108 patient evaluations for Topiramate

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gingin73
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gingin73
Data Quality: 1 star
  • Gender: F
  • Age: 42
Condition: Chronic Pain Syndrome 20 additional condition(s)
Quality of life:
  • Mental: Severe
  • Physical: Moderate
I am: b
I have:
Chronic Pain Syndrome

See gingin73's full Topiramate history

Jan 1, 2007 (Started May 31, 2006)

  • Effectiveness
    None (for Migraine headaches)
  • side effects
    Severe (Seizures, Loss of appetite, Lack of motivation, loss of weight, Metallic taste in mouth, Weight loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: NEVER take
Cost: $100-199 monthly

  • 0 helpful marks
pheonix61
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pheonix61
Data Quality: 1 star
  • Gender: M
  • Age: 64
Condition: COPD 43 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
COPD

See pheonix61's full Topiramate history

Jul 7, 2000 (Started May 28, 2000)

  • Effectiveness
    Slight (for BOTH EPILEPY AND PHYSCOSIS)
  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    Severe (ACUTE PHYSCOSIS WICH HAD TO BE TREATED WITH PROMAZINE 50 MG ORAL OR IM, Psychotic symptoms (anxiety depression fear))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily
Advice & Tips: The impact this drug had on my social and my whole life were unpleasant, it was given me both to treat my epilepsy and physocis I was going through at the time. The only alternative was Carbamazipine which was ruled out due to severe liver damage. I was on a mental health unit at this time and was treated with it whilst in hospital
Cost: < $25 monthly

  • 0 helpful marks
artmis02
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artmis02
Data Quality: 0 stars
  • Gender: F
  • Age: 25y
  • Duration: 15 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Mild
? seizures
I have:
Epilepsy

See artmis02's full Topiramate history

Mar 14, 2012 (Started Jun 15, 2009)

  • Effectiveness
    Can’t tell (for Seizures from flashing lights (photosensitive epilepsy))
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 150 mg Daily

  • 0 helpful marks
MargotGlass
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MargotGlass
Data Quality: 1 star
  • Gender: F
  • Age: 32
Condition: Systemic Lupus Erythematosus 2 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: g
I have:
Systemic Lupus Erythematosus

See MargotGlass's full Topiramate history

Sep 1, 2011 (Started Jan 01, 2009)

  • Effectiveness
    Slight (for Migraine headaches)
  • side effects
    Severe (Memory Loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I urge all people who are taking, or are thinking of taking, this drug to stop immediately. I am a 28 year-old woman who was prescribed this drug for migraines before the lupus, MS, and hypothyroidism was diagnosed. The side effects of Topiramate are SO severe - I have lost significant portions of my memory, and even though I stopped the drug six months ago, the memories are not coming back. I not only cannot remember graduate coursework, but I have forgotten sentimental moments with my loved one, forgotten people who I used to know, and still have cognitive difficulties. PLEASE do not take this drug. It really didn't help with my migraines either, but I stayed on the drug because I was afraid of weight gain, and was just used to the status quo of taking it everyday (and none of my doctors ever told me to stop). I know the drug is also prescribed for epilepsy and to assist people to quit smoking, but I urge you to evaluate why you need it. If you are taking it for migraines or to quit smoking, don't take it... I think the chance of getting lung cancer is better than living as an amnesiac.

  • 0 helpful marks
sherriemorgan
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sherriemorgan
Data Quality: 2 stars
  • Gender: F
  • Age: 33y
  • Duration: 4 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: Mild
5 seizures
44 weeks ago
I am: n
I have:
Epilepsy

See sherriemorgan's full Topiramate history

May 25, 2012 (Started Mar 12, 2012)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Stormborn
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Stormborn
Data Quality: 1 star
  • Gender: M
  • Age: 35y
  • Duration: 34 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
211 weeks ago
I am: vb
I have:
Epilepsy

See Stormborn's full Topiramate history

Mar 15, 2008 (Started Sep 15, 2007)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Severe (Memory problems, Numbness and tingling with pins and needles, Anorexia (appetite loss), Cognitive confusion)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 200 mg Daily
Advice & Tips: I essentially lost 6 months of my life. I only have a few impressions, almost a memory of a horrible nightmare. According to my wife, I don't want to remember it.

  • 0 helpful marks
tigger13039
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tigger13039
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See tigger13039's full Topiramate history

May 1, 2012 (Started Jul 14, 2010)

  • Effectiveness
    Slight (for Migraine headaches)
  • Effectiveness
    None (for Multiple Sclerosis)
  • side effects
    Mild (Mean feelings)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Bombsyki
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Bombsyki
Gender: F
Data Quality: 1 star
Depression: 1
Mania: 0
Emotional: 1
Anxiety: 1
Compulsion: 1
External Stress: Moderate
30 F
Function: High
Distress: Low
I am: n
I have:
Major Depressive Disorder

See Bombsyki's full Topiramate history

Aug 19, 2012 (Started Feb 13, 2003)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Reduced Sweating, Alternating constipation and diarrhea, Extremities Tingling, Constipation, Weight loss, Difficulty speaking (dysarthria), Decreased sweating (hypohidrosis))
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 500 mg Daily
Cost: < $25 monthly

Apr 27, 2012 (Started Feb 13, 2003)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Reduced Sweating, Alternating constipation and diarrhea, Extremities Tingling, Constipation, Weight loss, Difficulty speaking (dysarthria), Decreased sweating (hypohidrosis))
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 500 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Colleen623
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Colleen623
Data Quality: 1 star
  • Gender: F
  • Age: 53
Condition: Migraine 8 additional condition(s)
Quality of life:
  • Mental: Moderate
  • Physical: Mild
I am: n
I have:
Migraine

See Colleen623's full Topiramate history

Apr 5, 2011 (Started May 31, 2009)

  • Effectiveness
    None (for Migraine headaches)
  • side effects
    Severe (Brain cloud)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
proskairos
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proskairos
Gender: F
Data Quality: 0 stars
Pain: Some
Fatigue: All
Sleep: All
Stiffness: Most
function: Little
external_stress: Most
Stickman: most
Description:F47y
FM:8y Dx
I am: n
I have:
Fibromyalgia

See proskairos's full Topiramate history

Aug 7, 2012 (Started Feb 19, 2010)

  • Effectiveness
    Major (for Headaches)
  • side effects
    Severe (Blurry vision, Pain behind eye, Recurring Urinary Tract Infection UTI, Kidney Pain)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
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Showing 10 of 108 patient evaluations for Topiramate