29 patient evaluations for Phenytoin

224 members have decided to share their profiles only with other members of PatientsLikeMe.

neuroplasticity
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neuroplasticity
Data Quality: 2 stars
  • Gender: M
  • Age: 57y
  • Duration: 43 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS), Extratemporal Resection
0 seizures
207 weeks ago
I am: g
I have:
Epilepsy

See neuroplasticity's full Phenytoin history

Apr 12, 2009 (Started Jan 01, 1974)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Moderate (Bad breath (halitosis), Acne breakout)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Cost: < $25 monthly
Side effects: Acne breakout, Bad breath (halitosis)

  • 0 helpful marks
billy_21804
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billy_21804
Gender: M
Data Quality: 0 stars
Depression: 3
Mania: 0
Emotional: 2
Anxiety: 3
Compulsion: 2
External Stress: Severe
37 M
Function: Moderate
Distress: Moderate
I am: g
I have:
Tobacco Addiction

See billy_21804's full Phenytoin history

Dec 6, 2008 (Started Jan 06, 2007)

  • Effectiveness
    Major (for Other)
  • Side effects
    Moderate (Difficulty sleeping through night)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 500 mg Daily
Advice & Tips: i can live with the sleep disorder to have seizures with less frequincy.
Side effects: Difficulty sleeping through night

  • 0 helpful marks
chrissysaurus
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chrissysaurus
Data Quality: 2 stars
  • Gender: F
  • Age: 31y
  • Duration: 12 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
0 seizures
41 weeks ago
I am: n
I have:
Epilepsy

See chrissysaurus's full Phenytoin history

Feb 28, 2007 (Started Oct 26, 2006)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    Severe (Bleeding gums, Numbness and tingling with pins and needles, Sleepiness, Oversleeping (too much sleep), Increased appetite)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: This was very effective for my epilepsy (for me anyway!), but it had the worst side effects I've ever experienced. Be careful when you first take it, make sure you know how you handle the side effects!

  • 0 helpful marks
skyrokit
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skyrokit
Data Quality: 0 stars
  • Gender: M
  • Age: 46y
  • Duration: 27 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
351 weeks ago
I have:
Epilepsy

See skyrokit's full Phenytoin history

Nov 23, 2001 (Started Apr 04, 1989)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Moderate (Gum recession, Seizures (grand mal or tonic-clonic))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Advice & Tips: Caused breakthrough seizures 2-4 times per year.
Side effects: Gum recession, Seizures (grand mal or tonic-clonic)

  • 0 helpful marks
Just 4 You
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Just 4 You
Data Quality: 2 stars
  • Gender: M
  • Age: 54y
  • Duration: 51 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: Mild
0 seizures
7 weeks ago
I am: g
I have:
Epilepsy

See Just 4 You's full Phenytoin history

Apr 24, 1991 (Started Feb 12, 1970)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Severe (Swelling in hands, Problems with coordination, Forgetfulness, Disorientation, Grogginess, Loss of energy, Dizziness)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1200 mg Daily
Advice & Tips: Only take it if you've got lots of money to have your teeth fixed! I had to have all of my front teeth removed and replaced with bridges.
Cost: < $25 monthly

  • 0 helpful marks
shell052169
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shell052169
Data Quality: 2 stars
  • Gender: M
  • Age: 47y
  • Duration: 36 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
70 weeks ago
I am: g
I have:
Epilepsy

See shell052169's full Phenytoin history

Apr 13, 1983 (Started Jan 14, 1980)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

  • 0 helpful marks
kg10043
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kg10043
Data Quality: 1 star
  • Gender: M
  • Age: 61y
  • Duration: 47 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Mild
4 seizures
270 weeks ago
I am: g
I have:
Epilepsy

See kg10043's full Phenytoin history

Jun 1, 1980 (Started Jan 01, 1980)

  • Effectiveness
    None (for Epilepsy)
  • Side effects
    Severe (Drunk feeling, Fatigue, Problems concentrating)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 400 mg Daily
Advice & Tips: Don't take it. It made me like I was walking around drunk and unable to work.
Cost: $25-49 monthly
Side effects: Drunk feeling, Problems concentrating, Fatigue

  • 0 helpful marks
shep0454
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shep0454
Sex: M
Data Quality: 2 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: severe
I am: n
I have:
MS

See shep0454's full Phenytoin history

Jul 1, 1975 (Started Jul 01, 1975)

  • Effectiveness
    None (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily

  • 0 helpful marks
seizetheday
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seizetheday
Data Quality: 2 stars
  • Gender: F
  • Age: 58y
  • Duration: 45 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
2 seizures
79 weeks ago
I am: g
I have:
Epilepsy

See seizetheday's full Phenytoin history

Nov 1, 1974 (Started Jun 30, 1972)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Moderate (Hirsutism (excessive hair growth), Inflammation of the gums)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 100 mg Three times daily
Advice & Tips: If you can, try the newer treatments first. I started with Dilantin and Phenobarbito....but that was a LONG time ago, when Tegretol came onto the market, I was put on that, and I had NO side effects at all, and my control was SO much better :)

  • 0 helpful marks
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Showing 9 of 29 patient evaluations for Phenytoin