24 patient evaluations for Gilenya with a adherence rating of Always

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Cfox1957
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Cfox1957
Sex: F
Data Quality: 3 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: vg
I have:
MS

See Cfox1957's full Gilenya history

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks
andreag
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andreag
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: severe
I am: g
I have:
MS

See andreag's full Gilenya history

Jan 15, 2016 (Started Jun 23, 2012)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Severe (Low white blood cell count (leukopenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Was a pill rather than shot.
Cost: $100-199 monthly

Dec 15, 2015 (Started Jun 23, 2012)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Severe (Low white blood cell count (leukopenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: Taking a pill was nice.
Cost: $100-199 monthly

  • 0 helpful marks
helchr@hmnet.dk
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helchr@hmnet.dk
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I have:
MS

See helchr@hmnet.dk's full Gilenya history

Aug 18, 2015 (Started Oct 08, 2012)

  • Effectiveness
    Moderate (for Relapse MS (exacerbation))
  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Advice & Tips: Still happy using gilenya
Cost: < $25 monthly

Jun 22, 2013 (Started Oct 08, 2012)

  • Effectiveness
    Can’t tell (for Relapse MS (exacerbation))
  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Advice & Tips: I have been very happy taking the Gilenya, having absolute no negative side effects.
Cost: < $25 monthly

  • 0 helpful marks
aubri328
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aubri328
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: vg
I have:
MS

See aubri328's full Gilenya history

Nov 17, 2014 (Started Feb 15, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: My WBC count dropped very low, dangerously low. I am hoping that will be able to return to taking this medication once it returns. The biggest thing is to MAKE SURE you keep your Dr appointments and DO YOUR BLOOD WORK!
Cost: $50-99 monthly

Aug 18, 2013 (Started Feb 15, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Taking this with the rest of your medications is key. The biggest difficultly may be how you receive your medication. If you normally go to the pharmacy and pick up your prescriptions most insurance carries require this drug to be handled through "specialty" pharmacies and delivered by mail ordering can be automatic as long as you set it up and they allow it. The company has programs to help save on costs.
Cost: $25-49 monthly

  • 0 helpful marks
crisd39
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crisd39
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See crisd39's full Gilenya history

Aug 2, 2014 (Started Feb 15, 2012)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

Jun 22, 2013 (Started Feb 15, 2012)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

  • 0 helpful marks
Jimmie
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Jimmie
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See Jimmie's full Gilenya history

Jul 9, 2014 (Started Jan 07, 2014)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
JoeC
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JoeC
Sex: M
Data Quality: 2 stars
Relapse: Mild
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See JoeC's full Gilenya history

May 23, 2014 (Started Jul 01, 2014)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Go for it! I'm so happy I went through the 5 months of test. I have not felt this good in years. I'm not 100% back to normal but I do feel so much better. Little on no foot drag. Almost no brain fog. Almost no hand tremble! Played my guitar again. I know I have a long way to go but playing made me feel really happy.
Cost: < $25 monthly

  • 1 helpful mark
Laura72
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Laura72
Sex: F
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See Laura72's full Gilenya history

Oct 29, 2013 (Started Oct 17, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Severe (Migraine, Weight gain, Pain in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 tablet(s) Daily
Cost: < $25 monthly

Oct 28, 2013 (Started Oct 17, 2013)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    Moderate (Migraine, Weight gain, Pain in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 tablet(s) Daily

  • 0 helpful marks
IlliniMS
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IlliniMS
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: b
I have:
MS

See IlliniMS's full Gilenya history

Jul 16, 2013 (Started Jan 09, 2013)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    Mild (Back pain, Weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 cap(s) Daily
Advice & Tips: I have had no improvement with Gilenya and one new lesion was identified on my July 2013 MRI. I am continuing Gilenya for 6 more months and will be reevaluated by my MS Neuro at that time. So far, I cannot decide if the negatives outweigh the positive of an oral medication, as it has been only 6 months of us.

Mar 4, 2013 (Started Jan 09, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Severe (Back pain, Weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 cap(s) Daily
Advice & Tips: At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.

  • 0 helpful marks
lisaslair
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lisaslair
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See lisaslair's full Gilenya history

Jun 19, 2013 (Started Jan 22, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Mild (Sex drive (libido) decreased, Stiffness in morning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: 3 months after starting my husband got rid of my wheelchair- my panic attacks all but went away- began to enjoy things around the house more

  • 0 helpful marks
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