34 patient evaluations for Oxcarbazepine

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cmawally
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cmawally
Data Quality: 2 stars
  • Gender: F
  • Age: 58y
  • Duration: 50 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
68 weeks ago
I am: n
I have:
Epilepsy

See cmawally's full Oxcarbazepine history

Jul 18, 2010 (Started Sep 04, 2004)

  • Effectiveness
    Moderate (for Seizures (complex partial))
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/5 mL Daily
Advice & Tips: Caused low sodium even with fluid restrictive diet .Increased edema to lower extremities.I also experienced more shortness of air.Frequent irregular. heartbeat PVC's & PAC's.Felt upper abdominal fullness and weight gain even with exercise and diet.Craved carbs on this medicine.Felt brain fog much of time.It also made me feel pretty "so who cares!" about many things.This is just not the normal me.Needed more frequent inhaler and nebulizer treatments on this medicine.
Cost: $50-99 monthly

  • 1 helpful mark
Rebelor
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Rebelor
Data Quality: 2 stars
  • Gender: F
  • Age: 60y
  • Duration: 8 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
0 seizures
8 weeks ago
I am: g
I have:
Epilepsy

See Rebelor's full Oxcarbazepine history

Dec 15, 2010 (Started Nov 03, 2010)

  • Effectiveness
    None (for Epilepsy)
  • Side effects
    Severe (Weight gain, Depressed mood)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 150 mg Daily
Advice & Tips: This was added to my Lamictal to try to control my seizures. I was never able to increase the dose beyond 75 mg twice a day. It caused me to retain fluid, elevate my blood pressure and made me extremely fatigued. Ended up being admitted through the ER with a blood pressure of 203/109. No other cause was found. I have now started titrating Lyrica and hope that will work.
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

Dec 13, 2010 (Started Nov 03, 2010)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Moderate (Weight gain, Depressed mood)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 150 mg Daily
Advice & Tips: I was unable to take the prescribed dosage of 150 MG twice daily. It made me very lethargic and flat. I had no interest in getting off the couch. The sedation is intolerable. I have been on 75 mg twice daily for a month. That isn't stopping the small seizures.
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

Dec 5, 2010 (Started Nov 03, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Mild (Weight gain, Depressed mood)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 150 mg Daily
Advice & Tips: Sedation and memory problems when titrating. Couldn't increase to 150mg twice daily because of severe effect of increased dosage
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

  • 1 helpful mark
Seizure Boy
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Seizure Boy
Data Quality: 2 stars
  • Gender: M
  • Age: 58y
  • Duration: 9 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
184 weeks ago
I am: b
I have:
Epilepsy

See Seizure Boy's full Oxcarbazepine history

Jan 5, 2011 (Started Nov 17, 2006)

  • Effectiveness
    Major (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Moderate (Vertigo)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1800 mg Daily
Advice & Tips: Had very bad vertigo attack that lasted for over 1 week. Dr. prescribed additional dosage of meclizine which helped.
Cost: $100-199 monthly
Side effects: Vertigo

Oct 20, 2010 (Started Nov 17, 2006)

  • Effectiveness
    Major (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Moderate (Vertigo)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1800 mg Daily
Advice & Tips: Stick too it - it works
Cost: $100-199 monthly
Side effects: Vertigo

  • 1 helpful mark
carriejean_2001
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carriejean_2001
Data Quality: 1 star
  • Gender: F
  • Age: 33y
  • Duration: 15 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
5 seizures
249 weeks ago
I am: g
I have:
Epilepsy

See carriejean_2001's full Oxcarbazepine history

Dec 15, 2011 (Started Aug 22, 2009)

  • Effectiveness
    Slight (for Seizures (complex partial))
  • Effectiveness
    Slight (for Epilepsy)
  • Side effects
    Moderate (Tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 900 mg Daily
Cost: < $25 monthly

Oct 14, 2010 (Started Aug 22, 2009)

  • Effectiveness
    Slight (for Seizures (complex partial))
  • Side effects
    Moderate (Tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 900 mg Daily
Advice & Tips: Unless I take this on a very full stomach it makes me very sleepy so I recommend eating a very large breakfast before taking it in the mornings. However, I take twice as much at night and cannot sleep, I don't understand that. Either way if you are taking this medication in the morning there is a good chance it is going to make you want to go back to bed.
Cost: < $25 monthly

  • 1 helpful mark
manyfaces
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manyfaces
Data Quality: 0 stars
  • Gender: F
  • Age: 35
Condition: 5 additional condition(s)
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
I am: g

See manyfaces's full Oxcarbazepine history

Dec 6, 2008 (Started Aug 23, 2008)

