25 patient evaluations for Gilenya with a adherence rating of Always

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Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks

Jan 15, 2016 (Started Jun 23, 2012)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Severe (low white blood cell count (leukopenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Was a pill rather than shot.
Cost: $100-199 monthly

Dec 15, 2015 (Started Jun 23, 2012)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Severe (low white blood cell count (leukopenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: Taking a pill was nice.
Cost: $100-199 monthly

  • 0 helpful marks

Aug 18, 2015 (Started Oct 08, 2012)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Advice & Tips: Still happy using gilenya
Cost: < $25 monthly

Jun 22, 2013 (Started Oct 08, 2012)

  • Effectiveness
    Can’t tell (for relapse MS (exacerbation))
  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Advice & Tips: I have been very happy taking the Gilenya, having absolute no negative side effects.
Cost: < $25 monthly

  • 0 helpful marks

Nov 17, 2014 (Started Feb 15, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: My WBC count dropped very low, dangerously low. I am hoping that will be able to return to taking this medication once it returns. The biggest thing is to MAKE SURE you keep your Dr appointments and DO YOUR BLOOD WORK!
Cost: $50-99 monthly

Aug 18, 2013 (Started Feb 15, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Taking this with the rest of your medications is key. The biggest difficultly may be how you receive your medication. If you normally go to the pharmacy and pick up your prescriptions most insurance carries require this drug to be handled through "specialty" pharmacies and delivered by mail ordering can be automatic as long as you set it up and they allow it. The company has programs to help save on costs.
Cost: $25-49 monthly

  • 0 helpful marks

Aug 2, 2014 (Started Feb 15, 2012)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

Jun 22, 2013 (Started Feb 15, 2012)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

  • 0 helpful marks

Jul 9, 2014 (Started Jan 07, 2014)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 1 helpful mark

May 23, 2014 (Started Jul 01, 2014)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Go for it! I'm so happy I went through the 5 months of test. I have not felt this good in years. I'm not 100% back to normal but I do feel so much better. Little on no foot drag. Almost no brain fog. Almost no hand tremble! Played my guitar again. I know I have a long way to go but playing made me feel really happy.
Cost: < $25 monthly

  • 1 helpful mark

Oct 29, 2013 (Started Oct 17, 2013)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Severe (migraine, weight gain, pain in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 tablet(s) Daily
Cost: < $25 monthly

Oct 28, 2013 (Started Oct 17, 2013)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Moderate (migraine, weight gain, pain in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 tablet(s) Daily

  • 0 helpful marks

Jul 16, 2013 (Started Jan 09, 2013)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Mild (back pain, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 cap(s) Daily
Advice & Tips: I have had no improvement with Gilenya and one new lesion was identified on my July 2013 MRI. I am continuing Gilenya for 6 more months and will be reevaluated by my MS Neuro at that time. So far, I cannot decide if the negatives outweigh the positive of an oral medication, as it has been only 6 months of us.

Mar 4, 2013 (Started Jan 09, 2013)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Severe (back pain, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 cap(s) Daily
Advice & Tips: At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.

  • 0 helpful marks
Last updated:
Showing 10 of 25 patient evaluations for Gilenya