70 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)' with a perceived effectiveness rating of Can’t tell

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Super G
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Super G
Sex: M
Data Quality: 0 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I have:
ALS

See Super G's full Riluzole history

Aug 3, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
Moosemna
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Moosemna
Sex: M
Data Quality: 0 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

See Moosemna's full Riluzole history

Jul 18, 2009 (Started May 03, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Don't think it's the "Silver Bullet"
Cost: $50-99 monthly
Side effects: Abdominal pain, Stomach pain, Nausea

May 3, 2009 (Started May 03, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Mild (Nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Stay close to the bathroom
Cost: $50-99 monthly
Side effects: Abdominal pain, Stomach pain, Nausea

  • 1 helpful mark
Mr. Gene
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Mr. Gene
Sex: M
Data Quality: 0 stars
Bulbar: severe
Arms: moderate
Chest: none
Legs: moderate
I have:
ALS

See Mr. Gene's full Riluzole history

Jun 16, 2009 (Started Dec 20, 2008)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Stick to a consistent schedule for awakening, meal times and getting to bed.
Cost: $25-49 monthly

  • 1 helpful mark
CombatALS
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CombatALS
Sex: F
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: g
I have:
ALS

See CombatALS's full Riluzole history

Mar 30, 2009 (Started Mar 30, 1998)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
TROJAN
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TROJAN
Sex: M
Data Quality: 0 stars
Bulbar: moderate
Arms: mild
Chest: none
Legs: mild
I have:
ALS

See TROJAN's full Riluzole history

Feb 24, 2009 (Started Jan 16, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
lvinsman
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lvinsman
Sex: M
Data Quality: 0 stars
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: mild
I am: n
I have:
ALS

See lvinsman's full Riluzole history

Feb 19, 2009 (Started Nov 19, 2007)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
beltaneman
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beltaneman
Sex: M
Data Quality: 0 stars
Bulbar: none
Arms: none
Chest: none
Legs: none
I have:
ALS

See beltaneman's full Riluzole history

Feb 4, 2009 (Started May 08, 2008)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Severe (Liver inflammation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Have regular blood tests to moderate your liver function.
Cost: < $25 monthly
Side effects: Liver inflammation

  • 0 helpful marks
gecc4
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gecc4
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
I am: g
I have:
ALS

See gecc4's full Riluzole history

Jan 15, 2009 (Started May 16, 2006)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
supasonic
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supasonic
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

See supasonic's full Riluzole history

Dec 11, 2008 (Started Oct 11, 2008)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
Mypromis
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Mypromis
Sex: F
Data Quality: 0 stars
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
I have:
ALS

See Mypromis's full Riluzole history

Oct 7, 2008 (Started Oct 01, 2007)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 70 patient evaluations for Riluzole