78 patient evaluations for CoQ10 (CoEnzyme Q10)

323 members have decided to share their profiles only with other members of PatientsLikeMe.

SCRABBLE37
7203 thumb
SCRABBLE37
Sex: M
Data Quality: 2 stars
Off
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See SCRABBLE37's full CoQ10 (CoEnzyme Q10) history

Nov 19, 2009 (Started Nov 22, 2004)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    A little hard to take
Cost: $25-49 monthly

Aug 12, 2009 (Started Nov 22, 2004)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1200 mg Daily
Advice & Tips: Not a proven help in the treatment. When they know for sure it has positive effects then I would resume. I take enough medications as it is.
Cost: $25-49 monthly

Dec 16, 2008 (Started Nov 22, 2004)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1200 mg Daily
Advice & Tips: IT APPEARS TO HELP YOUR HEALTH IN SO MANY WAYS-OR SO THEY SAY. IT CAN'T HURT.
Cost: $25-49 monthly

Nov 22, 2008 (Started Nov 22, 2004)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1200 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
swhite.geo
7 thumb
swhite.geo
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: severe
Legs: moderate
I am: g
I have:
ALS

See swhite.geo's full CoQ10 (CoEnzyme Q10) history

Nov 1, 2009 (Started May 18, 2007)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 120 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
NotFinished
13456 thumb
NotFinished
Sex: M
Data Quality: 2 stars
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
I am: n
I have:
ALS

See NotFinished's full CoQ10 (CoEnzyme Q10) history

Oct 19, 2009 (Started Feb 01, 2009)

  • Effectiveness
    Can’t tell (for Support heart health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Originally prescribed by my neurologist, after a muscle biopsy diagnosis of myofibrillar myopathy, I continue to take it for heart health. It seems to be safe and has no apparent side-effects. I have since been diagnosed with MND/Suspected ALS.
Cost: < $25 monthly

  • 1 helpful mark
Russ Conley
260 thumb
Russ Conley
Sex: M
Data Quality: 0 stars
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
I have:
PLS

See Russ Conley's full CoQ10 (CoEnzyme Q10) history

Oct 1, 2009 (Started Dec 01, 2007)

  • Effectiveness
    None (for Other)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: stopped because of cost
Cost: $25-49 monthly

  • 0 helpful marks
froginmadison
5031 thumb
froginmadison
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: n
I have:
ALS

See froginmadison's full CoQ10 (CoEnzyme Q10) history

Sep 23, 2009 (Started Jan 04, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 600 mg Daily

  • 0 helpful marks
eleftherp
Portrait default thumb
eleftherp
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See eleftherp's full CoQ10 (CoEnzyme Q10) history

Sep 1, 2009 (Started Aug 31, 2007)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Mild
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: φυσικοθεραπεια, ηπατικα ενζυμα, ατροφιες, αναπνευστικη ανεπαρκεια
Cost: $200+ monthly

  • 0 helpful marks
raymoreConnie
855 thumb
raymoreConnie
Sex: F
Data Quality: 0 stars
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
I have:
ALS

See raymoreConnie's full CoQ10 (CoEnzyme Q10) history

Jul 14, 2009 (Started Nov 01, 2006)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take

Oct 14, 2008 (Started Nov 01, 2006)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
junkman
15556 thumb
junkman
Sex: M
Data Quality: 0 stars
Bulbar: none
Arms: severe
Chest: none
Legs: mild
I have:
ALS

See junkman's full CoQ10 (CoEnzyme Q10) history

Jul 1, 2009 (Started Feb 03, 2008)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Moderate (Crash, Nervousness, Jittery feeling, Loneliness, Fear)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: might be of benifit to someone else
Cost: $25-49 monthly
Side effects: Fear, Loneliness, Crash, Nervousness, Jittery feeling

  • 0 helpful marks
Rudan49
28922 thumb
Rudan49
Sex: M
Data Quality: 0 stars
Off
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: moderate
I have:
Parkinson's

See Rudan49's full CoQ10 (CoEnzyme Q10) history

Jun 18, 2009 (Started May 09, 2004)

  • Effectiveness
    Can’t tell (for General health)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 1200 mg Daily
Advice & Tips: I believe it's been proven effective in 3-4 clinical trials in slowing down the effcts of PD. Not conclusive enough by government's short sighted views. I don't want to get too political here , but we have been deprived of eight years of research by our last governing body. At that time I was strongly advised to take the 1200 mg. of Co-Q10.. My doctor is pretty encouraged by my relatively slow progression. But the clock is ticking.
Cost: $100-199 monthly

  • 4 helpful marks
AcesHigh
Portrait default thumb
AcesHigh
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
I have:
ALS

See AcesHigh's full CoQ10 (CoEnzyme Q10) history

Feb 12, 2009 (Started Jan 26, 2009)

  • Effectiveness
    Can’t tell (for General health)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 78 patient evaluations for CoQ10 (CoEnzyme Q10)