121 patient evaluations for Carbidopa-Levodopa

Maribeth
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Maribeth
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See Maribeth's full Carbidopa-Levodopa history

May 21, 2015 (Started Nov 01, 2013)

  • Perceived effectiveness for Parkinson's Disease: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 6 x 10 mg-100 mg Daily
Advice & Tips: iDK.
Cost: < $25 monthly

  • 0 helpful marks
holmesa
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holmesa
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See holmesa's full Carbidopa-Levodopa history

May 5, 2015 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 100 mg Daily
Cost: < $25 monthly

Apr 13, 2015 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 100 mg Daily
Cost: < $25 monthly

Mar 4, 2015 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Slight
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 100 mg Daily
Cost: < $25 monthly

Jan 19, 2015 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 100 mg Daily
Advice & Tips: I take my carbidopa/levodopa up to the daily limit as Madopar: 1, Sinemet+1x4 spaced evenly, 1/2 SinemetCRx2 t teatime.
Cost: < $25 monthly

Jan 10, 2015 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: My dose has increased to 6 tablets daily which works well until around 21:00 when I get sleepy &/or other symptoms cut in. Most nights this doesn't matter.
Cost: < $25 monthly

Jun 30, 2014 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Working with PD nurse & consultant over time dosage has changed to better manage symptoms. I now take 3x 25/100, 2x half Sinemet cr & 3x 12.5/50 to chew as a rescue remedy as needed.
Cost: < $25 monthly

Feb 26, 2013 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

Sep 23, 2012 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Advice & Tips: Timing is important as wearing off can impact on a whole day's activities. I very gradually add a little more time between doses so that I can quickly revert to previous timing. I seem to have more frequent, pronounced & longer lasting tremor. I have also started 'feezing' during walkng as well as at the start & during turning. I am slowing right down, stiff & sore joints & consequent fatigue.
Cost: < $25 monthly

Mar 22, 2012 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Dec 10, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 22, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 4, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
ProfGumbySan
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ProfGumbySan
Sex: M
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See ProfGumbySan's full Carbidopa-Levodopa history

Apr 14, 2015 (Started Aug 11, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 8 x 25 mg-250 mg Daily
Advice & Tips: Crucial to keep to dosage schedule
Cost: < $25 monthly

Jun 1, 2014 (Started Aug 11, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 8 x 25 mg-250 mg Daily
Cost: < $25 monthly

Nov 6, 2011 (Started Aug 11, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 6 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
rmabey
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rmabey
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: mild
I have:
Parkinson's

See rmabey's full Carbidopa-Levodopa history

Mar 29, 2015 (Started Jun 30, 2012)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3.5 x 25 mg-100 mg Daily
Advice & Tips: My Neurologists at the Alfred Hospital in Melbourne Australia tuned my DBS neuro-stimulator so that I no longer take Entacapone and I reduced the amount of Levadopa and Carbidopa That I am taking.I am taking Mirtazone and Sifrol.

  • 0 helpful marks
reikihh
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reikihh
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See reikihh's full Carbidopa-Levodopa history

Feb 11, 2015 (Started Jun 30, 2004)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Perceived effectiveness for RLS (Restless Legs Syndrome): Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I no longer am seeing any improvement. Maybe I have just gotten used to it & no longer notice it. Maybe it is time to increase again.
Cost: < $25 monthly

Nov 10, 2014 (Started Jun 30, 2004)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
Tulabee
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Tulabee
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Tulabee's full Carbidopa-Levodopa history

Feb 1, 2015 (Started Jul 27, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: As needed
Advice & Tips: On the average, it is best to take 0.75 tablet every 4.00 to 4.25 hrs. If I am doing something physical like a long walk or if I have to keep moving my whole body for 2-3 hours, then 1.00 tablet. Do not do this if sitting at a desk-dyskinesia.
Cost: < $25 monthly
Side effects: Dyskinesia

Nov 8, 2014 (Started Jul 27, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: As needed
Advice & Tips: It's the fall/winter season, and I made a med change. IT coincides with the daylight getting shorter. About mid-to late Sept I increase the Cymbalta(depression) from 60mg to 120mg. This seems to affect how the L-dopa is metabolized. For a few weeks I was taking 1 whole tablet (100/25), every 5-6 hrs. The 0.75 dose wasn't doing its work. I also start on modafinil for alertness. Due to Rx screw up I wasn't able to start in Oct, but had to start in Nov. I was maintaining, but now I feel better with the modafinil. Like someone turning up the TV brightness switch just a little bit. But now I think I am very sensitive to the amount of L-dopa. I will work it out.
Cost: < $25 monthly
Side effects: Dyskinesia

Apr 18, 2013 (Started Jul 27, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: As needed
Advice & Tips: This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost: < $25 monthly
Side effects: Dyskinesia

  • 0 helpful marks
archaeologist
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archaeologist
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See archaeologist's full Carbidopa-Levodopa history

Dec 19, 2014 (Started May 15, 2013)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly

Oct 17, 2014 (Started May 15, 2013)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: Timing is important, I is taking them every 8 hours and that is bad. Now I'm taking them about every six hours during the day and I don't get tired and have cramps in the evening. I still wake up OK. I use a pill box, 7x3 to help remember.
Cost: $25-49 monthly

  • 0 helpful marks
dixie pixie
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dixie pixie
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See dixie pixie's full Carbidopa-Levodopa history

Jul 30, 2014 (Started Jun 10, 2008)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 2 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
mahendra
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mahendra
Sex: M
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See mahendra's full Carbidopa-Levodopa history

Jul 10, 2014 (Started Jul 10, 1995)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: do not start this treatment early if you are diaognise for pd.================
Cost: $50-99 monthly

  • 0 helpful marks
palecarl
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palecarl
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See palecarl's full Carbidopa-Levodopa history

Jun 19, 2014 (Started May 15, 2012)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
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Showing 10 of 121 patient evaluations for Carbidopa-Levodopa