36 patient evaluations for Fingolimod

TickledPink
1468-thumb
TickledPink
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: vg
I have:
MS

See TickledPink's full Fingolimod history

Jun 18, 2013 (Started Sep 21, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly
Side effects: Upper respiratory infection, UTI symptoms

Oct 20, 2010 (Started Sep 21, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I had great improvement in all my MS symptoms, there were very few side effects. I was in the clinical trial for 3 years and continue for 1 more year in the extension phase. This drug has given me back my life. Minimal side effects, no hassle to take, have not yet had a relapse in over 3 years and was relapsing every 3 months prior to joining the trial.
Cost: < $25 monthly
Side effects: Upper respiratory infection, UTI symptoms

  • 33 helpful marks
JesswithMS
995-thumb
JesswithMS
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See JesswithMS's full Fingolimod history

Jun 18, 2013 (Started Sep 30, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: Reduced my relapses by more than 70%; which in turn, helped me regain strength and mobility.
Cost: $200+ monthly

Oct 14, 2010 (Started Sep 30, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $200+ monthly

  • 9 helpful marks
Lisam808
8178-thumb
Lisam808
Sex: F
Data Quality: 2 stars
Relapse: Mild
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See Lisam808's full Fingolimod history

Apr 11, 2011 (Started Jan 31, 2011)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Began to give me CHF- started with swelling of face and limbs. abnormal ekg. stopped started back on Ty
Cost: < $25 monthly
Side effects: Abnormal EKG (electrocardiogram), Swelling in legs, feet and ankles

Apr 8, 2011 (Started Jan 31, 2011)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Cost: < $25 monthly
Side effects: Abnormal EKG (electrocardiogram), Swelling in legs, feet and ankles

Jun 4, 2010 (Started Jan 31, 2011)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Cost: < $25 monthly
Side effects: Abnormal EKG (electrocardiogram), Swelling in legs, feet and ankles

  • 4 helpful marks
azcharli
18196-thumb
azcharli
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See azcharli's full Fingolimod history

Dec 19, 2011 (Started Dec 19, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 0.5 mg Daily
Advice & Tips: After that first dose I was shuffled off to the ER with a low heart rate. After 5 trips to the ER with blood red eyes and severe pain They finally diagnosed me with optic neuritis... DUH!! Yes they do blame Gilenya and yes my eyes are damaged. The Doctor told me that the drug is out of my system but it damaged some of my eye nerves. He also told me that it's not permanent and my nerves will repair themselves. IN TIME!! Bullshit. I am now a new statistic.
Cost: $50-99 monthly

  • 3 helpful marks
hjkl;'
Portrait_default_thumb
hjkl;'
Sex: F
Data Quality: 0 stars
Sensation: Unreported
Overall: Unreported
Cognition: unreported
Vision: unreported
Speech: unreported
Swallowing: unreported
Upper limb: unreported
Walking: unreported
I have:
MS

See hjkl;''s full Fingolimod history

Jul 15, 2012 (Started Apr 15, 2012)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I took Gilenya for 16 weeks and took 4 rounds of antibiotics for 3 different problems with infections which started immediately upon starting Gilenya. Also had a flare up which required hospital stay with IV steroids. Gilenya & I did not play nicely with each other, but it may work wonders for you. I myself am going back to Tysabri.
Cost: < $25 monthly

  • 2 helpful marks
jmartell
28936-thumb
jmartell
Sex: F
Data Quality: 3 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: none
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See jmartell's full Fingolimod history

Aug 17, 2013 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Dec 22, 2011 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 24, 2011 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

  • 2 helpful marks
Tigertroll
24432-thumb
Tigertroll
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: none
Vision: none
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See Tigertroll's full Fingolimod history

Jul 10, 2012 (Started Oct 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I've had just one flare-up that lasted more than a week (felt like spiders crawling on me) in over a year on Gilenya. This is a HUGE improvement for me! Historically, I have had a new episode every 8-12 weeks, and was on a steroid regimen to calm it down at least twice a year.

  • 2 helpful marks
JustaSmallTownGirl
31159-thumb
JustaSmallTownGirl
Sex: F
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See JustaSmallTownGirl's full Fingolimod history

Feb 1, 2011 (Started Nov 15, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $100-199 monthly

  • 2 helpful marks
Mikhali
29088-thumb
Mikhali
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Mikhali's full Fingolimod history

Aug 14, 2012 (Started Aug 02, 2012)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 intl units Daily
Advice & Tips: Only seemed to make my relapse worse. Probably bad timing.
Cost: < $25 monthly

  • 1 helpful mark
Rick N
29865-thumb
Rick N
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See Rick N's full Fingolimod history

Mar 7, 2014 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Perceived effectiveness for to slow down progression: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: of course a pill is better than giving myself a shot, but that is not the full evaluation point that I would make. Gelenya messed up my thinking processes and threw me into the throe's of depression and anxiety issues. I would noo longer advise this treatment to anyone.
Cost: $25-49 monthly

Apr 7, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for to slow down progression: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost: $25-49 monthly

Feb 6, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I like this treatment as opposed to daily shots.
Cost: $25-49 monthly

Jan 17, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $25-49 monthly

  • 1 helpful mark
Last updated:
Showing 10 of 36 patient evaluations for Fingolimod