  • Effectiveness
    Slight (for Treat my mood condition(s))
  • Side effects
    Moderate (Increased energy, Lack of concentration, Unsteady gait, Mania, Dry mouth)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly
Side effects: Mania, Lack of concentration, Dry mouth, Unsteady gait, Increased energy

  • 0 helpful marks
ProfessorBeeker
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ProfessorBeeker
Gender: M
Data Quality: 0 stars
Depression: 1
Mania: 0
Emotional: 1
Anxiety: 1
Compulsion: 0
External Stress: Moderate
36 M
Function: High
Distress: Low
I am: g
I have:
Major Depressive Disorder

See ProfessorBeeker's full Oxcarbazepine history

Dec 14, 2008 (Started May 17, 2006)

  • Effectiveness
    Major (for Treat my mood condition(s))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Dec 5, 2008 (Started May 17, 2006)

  • Effectiveness
    Slight (for Treat my mood condition(s))
  • Side effects
    Severe (Lack of concentration, Headaches, Tremor(s), Excessive daytime sleepiness (somnolence), Major Depressive Disorder)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1800 mg Daily
Advice & Tips: The dosage needs to be reduced
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Nov 29, 2008 (Started May 17, 2006)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Side effects
    Severe (Excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1800 mg Daily
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Sep 16, 2008 (Started May 17, 2006)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 900 mg Daily
Cost: < $25 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

  • 0 helpful marks
Bleeding_Butterflies
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Bleeding_Butterflies
Gender: F
Data Quality: 0 stars
Depression: 2
Mania: 1
Emotional: 4
Anxiety: 3
Compulsion: 2
External Stress: Moderate
25 F
Function: Low
Distress: Moderate
I am: g
I have:
PTSD

See Bleeding_Butterflies's full Oxcarbazepine history

Oct 5, 2009 (Started Jul 29, 2009)

  • Effectiveness
    Can’t tell (for Increase effect of another treatment)
  • Side effects
    Moderate (Lack of concentration, Excessive daytime sleepiness (somnolence))
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence)

  • 0 helpful marks
Nylrad
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Nylrad
Data Quality: 2 stars
  • Gender: F
  • Age: 59y
  • Duration: 35 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
Surgery type: Left Temporal Lobectomy, Left Temporal Lobectomy
0 seizures
312 weeks ago
I am: vg
I have:
Epilepsy

See Nylrad's full Oxcarbazepine history

Oct 20, 2008 (Started Feb 04, 2006)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Exhaustion, Frustration, Fatigue)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: NOTE: Prior to my surgery (left temporal lobectomy) I did NOT have a problem with Trileptal (at least not that I know of). But shortly after surgery (October 14, 2008) I had a major problem that put me back in the hospital for a week. Somehow the Trileptal was making my body need salt really bad. I was sooooooo out of it. Tired, sick; very scary. But the doctors figured it out and took me off of Trileptal and I fairly quickly got better. Had to keep having my blood tested at least a couple times a week for many weeks.
Cost: < $25 monthly
Side effects: Frustration, Exhaustion, Fatigue

Oct 18, 2008 (Started Feb 04, 2006)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Exhaustion, Frustration, Fatigue)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 600 mg Daily
Advice & Tips: After my left temporal lobectomy I became negatively affected by Trileptal. It affected my salt level in my blood and I went back into the hospital for about a week.
Cost: < $25 monthly
Side effects: Frustration, Exhaustion, Fatigue

  • 0 helpful marks
SarahW
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SarahW
Data Quality: 1 star
  • Gender: F
  • Age: 36y
  • Duration: 20 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
Surgery type: Vagus Nerve Stimulation (VNS), Vagus Nerve Stimulation (VNS)
2 seizures
334 weeks ago
I am: b
I have:
Epilepsy

See SarahW's full Oxcarbazepine history

Mar 17, 2010 (Started Mar 01, 2009)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1200 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Dazed&Confused
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Dazed&Confused
Data Quality: 1 star
  • Gender: M
  • Age: 52y
  • Duration: 31 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: Mild
14 seizures
244 weeks ago
I am: b
I have:
Epilepsy

See Dazed&Confused's full Oxcarbazepine history

Apr 6, 2010 (Started Apr 06, 2004)

  • Effectiveness
    Major (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Moderate (Muscle spasms, Joint pain, Atrophy of right arm muscles, Brain fog, Balance problems, Memory problems, Fatigue, Depressed mood, Insomnia)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 mg Daily
Advice & Tips: Get as much rest as possible..... as if you have much choice!
Side effects: Balance problems, Muscle spasms, Brain fog, Joint pain, Atrophy of right arm muscles, Insomnia, Depressed mood, Fatigue, Memory problems, Insomnia, Depressed mood, Fatigue, Memory problems

  • 0 helpful marks
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