61 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)' with a perceived effectiveness rating of Can’t tell

Mypromis
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Mypromis
Sex: F
Data Quality: 0 stars
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
I have:
ALS

See Mypromis's full Riluzole history

Oct 7, 2008 (Started Oct 01, 2007)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Bobby B
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Bobby B
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
I have:
ALS

See Bobby B's full Riluzole history

Sep 14, 2008 (Started Sep 13, 1995)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all

  • 0 helpful marks
editman
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editman
Sex: M
Data Quality: 0 stars
Bulbar: moderate
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
ALS

See editman's full Riluzole history

Sep 10, 2008 (Started Feb 18, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
Porky
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Porky
Sex: F
Data Quality: 0 stars
Bulbar: severe
Arms: mild
Chest: none
Legs: moderate
I have:
ALS

See Porky's full Riluzole history

Sep 9, 2008 (Started Oct 26, 2006)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily

  • 0 helpful marks
Nanner
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Nanner
Sex: F
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
I have:
ALS

See Nanner's full Riluzole history

Aug 28, 2008 (Started Apr 01, 2001)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
thomcuddy
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thomcuddy
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I have:
ALS

See thomcuddy's full Riluzole history

Aug 24, 2008 (Started Feb 20, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 100 mg Daily
Advice & Tips: We can never know if Rilutek does any of us any good. If it doesn't seem to be doing any harm, I believe it is better to take it than not to.
Cost: < $25 monthly

  • 2 helpful marks
SIONZ
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SIONZ
Sex: F
Data Quality: 0 stars
Bulbar: none
Arms: none
Chest: none
Legs: mild
I am: g
I have:
ALS

See SIONZ's full Riluzole history

Aug 19, 2008 (Started Aug 10, 2007)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily

  • 0 helpful marks
gailHD
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gailHD
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vg
I have:
ALS

See gailHD's full Riluzole history

Aug 19, 2008 (Started Oct 08, 2007)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
ashfieb
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ashfieb
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
I have:
ALS

See ashfieb's full Riluzole history

Aug 19, 2008 (Started Oct 24, 2005)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
Corasine
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Corasine
Sex: F
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
I have:
ALS

See Corasine's full Riluzole history

Jul 2, 2008 (Started Jun 01, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 50 mg Daily
Cost: $50-99 monthly
Side effects: Abdominal pain, Stomach pain, Nausea

Jun 28, 2008 (Started Jun 01, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 50 mg Daily
Advice & Tips: Try it because it is the only treatment at this time.
Cost: $50-99 monthly
Side effects: Abdominal pain, Stomach pain, Nausea

  • 0 helpful marks
Last updated:
Showing 10 of 61 patient evaluations for Riluzole