115 patient evaluations for Topiramate
971 members have decided to share their profiles only with other members of PatientsLikeMe.
Sort by:
Helpfulness
Apr 8, 2009 (Started Mar 04, 2009)
-
EffectivenessNone (for fibromyalgia)
-
EffectivenessNone (for nerve pain (neuralgia))
-
EffectivenessSlight (for migraine headaches)
-
Side effectsModerate (sleepiness, hands tingling, feet tingling, tremor in hands, nausea)
-
AdherenceUsually
-
BurdenVery hard to take
Dosage:
75 mg
Daily
Advice & Tips:
I will ask to quit this because for me it hasn't prevented the migraines enough....ended up at doctor's office yesterday for a shot for one.....and the side effects lost me a month of activity.
Cost:
$25-49 monthly
Side effects:
feet tingling, hands tingling, tremor in hands, nausea, brain fog, sleepiness
- 4 helpful marks
Mar 1, 2010 (Started Jul 30, 2009)
-
EffectivenessNone (for fibromyalgia)
-
Side effectsSevere
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
200 mg
Daily
Advice & Tips:
Made me very tired and gave me diarrhea.
Cost:
< $25 monthly
- 2 helpful marks
Oct 27, 2010 (Started Jan 01, 2004)
-
EffectivenessModerate (for epilepsy)
-
Side effectsSevere (unexplained itching, hearing problems, blurry vision, weight loss)
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Hearing loss is becoming more obvious, vision problems are rapidly becoming a problem also. itching of my larger skin areas is an unusual and new problem that could maybe be due to Topamax or the antidepressant Prozac, unsure about this. I have had terrible crying jags and depression over inappropriate issues in the last year or so that was assumed to be due to my aging process, but was recently debunked by a hormonal test. I therefore believe that the Topamax is a more likely suspect.
Cost:
< $25 monthly
Side effects:
weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching
Feb 15, 2010 (Started Jan 01, 2004)
-
EffectivenessMajor (for epilepsy)
-
Side effectsModerate (hearing problems, blurry vision, weight loss)
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
400 mg
Daily
Advice & Tips:
The side effects of Topamax are really tough, but not as tough as others, and certainly not as tough as beating the heck out of yourself and frying your brain during a seizure. I never miss a dose, if I do, I could really end up hurting myself. I take it as exactly to the minute as I can, I do the same with all my meds, and for the last several years since I have been doing this, my seizures have been much less invasive into my life. I also NEVER NEVER take generic epilepsy medication. It must be brand always! Generic is NOT the same, no matter who insists that it is. I can take generic on other medication, but generic Topamax allowed me to have 3 months of severe cluster seizures last year.
Cost:
< $25 monthly
Side effects:
weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching
- 2 helpful marks
Nov 7, 2009 (Started Nov 05, 2009)
-
EffectivenessMajor (for fibromyalgia)
-
Side effectsMild (hands tingling, feet tingling, word fishing)
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Its a good medications with not many bad side effects. It is easily tolerated. One benefit I have noticed is it makes my skin tingle which I love. It also elevates my mood. It also controls my appetite, now that doesn't happen with everyone, but it does happen with me. What I mean when "controls appetite" I don't get hungry. I forget to eat!
Cost:
< $25 monthly
Side effects:
feet tingling, hands tingling, word fishing
- 1 helpful mark
Feb 19, 2010 (Started Sep 20, 2006)
-
EffectivenessMajor (for epilepsy)
-
Side effectsModerate (memory loss)
-
AdherenceAlways
-
BurdenA little hard to take
Dosage:
50 mg
Daily
Advice & Tips:
I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost:
< $25 monthly
Side effects:
memory loss
- 1 helpful mark
Feb 10, 2010 (Started Jun 29, 1998)
-
EffectivenessMajor (for Treat my mood condition(s))
-
Side effectsSevere
-
AdherenceAlways
-
BurdenSomewhat hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Topamax was a good new stabilizer for me for about 10 years. In the last two years the side effects were too burdensome for me to continue taking it. I looked and felt drugged on this medication. Other people reported that I had a flat effect in my face looked blank with no expression. I am now taking Zyprexa for my mood stabilizer and for sleep aid.
