to get next week.

  • 0 helpful marks
woofhound
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woofhound
Gender: M
Data Quality: 3 stars
Pain: Some
Fatigue: Most
Sleep: Most
Stiffness: Most
function: Some
external_stress: Little
Stickman: most
Description:M58y
CFS:10y Dx
FM:16y Dx
I am: n
I have:
Fibromyalgia

See woofhound's full CPAP Continuous Positive Airway Pressure history

Apr 24, 2016 (Started Aug 15, 2015)

  • Effectiveness
    Major (for Sleep Apnea Disorder)
  • side effects
    Mild (Dry eyes, Dry sinus, Dry mouth)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 8 hr Daily
Advice & Tips: Many people have trouble with adherence to using their CPAP because of the negative feelings and appearances when it's in use. I got over that so quickly because I realized (through a fitness band) that as soon as I began using my CPAP I got dramatically more REM sleep. This, in turn, helped me tremendously with my cognitive problems. My family and friends quickly saw that I was having fewer memory problems and was mentally sharper. I will ALWAYS use my CPAP

  • 1 helpful mark
angel414
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angel414
Sex: F
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: vb
I have:
MS

See angel414's full CPAP Continuous Positive Airway Pressure history

Aug 2, 2015 (Started Jul 01, 2013)

  • Effectiveness
    Major (for Sleep Apnea Disorder)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 6 hr Daily
Advice & Tips: I have been sleeping better and don't wake up gasping for air. Through is not cryed out when I wake.
Cost: < $25 monthly

  • 0 helpful marks
Santa 1
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Santa 1
Data Quality: 1 star
  • Sex: M
  • Age: 61y
  • Organ: Kidney
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Kidney : 16y Transplanted
I have:
Kidney Transplant

See Santa 1's full CPAP Continuous Positive Airway Pressure history

Jul 22, 2015 (Started Mar 28, 1990)

  • Effectiveness
    Major (for Sleep Apnea Disorder)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 7 hr Daily

  • 0 helpful marks
God's Worshipper
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God's Worshipper
Gender: M
Data Quality: 3 stars
Depression: 1
Mania: 0
Emotional: 0
Anxiety: 1
Compulsion: 1
External Stress: Moderate
59 M
Function: High
Distress: Low
I am: n
I have:
Schizoaffective Disorder

See God's Worshipper's full CPAP Continuous Positive Airway Pressure history

Feb 24, 2015 (Started Jul 01, 1995)

  • Effectiveness
    Major (for Obstructive Sleep Apnea)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 8 hr Daily
Cost: < $25 monthly

  • 0 helpful marks
SoreMomma
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SoreMomma
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: Most
Stickman: all
Description:F38y
FM:6y Dx
I am: vb
I have:
Fibromyalgia

See SoreMomma's full CPAP Continuous Positive Airway Pressure history

Mar 15, 2014 (Started Aug 15, 2013)

  • Effectiveness
    Major (for Sleep Apnea Disorder)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 hr Daily

  • 0 helpful marks
Geordie Boy
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Geordie Boy
Data Quality: 1 star
  • Gender: M
  • Age: 52
Condition: Obstructive Sleep Apnea 9 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Obstructive Sleep Apnea

See Geordie Boy's full CPAP Continuous Positive Airway Pressure history

Mar 20, 2013 (Started Sep 29, 2012)

  • Effectiveness
    Moderate (for Obstructive Sleep Apnea)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 10 hr Daily
Advice & Tips: Looks for ideas about dry mouth

  • 0 helpful marks
melmaky
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melmaky
Gender: F
Data Quality: 1 star
Pain: Some
Fatigue: Most
Sleep: Some
Stiffness: All
function: None
external_stress: Some
Stickman: most
Description:F43y
FM:5y Dx
CFS:27y Dx
I am: g
I have:
Fibromyalgia

See melmaky's full CPAP Continuous Positive Airway Pressure history

Sep 15, 2012 (Started Aug 15, 2011)

  • Effectiveness
    Slight (for Sleep Apnea Disorder)
  • side effects
    Moderate (Blisters)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 8 hr Weekly

  • 0 helpful marks
addicted2harleys
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addicted2harleys
Data Quality: 1 star
  • Gender: F
  • Age: 48
Condition: Hereditary Spastic Paraplegia 7 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: vb
I have:
Hereditary Spastic Paraplegia

See addicted2harleys's full CPAP Continuous Positive Airway Pressure history

Aug 10, 2012 (Started Feb 01, 2012)

  • Effectiveness
    None (for Central sleep apnea)
  • Effectiveness
    None (for Obstructive Sleep Apnea)
  • side effects
    Severe (Head pressure, Pressure sore(s) (decubitus ulcers), Dry nose)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 7 hr Daily
Advice & Tips: Make sure you are getting your machine and supplies from a reputable company. Use word of mouth or even use a DME that you are already familiar and comfortable with that you trust. I had to switch to BiPAP and when I did, I also switched my DME to the one who manages my mobility aids...I didn't know I could request them when I got the CPAP. Major, major difference! If I would only known...my nightmare CPAP experience would never have happened. All due to wrong size masks and tightening them down too much (because they were the wrong size).

  • 0 helpful marks
klmichael
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klmichael
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See klmichael's full CPAP Continuous Positive Airway Pressure history

Jul 9, 2012 (Started Oct 19, 2010)

  • Effectiveness
    None (for Sleep Apnea Disorder)
  • side effects
    Severe (Woke from sleep coughing choking and short of breath, Dry mouth at night)
  • Adherence
    Sometimes
  • Burden
    Very hard to take

Mar 27, 2012 (Started Oct 19, 2010)

  • Effectiveness
    Moderate (for Sleep Apnea Disorder)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Cost: $50-99 monthly

Feb 24, 2012 (Started Oct 19, 2010)

  • Effectiveness
    Moderate (for Sleep Apnea Disorder)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 5 hr Daily

  • 0 helpful marks
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