107 patient evaluations for Topiramate

victorialp
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victorialp
Data Quality: 0 stars
  • Sex: F
  • Age: 39y
  • Duration: 27 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
256 weeks ago
I have:
Epilepsy

See victorialp's full Topiramate history

Mar 23, 2010 (Started Feb 01, 2006)

  • Perceived effectiveness for Bipolar Disorder: Moderate
  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Very
Dosage: 200 mg Daily
Side effects: Rhinitis (nasal inflammation), Memory problems

  • 0 helpful marks
flwrpwr5150
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flwrpwr5150
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Most
Stiffness: Most
function: Little
external_stress: Most
Stickman: most
Description:F41y
FM:5y Dx
I am: b
I have:
Fibromyalgia

See flwrpwr5150's full Topiramate history

Mar 27, 2010 (Started Aug 01, 2007)

  • Perceived effectiveness for Chronic Daily Headaches and Migraines: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Very
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
blueeyedblonde
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blueeyedblonde
Data Quality: 1 star
  • Sex: F
  • Age: 55y
  • Duration: 8 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
3 seizures
256 weeks ago
I have:
Epilepsy

See blueeyedblonde's full Topiramate history

Apr 8, 2009 (Started May 01, 2005)

  • Perceived effectiveness for Migraine headaches: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Advice & Tips: The reason for taking this medication in the beginning was to prevent/treat migraine headaches...I was taking topamax. Then the dosage was was increased gradually by my neurologist until I reached the 500mg I am on today to also treat the seizures. I was admitted to the hospital for testing in November 09 and released with a prescription that it could be filled with the generic and I have had headaches, break through seizures and literally felt as though I have had "bugs" crawling in my head!! I and my epileptologist have tried to work with my insurance company to get me back on the brand name topamax but obviously they aren't budging on this one so I guess I will be taking generic and dealing with the side effects of this... anyone have any suggestions I would love to hear from you . I don't understand how they can approve me taking the brand before I went in the hosital and because the prescription was signed in the wrong blank they won't approve it now...!!

  • 0 helpful marks
OhtaharaPfffff
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OhtaharaPfffff
Data Quality: 2 stars
  • Sex: M
  • Age: 16y
  • Duration: 16 yrs
Quality of Life:
  • Mental: None
  • Physical: Severe
Surgery type: Vagus Nerve Stimulation (VNS)
100 seizures
9 weeks ago
I have:
Epilepsy

See OhtaharaPfffff's full Topiramate history

Apr 1, 2002 (Started Apr 01, 2002)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg Daily
Side effects: Acidosis

  • 0 helpful marks
suevand72
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suevand72
Data Quality: 1 star
  • Sex: F
  • Age: 42y
  • Duration: 26 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
188 weeks ago
I am: n
I have:
Epilepsy

See suevand72's full Topiramate history

Apr 22, 2010 (Started Jun 20, 2007)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg Daily
Advice & Tips: the positive side effect of this med. is that I have lost some weight from it. But that is the only good part. I waqs on another med and gained weight because of it until my body became sick even though I was on a diet. Ever since I was put on this med about 10 months after I started having seizures after being seizure free for almost 10 years. A side effect I noticed right away with this med. was tingling in hands and feet, which even 3 years later I still get that. Itjust resurfaced about 3 weeks ago, when the last time I had them was when my dr. put me on the med. & when he upped it. He has not upped it and I don't have poor circulation. It can happen when you are walking like it did me. Of course there are the normal drowsiness,etc. But I did notice this med. does mimic the same symptoms as menopause, which I might be dealing with. My dr. that put me on this med. has hard time thinking that is true & didn't want to investigate my other symptoms I was having around the time of my seizures. Instead he just upped the med. which didn't help. Made my headaches even worse. Now I have a different dr. who is running alot of tests my other dr. didn't. I also have to investigate the fact the this med can cause a decrease in white blood cells. I don't know if that is true in my case, but it might help understand why some of my hormone levels might be coming out normal when I know there is something going on or wrong. I found that out in a book about side effects to meds. This med. currently doesn't control my seizures by itself, so I do not think it is very effctive for grand mal seizures like I have. I also have a very active life and it just doesn't fit in with my life, because I would and currently have to take more med. to try and control the seizures. That's not good for myself or my family. And my Family comes first. They rely on mom for everything.

  • 0 helpful marks
THEVMAN
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THEVMAN
Sex: M
Data Quality: 0 stars
Depression: 3
Mania: 1
Emotional: 1
Anxiety: 1
Compulsion: 2
External Stress: Moderate
34 M
Function: Moderate
Distress: Moderate
I am: vb
I have:
Bipolar I

See THEVMAN's full Topiramate history

Apr 21, 2010 (Started Feb 09, 2009)

  • Perceived effectiveness for Treat my mood condition(s): Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: I think the drug works better for migraines v as a mood stablizer
Cost: < $25 monthly
Side effects: Numbness and Tingling, Burning sensation

  • 0 helpful marks
henningrl
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henningrl
Data Quality: 0 stars
  • Sex: F
  • Age: 42y
  • Duration: 15 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
5 seizures
102 weeks ago
I have:
Epilepsy

See henningrl's full Topiramate history

May 6, 2010 (Started May 05, 2008)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Advice & Tips: Talk to your doctor about the weight loss affect, appetite loss. It can be a problem. Especially if you are small to begin with.
Cost: < $25 monthly
Side effects: Weight loss

  • 0 helpful marks
DAWNSKYE702
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DAWNSKYE702
Sex: F
Data Quality: 1 star
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See DAWNSKYE702's full Topiramate history

Feb 3, 2009 (Started Sep 07, 2009)

  • Perceived effectiveness for Headaches: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat

  • 0 helpful marks
lmyers
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lmyers
Data Quality: 1 star
  • Sex: F
  • Age: 47y
  • Duration: 43 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
3 seizures
242 weeks ago
I have:
Epilepsy

See lmyers's full Topiramate history

Nov 19, 2009 (Started Jan 19, 2010)

  • Perceived effectiveness for Epilepsy: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: take as prescribed
Cost: < $25 monthly
Side effects: Word fishing, Unintentional weight loss

  • 0 helpful marks
Joli
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Joli
Data Quality: 1 star
  • Sex: F
  • Age: 32y
  • Duration: 6 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
208 weeks ago
I have:
Epilepsy

See Joli's full Topiramate history

May 24, 2010 (Started Dec 14, 2008)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: To be on this medicine is a god send for myself.... I have not had a seizure in a year.... I also changed many things in my life though. You do have to take it the way your doctor tells you too. If you party a lot you need to " tone it down" for the sake of your health. Topamax honestly has made it easier for me live my life w/o having to worry about having another seizure... Granted you have to live your life a bit more stress free.. Being that STRESS also causes seizures.... Chaos... The mind can only take so much... Eat healthy.. Excercise to the best of your ability. :0) I was on a bunch of meds that made me very dopey at one time... The docs and I narrowed it down to this one, and it's been doing the job. Yes there are a few side effects but nothing like a siezure.... I get the tingles through my hands... I tend to forget things at times... But then I'm right back on track! These are chances you take to become better.... So good luck to all! hope I was of help!
Side effects: Numbness and Tingling, Slurred speech, Burning sensation

  • 0 helpful marks
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