108 patient evaluations for Natalizumab

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moogie16
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moogie16
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See moogie16's full Natalizumab history

Oct 18, 2011 (Started Feb 09, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Severe (Pancreatitis, Elevated liver enzymes, affected pancreas, liver)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

Jan 16, 2009 (Started Feb 09, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Give it time, and refrain from taking a lot of other prescribed drugs for pain issues, or over-the-counter treatments for other MS-related physical problems. I believe the purity of the the Tysabri should be kept intact so as not to affect the potency and effectiveness of this treatment. A positive mental attitude and the desire to overcome this illness couldn't hurt, either. I will overcome.
Cost: < $25 monthly

Aug 19, 2008 (Started Feb 09, 2007)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: No more cane, a lot less pain!
Cost: < $25 monthly

Aug 18, 2008 (Started Feb 09, 2007)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Your Immune system needs to be typically too large to be on Tysabri, as it reduces your immune system towards the normal spectrum.
Cost: < $25 monthly

  • 3 helpful marks
heathercf75
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heathercf75
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See heathercf75's full Natalizumab history

Oct 10, 2011 (Started Oct 09, 2012)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take

  • 0 helpful marks
grandmahoney
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grandmahoney
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I have:
MS

See grandmahoney's full Natalizumab history

Sep 8, 2011 (Started Oct 08, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Severe (Genital Herpes, Shingles rash, Eczema)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I tested positive for jc virus. I experienced side effects such as shingles, herpes, and excema.

  • 1 helpful mark
richstar3
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richstar3
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See richstar3's full Natalizumab history

Sep 1, 2011 (Started Jul 23, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: It seemed to make me fell better after 1 week then about 1 week before my next treatment I started feeling crummy again. I had a flair up and stopped using the drug.

  • 0 helpful marks
cindy in arkansas
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cindy in arkansas
Sex: F
Data Quality: 0 stars
Sensation: Severe
Overall: Moderate
Cognition: severe
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: mild
Walking: moderate
I have:
MS

See cindy in arkansas's full Natalizumab history

Jul 25, 2011 (Started Dec 01, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I have been on Tysabri for several years now and I am totally happy with my therapy. I did have to get a port last summer, however it makes my infusions so much easier! It is working well for me.
Cost: $200+ monthly

May 18, 2009 (Started Dec 01, 2007)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: The expense is my only complaint. I have pretty good insurance and it's still expensive for me. I have friends who don't pay quite as much though???
Cost: $100-199 monthly

  • 3 helpful marks
Determinator
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Determinator
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: moderate
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See Determinator's full Natalizumab history

Jul 1, 2011 (Started Mar 02, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
ILoveMyDogs!
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ILoveMyDogs!
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See ILoveMyDogs!'s full Natalizumab history

May 17, 2011 (Started Aug 31, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Mild (Lethargy)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: For people who have been advised that their symptoms to not warrant the risks associated with Tysabri, I would encourage them to expect more from their MS treatment. I have not had any worsening of my symptoms since starting the drug 2 1/2 years ago, and gained back some of my energy! I started taking it due to adverse reactions to my prior medication, not because my symptoms were uncontrolled. I am so glad I made the switch and that my Dr. was behind it. I don't believe that I have to be struggling with this disease day to day or have an expectation that it will get worse. When I meet other people with MS who say they aren't "bad enough" to go on Tysabri, it really bothers me b/c my personal goal is to be as symptom free as possible. If you can't work due to your illness, struggle to do normal physical activities, or take a ton of other medication to lessen your symptoms, I think you should consider another form of treatment!
Side effects: Lethargy

  • 4 helpful marks
mislissa1029
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mislissa1029
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See mislissa1029's full Natalizumab history

Apr 1, 2011 (Started Mar 09, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Mild (Tiredness)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

Oct 10, 2009 (Started Mar 09, 2009)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'd love to experience the fullness of this MS med since I have had only 3 monthly treatments since March '09. <------ Going on 7 months w/ only 3 administered infusion therapies. **rolls eyes/shakes head** {Medicaid is willing to pay its share of $18. But only after Medicare stops giving my doctor's office & myself a hard time & pay the balance. Now the pharmaceutical company is stepping in b/c they know MS meds need to be consistent.}
Cost: < $25 monthly

  • 0 helpful marks
yizbit
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yizbit
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See yizbit's full Natalizumab history

Mar 30, 2011 (Started Mar 17, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly
Side effects: Headaches

  • 0 helpful marks
DebbieBren
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DebbieBren
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See DebbieBren's full Natalizumab history

Mar 15, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Moderate (Body Aches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Tysabri was wonderful for my MS for two years, then I had a major reaction and neuro. suggested I stop the treatment.
Cost: < $25 monthly

Feb 1, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    Severe
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: Monthly

  • 0 helpful marks
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