109 patient evaluations for Topiramate

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catchmeifyacan
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catchmeifyacan
Gender: F
Data Quality: 0 stars
Pain: Some
Fatigue: All
Sleep: All
Stiffness: Most
function: Some
external_stress: Most
Stickman: most
Description:F49y
FM:9y Dx
I have:
Fibromyalgia

See catchmeifyacan's full Topiramate history

Apr 8, 2009 (Started Mar 04, 2009)

  • Effectiveness
    None (for Fibromyalgia)
  • Effectiveness
    None (for Nerve pain (neuralgia))
  • Effectiveness
    Slight (for Migraine headaches)
  • side effects
    Moderate (Sleepiness, Hands tingling, Feet tingling, Brain fog, Tremor in hands, Nausea)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 75 mg Daily
Advice & Tips: I will ask to quit this because for me it hasn't prevented the migraines enough....ended up at doctor's office yesterday for a shot for one.....and the side effects lost me a month of activity.
Cost: $25-49 monthly
Side effects: Feet tingling, Hands tingling, Tremor in hands, Nausea, Brain fog, Sleepiness

  • 4 helpful marks
dsseak
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dsseak
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Little
Stiffness: All
function: Little
external_stress: Some
Stickman: most
Description:F48y
CFS:8y Dx
FM:8y Dx
I am: b
I have:
Fibromyalgia

See dsseak's full Topiramate history

Mar 1, 2010 (Started Jul 30, 2009)

  • Effectiveness
    None (for Fibromyalgia)
  • side effects
    Severe
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Made me very tired and gave me diarrhea.
Cost: < $25 monthly

  • 2 helpful marks
NewportNews
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NewportNews
Data Quality: 0 stars
  • Gender: F
  • Age: 52y
  • Duration: 30 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
341 weeks ago
I have:
Epilepsy

See NewportNews's full Topiramate history

Oct 27, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Severe (Unexplained itching, Hearing problems, Blurry vision, Weight loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Hearing loss is becoming more obvious, vision problems are rapidly becoming a problem also. itching of my larger skin areas is an unusual and new problem that could maybe be due to Topamax or the antidepressant Prozac, unsure about this. I have had terrible crying jags and depression over inappropriate issues in the last year or so that was assumed to be due to my aging process, but was recently debunked by a hormonal test. I therefore believe that the Topamax is a more likely suspect.
Cost: < $25 monthly
Side effects: Weight loss, Blurry vision, Hearing problems, Unexplained itching, Unexplained itching

Feb 15, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Hearing problems, Blurry vision, Weight loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: The side effects of Topamax are really tough, but not as tough as others, and certainly not as tough as beating the heck out of yourself and frying your brain during a seizure. I never miss a dose, if I do, I could really end up hurting myself. I take it as exactly to the minute as I can, I do the same with all my meds, and for the last several years since I have been doing this, my seizures have been much less invasive into my life. I also NEVER NEVER take generic epilepsy medication. It must be brand always! Generic is NOT the same, no matter who insists that it is. I can take generic on other medication, but generic Topamax allowed me to have 3 months of severe cluster seizures last year.
Cost: < $25 monthly
Side effects: Weight loss, Blurry vision, Hearing problems, Unexplained itching, Unexplained itching

  • 2 helpful marks
Rotisgirl
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Rotisgirl
Data Quality: 0 stars
  • Gender: F
  • Age: 48
Condition: 2 additional condition(s)
Quality of life:
  • Mental: Unreported
  • Physical: Unreported

See Rotisgirl's full Topiramate history

Nov 7, 2009 (Started Nov 05, 2009)

  • Effectiveness
    Major (for Fibromyalgia)
  • side effects
    Mild (Hands tingling, Feet tingling, Word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Its a good medications with not many bad side effects. It is easily tolerated. One benefit I have noticed is it makes my skin tingle which I love. It also elevates my mood. It also controls my appetite, now that doesn't happen with everyone, but it does happen with me. What I mean when "controls appetite" I don't get hungry. I forget to eat!
Cost: < $25 monthly
Side effects: Feet tingling, Hands tingling, Word fishing

