227 patient evaluations for Baclofen

addicted2harleys
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addicted2harleys
Data Quality: 1 star
  • Sex: F
  • Age: 46
Condition: Hereditary Spastic Paraplegia 7 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Moderate
I am: vb
I have:
Hereditary Spastic Paraplegia

See addicted2harleys's full Baclofen history

Aug 1, 2012 (Started Sep 01, 2010)

  • Perceived effectiveness for Hereditary Spastic Paraplegia: Moderate
  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 804.5 mcg Daily
Advice & Tips: My Baclofen is administered through an intrathecal pump implanted just under the skin in my upper buttocks. I cannot control any part of the device, the doctor does everything through a handheld scanner. Medication refills are done in my doctors office through a little port that is accessed via a small catheter. This is a quick procedure and does not hurt.

  • 0 helpful marks
nmarshall603
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nmarshall603
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: vb
I have:
ALS

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Jul 30, 2012 (Started Nov 01, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Rachael
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Rachael
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: vb
I have:
ALS

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Jul 28, 2012 (Started Dec 19, 2006)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 10 mg Daily
Advice & Tips: Highly addictive with hideous withdrawal if stopped or reduced suddenly. I forgot a few times and it wasn't pretty!

  • 0 helpful marks
cass50
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cass50
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
I am: b
I have:
ALS

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Jul 26, 2012 (Started Sep 02, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily

  • 0 helpful marks
ingles56
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ingles56
Sex: M
Data Quality: 1 star
Sensation: Mild
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: severe
I am: vg
I have:
MS

See ingles56's full Baclofen history

Jul 16, 2012 (Started Feb 24, 2012)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
idunno
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idunno
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: severe
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See idunno's full Baclofen history

Jul 1, 2012 (Started Feb 02, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Perceived effectiveness for Muscle spasms: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 60 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
ALSSUX
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ALSSUX
Sex: F
Data Quality: 1 star
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
I am: vg
I have:
ALS

See ALSSUX's full Baclofen history

May 29, 2012 (Started May 21, 2012)

  • Perceived effectiveness for Stiffness/Spasticity: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 15 mg Daily
Advice & Tips: I feel like I have a bit less stiffness/spasticity. I think a slightly higher dosage may be more effective; will talk to dr about it.
Cost: < $25 monthly

  • 0 helpful marks
life well lived
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life well lived
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: mild
I am: g
I have:
MS

See life well lived's full Baclofen history

May 23, 2012 (Started May 20, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 10 mg Daily
Advice & Tips: It gave me sudden periods of intense sleepiness. I was unsafe driving and twice needed the wake up bumps on the side of the road to make it home from work in the afternoon/early evening after taking baclofen the night before. The drowsiness hit in waves from mid morning on through the day, and baclofen was the only change in my meds/routine.
Cost: < $25 monthly

  • 0 helpful marks
foottraffic
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foottraffic
Sex: F
Data Quality: 1 star
Pain: Some
Fatigue: All
Sleep: Most
Stiffness: Most
function: Some
external_stress: Most
Stickman: most
Description:F56y
FM:?y
I am: b
I have:
Fibromyalgia

See foottraffic's full Baclofen history

May 15, 2012 (Started Nov 04, 2010)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily

  • 0 helpful marks
Stefie/MS
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Stefie/MS
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Stefie/MS's full Baclofen history

May 2, 2012 (Started Jun 04, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Very
Advice & Tips: took for 2 days and stopped
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
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