14 patient evaluations for Primidone

72 members have decided to share their profiles only with other members of PatientsLikeMe.

Jul 31, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Shakiness)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: must take for ESSENTIAL TREMORS
Cost: < $25 monthly

  • 2 helpful marks

May 15, 2008 (Started Mar 12, 2008)

  • Effectiveness
    None (for essential tremor)
  • Side effects
    Moderate (Grogginess, Dizziness, Low blood pressure, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 750 mg Daily
Side effects: Low blood pressure, Grogginess, Dizziness, Fatigue

  • 1 helpful mark

Aug 18, 2008 (Started Jul 01, 2006)

  • Effectiveness
    Slight (for essential tremor)
  • Side effects
    Mild (Grogginess)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: Started before took sinemet, and had slight effect on tremor. When sinemet was started, had more effect on tremor than primidone. When sinemet was increased to six pills daily, tried to decrease primidone and found could do so with no increase in tremor.
Cost: < $25 monthly
Side effects: Grogginess

  • 1 helpful mark

Feb 11, 2010 (Started Sep 09, 1984)

  • Effectiveness
    Major (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Moderate (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: be prepared to be drowsy a good bit of the time
Side effects: Somnolence

  • 1 helpful mark

Oct 10, 2010 (Started Aug 01, 2010)

  • Effectiveness
    Moderate (for essential tremor)
  • Effectiveness
    Moderate (for Migraine headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I am taking a low dose of this because of kidney disease, so be careful of that factor. I am taking it for seizures, chronic migraine headaches, and essential tremor. It works best on the headaches, though it isn't perfect. Same with the essential tremor, although I can use my hands better and write my name well again. It has helped my daily life in that it has reduced the number and severity of most of my headaches, not all of them. I still get bad ones. So it's had a mixed benefit. I'd still choose to take it because it does give enough relief to be helpful.
Cost: < $25 monthly

  • 1 helpful mark

Jan 13, 2011 (Started Jan 01, 2002)

  • Effectiveness
    Moderate (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Severe (Tiredness, Fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 3 x 250 mg/5 mL Daily
Advice & Tips: For about a year the doctor has tried me on different medications, some for a very short time, now on Vimpat. He is reducing the primidone to reduce extreme tiredness. At times I will be sitting at a desk and all of a sudden wake up and realize I have been asleep for a half hour or so.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

Jan 20, 2010 (Started Jan 01, 2002)

  • Effectiveness
    Moderate (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Severe (Tiredness, Fatigue)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: From the point when I started taking Primidone I felt VERY TIRED almost all the time. My Blood Pressure (BP) went up in spite of a higher dose of BP medicine. I have muscle weakness.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

Dec 30, 2009 (Started Jan 01, 2002)

  • Effectiveness
    Moderate (for Seizures (grand mal or tonic-clonic))
  • Side effects
    Severe (Tiredness, Fatigue)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: Makes me even more tired. Last time they increased my dose I went to a point that I could easily sleep 12+ hours per day.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

  • 1 helpful mark

Aug 26, 2009 (Started Jun 04, 1995)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (Somnolence, somulence, Choking on my saliva when relaxed and forget to swallow)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: Much better than taking actual phenobarbitol less doping.
Cost: < $25 monthly

  • 1 helpful mark

Jan 21, 2013 (Started Nov 10, 2010)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly
Side effects: Fatigue

Nov 23, 2009 (Started Nov 10, 2010)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Side effects: Fatigue

  • 1 helpful mark

Nov 30, 2009 (Started Jul 01, 2009)

  • Effectiveness
    None (for Shakiness)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg/5 mL Daily
Cost: < $25 monthly

  • 0 helpful marks

Apr 13, 2010 (Started Nov 10, 2008)

  • Effectiveness
    Slight (for Cramps in arms)
  • Side effects
    Severe (Grogginess, Dizziness, Fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: This drug just didn't do anything other than cause me to loose sleep
Side effects: Grogginess, Fatigue, Dizziness

May 10, 2009 (Started Nov 10, 2008)

  • Effectiveness
    Slight (for Cramps in arms)
  • Side effects
    Mild (Grogginess, Dizziness, Fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 50 mg Daily
Advice & Tips: Listen to your Doc
Cost: < $25 monthly
Side effects: Grogginess, Fatigue, Dizziness

  • 0 helpful marks
Last updated:
Showing 10 of 14 patient evaluations for Primidone