  • 1 helpful mark
literature lover
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literature lover
Data Quality: 0 stars
  • Gender: F
  • Age: 46y
  • Duration: 10 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
338 weeks ago
I have:
Epilepsy

See literature lover's full Topiramate history

Feb 19, 2010 (Started Sep 20, 2006)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Moderate (Memory Loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost: < $25 monthly
Side effects: Memory Loss

  • 1 helpful mark
fsbiddle
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fsbiddle
Gender: M
Data Quality: 0 stars
Depression: 0
Mania: 0
Emotional: 0
Anxiety: 0
Compulsion: 0
External Stress: Moderate
53 M
Function: High
Distress: Low
I am: vg
I have:
Bipolar II

See fsbiddle's full Topiramate history

Feb 10, 2010 (Started Jun 29, 1998)

  • Effectiveness
    Major (for Treat my mood condition(s))
  • side effects
    Severe
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Topamax was a good new stabilizer for me for about 10 years. In the last two years the side effects were too burdensome for me to continue taking it. I looked and felt drugged on this medication. Other people reported that I had a flat effect in my face looked blank with no expression. I am now taking Zyprexa for my mood stabilizer and for sleep aid.

  • 1 helpful mark
COOPERATI
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COOPERATI
Gender: M
Data Quality: 1 star
Depression: 4
Mania: 2
Emotional: 4
Anxiety: 4
Compulsion: 4
External Stress: Overwhelming
42 M
Function: Low
Distress: High
I am: vb
I have:
Schizophrenia

See COOPERATI's full Topiramate history

Dec 4, 2010 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Moderate (for Bipolar Disorder)
  • Effectiveness
    Moderate (for Migraine headaches)
  • side effects
    Severe
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily

  • 1 helpful mark
NanaBurr
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NanaBurr
Gender: F
Data Quality: 3 stars
Pain: Little
Fatigue: None
Sleep: None
Stiffness: Little
function: All
external_stress: Some
Stickman: none
Description:F45y
FM:8y Dx
I am: vg
I have:
Fibromyalgia

See NanaBurr's full Topiramate history

May 21, 2010 (Started May 19, 2010)

  • Effectiveness
    Slight (for Fibromyalgia)
  • side effects
    Moderate (Fingers Tingling, Numbness in knee, Nightmares, Numbness in feet, Brain fog, Balance problems, Nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I did a lot of research before starting this medication, so none of the side effects came as as suprise. They are not pleasant, but I am already noting a slight decrese in pain on day 3 and it is my understanding that the side effects will subiside.
Cost: $200+ monthly
Side effects: Nightmares, Fingers Tingling, Numbness in feet, Nausea, Numbness in knee, Balance problems, Brain fog

  • 1 helpful mark
pjoy17
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pjoy17
Data Quality: 0 stars
  • Gender: F
  • Age: 59y
  • Duration: 54 yrs
Quality of life:
  • Mental: None
  • Physical: None
6 seizures
323 weeks ago
I am: g
I have:
Epilepsy

See pjoy17's full Topiramate history

Jun 24, 2010 (Started Jan 19, 2010)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: I am sleeping so much better than I have ever slept in my life ! I workout better getting better muscle tone, am happier!
Cost: $200+ monthly

  • 1 helpful mark
cantsleep
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cantsleep
Gender: F
Data Quality: 1 star
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: Little
external_stress: Most
Stickman: all
Description:F52y
FM:15y Dx
CFS:15y Dx
I am: b
I have:
Fibromyalgia

See cantsleep's full Topiramate history

Mar 1, 2010 (Started Jan 05, 2010)

  • Effectiveness
    Slight (for Fibromyalgia)
  • Effectiveness
    Slight (for Depressed mood)
  • side effects
    Severe
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: it caused severe dry mouth, I now have a hard time making my own saliva. And it ruined my teeth because of the dry mouth.

  • 1 helpful mark
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