245 patient evaluations for Baclofen

1,345 members have decided to share their profiles only with other members of PatientsLikeMe.

Wayne Lampe
247 thumb
Wayne Lampe
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
I am: vg
I have:
ALS

See Wayne Lampe's full Baclofen history

Aug 27, 2016 (Started Apr 16, 2009)

  • Effectiveness
    Slight (for Stiffness/Spasticity)
  • Effectiveness
    Slight (for Muscle spasms)
  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Cost: < $25 monthly

Dec 8, 2015 (Started Apr 16, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Muscle spasms)
  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: Take only the dosage that is needed to stop cramping
Cost: < $25 monthly

Dec 15, 2012 (Started Apr 16, 2009)

  • Effectiveness
    Moderate (for Muscle spasms)
  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
asdf1179
70518 thumb
asdf1179
Sex: M
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I have:
MS

See asdf1179's full Baclofen history

Aug 16, 2016 (Started Mar 15, 2016)

  • Effectiveness
    Major (for Restless feeling in legs)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg Daily
Advice & Tips: I no longer have restless legs at night that stops me from sleeping.

  • 0 helpful marks
ltbeauti
1705 thumb
ltbeauti
Sex: F
Data Quality: 3 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See ltbeauti's full Baclofen history

Aug 15, 2016 (Started Nov 11, 2010)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Slight (for Improve mobility)
  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Mild (Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 10 mg Twice daily

  • 0 helpful marks
Shell698
Portrait default thumb
Shell698
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: vb
I have:
MS

See Shell698's full Baclofen history

Aug 7, 2016 (Started Jul 01, 2010)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Effectiveness
    Major (for Muscle spasms)
  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    Mild (Drowsiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg Daily

  • 0 helpful marks
kschu
65145 thumb
kschu
Sex: M
Data Quality: 3 stars
Relapse: Moderate
Sensation: None
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See kschu's full Baclofen history

Jul 19, 2016 (Started Aug 10, 2011)

  • Effectiveness
    Slight (for Muscle spasms)
  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Mild (Excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 5 mg Three times daily
Advice & Tips: To avoid the daytime sleepiness, I take 5mg with breakfast (7am) and mid-afternoon (3pm). Starting today my doctor and I agreed I should also take 20mg after dinner. If that makes me sleepy overnight, there is no harm done. And that should help alleviate spasms at bedtime.
Cost: $25-49 monthly

Jan 2, 2015 (Started Aug 10, 2011)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Effectiveness
    Moderate (for Muscle spasms)
  • Side effects
    Moderate (Excessive daytime sleepiness (somnolence))
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 5 mg Three times daily
Advice & Tips: I take mine with other meds at Breakfast (7am), Mid-afternoon (3pm) and before bed (11pm).
Cost: < $25 monthly

  • 0 helpful marks
hank2555
Portrait default thumb
hank2555
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See hank2555's full Baclofen history

Jul 16, 2016 (Started Sep 01, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: None
Cost: < $25 monthly

  • 0 helpful marks
r3dro5e
Portrait default thumb
r3dro5e
Sex: F
Data Quality: 1 star
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See r3dro5e's full Baclofen history

May 10, 2016 (Started Jul 01, 2001)

  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Mild (Sleepiness)
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: Sometime my legs get mussel spasms, that's when i take the baclafin.

  • 0 helpful marks
laurag
10 thumb
laurag
Sex: F
Data Quality: 2 stars
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See laurag's full Baclofen history

Apr 25, 2016 (Started Jul 01, 1993)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I take a pill. My legs aren't stiff at all as long as i move them daily. It has helped to do weight bearing  exercises.

  • 0 helpful marks
Srs2388
85822 thumb
Srs2388
Data Quality: 1 star
  • Gender: M
  • Age: 28y
  • Duration: ? yrs
Quality of life:
  • Mental: Severe
  • Physical: Severe
1 seizure
9 weeks ago
I am: vb
I have:
Epilepsy

See Srs2388's full Baclofen history

Apr 13, 2016 (Started Apr 12, 2016)

  • Effectiveness
    Can’t tell (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: It can help build muscle for more back support. Physical therapy at home.

  • 0 helpful marks
scart
106 thumb
scart
Sex: M
Data Quality: 2 stars
Bulbar: mild
Arms: moderate
Chest: mild
Legs: none
I am: g
I have:
ALS

See scart's full Baclofen history

Apr 12, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 245 patient evaluations for Baclofen