111 patient evaluations for Riluzole

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Aug 30, 2016 (Started Oct 18, 2001)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

Aug 13, 2011 (Started Oct 18, 2001)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

Nov 17, 2010 (Started Oct 18, 2001)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks

Aug 21, 2016 (Started Jun 30, 2004)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (muscle fatigue)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take

  • 0 helpful marks

May 5, 2016 (Started May 15, 2004)

  • Effectiveness
    Can't tell (for primary lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Apr 9, 2009 (Started May 15, 2004)

  • Effectiveness
    Can't tell (for primary lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: We should all ask them for better drug. Sins they are alone, nothing new is coming from them.
Cost: < $25 monthly

  • 0 helpful marks

Feb 15, 2016 (Started Jan 14, 2016)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (sexual impotence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Advice & Tips: I started taking this medication at the same time as nuedextaI. i don't know which one caused my inability to ejaculate but I wasn't willing to take the medication as long as I had to have this side effect. I was not willing to forgo my sex life, which I still enjoy, to "possibly give me 3 -6 months"
Cost: < $25 monthly

  • 0 helpful marks

Feb 15, 2016 (Started Oct 10, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (dry skin)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Oct 12, 2015 (Started May 09, 1995)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily

  • 0 helpful marks

Oct 10, 2015 (Started Jul 15, 2013)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Nov 1, 2013 (Started Jul 15, 2013)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Mar 7, 2014 (Started Mar 07, 2014)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Aug 18, 2013 (Started Aug 10, 2011)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

Mar 29, 2013 (Started May 15, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 2 tablet(s) Daily
Advice & Tips: Ideally you're meant to take: - twice daily, exactly 12 hrs apart - after a 2 hr fast, and followed by a 1 hr fast. After lots of experimentation, I take at 6am & 6pm. Morning is easy, evening is harder to ensure both that I fast properly & that I remember to take. I set a reminder to eat at around 3:45pm, so that I can eat something before my fast from 4pm to 7pm.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 111 patient evaluations for Riluzole