- 1 helpful mark
May 21, 2010 (Started May 19, 2010)
-
EffectivenessSlight (for fibromyalgia)
-
Side effectsModerate (fingers tingling, numbness in knee, nightmares, numbness in feet, brain fog, balance problems, nausea)
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
50 mg
Daily
Advice & Tips:
I did a lot of research before starting this medication, so none of the side effects came as as suprise. They are not pleasant, but I am already noting a slight decrese in pain on day 3 and it is my understanding that the side effects will subiside.
Cost:
$200+ monthly
Side effects:
nightmares, fingers tingling, numbness in feet, nausea, numbness in knee, balance problems, brain fog
- 1 helpful mark
Jun 24, 2010 (Started Jan 19, 2010)
-
EffectivenessMajor (for epilepsy)
-
Side effectsNone
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
25 mg
Daily
Advice & Tips:
I am sleeping so much better than I have ever slept in my life ! I workout better getting better muscle tone, am happier!
Cost:
$200+ monthly
- 1 helpful mark
Mar 1, 2010 (Started Jan 05, 2010)
-
EffectivenessSlight (for fibromyalgia)
-
EffectivenessSlight (for depressed mood)
-
Side effectsSevere
-
AdherenceAlways
-
BurdenNot at all hard to take
Dosage:
25 mg
Daily
Advice & Tips:
it caused severe dry mouth, I now have a hard time making my own saliva. And it ruined my teeth because of the dry mouth.
- 1 helpful mark
Jun 16, 2011 (Started Jun 14, 2011)
-
EffectivenessModerate (for epilepsy)
-
Side effectsMild (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
-
AdherenceAlways
-
BurdenA little hard to take
Advice & Tips:
I stopped Topamax (generic) in January when my neuro put me on generic keppra. There has not been any improvement with that drug and I do not like the effects of it. Neuro has started me on Topamax again. 06/14/11 I began taking 1/2 caplet of topamax at bedtime along with my regular dose of 4 dilantin and 2 keppra. Gradually I will build the dose up to 2 tablets of topamax daily with 4 dilantin (as before) and stop the keppra. Wish me luck! My meds are all generic prices.
Cost:
< $25 monthly
Side effects:
suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet
Jan 10, 2011 (Started Jun 14, 2011)
-
EffectivenessModerate (for epilepsy)
-
Side effectsModerate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
-
AdherenceAlways
-
BurdenNot at all hard to take
Advice & Tips:
Manage: I took Topamax 2x daily. 1 in the morning with food and 1 in the evening with supper.
2. Benefits: It made lose weight.
3. Impact: Learning to adjust to it's side effects.
Side effects:
suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet
Jun 24, 2010 (Started Jun 14, 2011)
-
EffectivenessCan't tell (for epilepsy)
-
Side effectsModerate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
-
AdherenceAlways
-
BurdenNot at all hard to take
Advice & Tips:
1.Manage: Inform and prepare yourself for this drug. If you are experienced with taking medications you may manage well with it. If you are a weak person, you may want to try something else.
2. Benefits: Weight loss and it keeps it off. Please do not use this drug for weight loss!! It might sharpen your cognitive or judgment skills but it's only temporary. Then they may become clouded.
3. Impact: Food flavor may suddenly change. There will be times when you are sleeping that you will awake to your heart pounding in your chest...feeling of impending doom, thoughts of being sicker than you really are and ideas of suicide are side effects you may experience with this drug. Brand name or generic it is a high priced drug.
Side effects:
suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet
Jun 22, 2010 (Started Jun 14, 2011)
-
EffectivenessCan't tell (for epilepsy)
-
Side effectsModerate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
-
AdherenceAlways
-
BurdenNot at all hard to take
Advice & Tips:
Topamax helped me drop weight but that's not why I agreed to take it. I wanted to be seizure free! And the spells stopped for 6 months but then they started up again. One must be very careful when using this drug because it has many side effects. I have learned to recognize them and distinguish the difference between me and the drug but the most bothersome and hardest to cope with is the sudden rush of my heart pounding on my chest. It scares me to death. I think it's time for me to get off this drug. Please be careful if you use this drug. It's also very expensive in generic brand too.
Side effects:
suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet
- 1 helpful mark
Last updated:
Showing 10 of 115 patient evaluations for Topiramate