105 patient evaluations for Topiramate

Polar B
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Polar B
Sex: F
Data Quality: 1 star
Depression: 1
Mania: 0
Emotional: 1
Anxiety: 2
Compulsion: 1
External Stress: Severe
48 F
Function: High
Distress: Low
I am: g
I have:
Bipolar I

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Mar 15, 2014 (Started Jun 30, 2004)

  • Perceived effectiveness for Treat my mood condition(s): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
tootse
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tootse
Data Quality: 0 stars
  • Sex: F
  • Age: 48y
  • Duration: 33 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
5 seizures
88 weeks ago
I am: g
I have:
Epilepsy

See tootse's full Topiramate history

Mar 8, 2014 (Started Jul 29, 2005)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 600 mg Daily
Advice & Tips: I have to take topomax reg DAW because the generic topomax causes me to have , pedimal seizures . No matter what the dr, or insurance co. tells you , the generic is not as safe , always found out many times with other meds .
Cost: < $25 monthly

  • 0 helpful marks
dreamincaribbean
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dreamincaribbean
Data Quality: 2 stars
  • Sex: F
  • Age: 44
Condition: Systemic Lupus Erythematosus 3 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: g
I have:
Systemic Lupus Erythematosus

See dreamincaribbean's full Topiramate history

Jan 8, 2014 (Started May 15, 2009)

  • Perceived effectiveness for PAWOI (Persistent Aura Without Infarction): Slight
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Not at all
Advice & Tips: Worked for awhile, but the electric shocks to my feet grew to be unbearable and lasted for up to 5 mins. which doesn't sound bad, but it was extreme as if I was being electrocuted
Cost: < $25 monthly

  • 0 helpful marks
myth1977
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myth1977
Sex: F
Data Quality: 1 star
Pain: Some
Fatigue: Most
Sleep: Most
Stiffness: Some
function: Some
external_stress: Little
Stickman: most
Description:F36y
FM:17y Dx
I am: b
I have:
Fibromyalgia

See myth1977's full Topiramate history

Nov 13, 2013 (Started Aug 01, 2011)

  • Perceived effectiveness for Migraine headaches: None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Slowly top up on this medication to reduce side effects and help your body get used to it.

  • 0 helpful marks
aubri328
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aubri328
Sex: F
Data Quality: 3 stars
Sensation: None
Overall: None
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: vg
I have:
MS

See aubri328's full Topiramate history

Aug 18, 2013 (Started Oct 13, 2003)

  • Perceived effectiveness for Migraine headaches: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: This medication can cause you to loose a little weight. That said do NOT think this is a weight lose drug! You may only lose 5 lbs and it will only last a few months. Reason- you might not want to eat as much (great idea). As for migraine use- medication seems to work very well. BUT know it is designed to work in steps. If the level you are on isn't working talk with your doctor because they can and will increase the amount. Available in generic for cost savings.
Cost: < $25 monthly

  • 0 helpful marks
carlo
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carlo
Data Quality: 2 stars
  • Sex: M
  • Age: 70y
  • Duration: 38 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
0 seizures
1 week ago
I am: g
I have:
Epilepsy

See carlo's full Topiramate history

Jul 28, 2013 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: take as directed. no seizures.
Cost: < $25 monthly

Apr 13, 2010 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: none
Cost: < $25 monthly

Mar 11, 2010 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: no seizures for the past 11 months.
Cost: < $25 monthly

Nov 19, 2009 (Started Oct 10, 1988)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: it really worked for me. reduced my seizures to a few per yr.
Cost: < $25 monthly

  • 1 helpful mark
Madeline Belet
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Madeline Belet
Data Quality: 2 stars
  • Sex: F
  • Age: 44y
  • Duration: 32 yrs
Quality of Life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
45 weeks ago
I am: g
I have:
Epilepsy

See Madeline Belet's full Topiramate history

Jun 6, 2013 (Started Jan 15, 2013)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Advice & Tips: I have been on seizure control meds all my life, this is the first one that actually helped me lose weight instead of gain it. I'm not on very much Topamax, and the rumor I heard/read was that people using it gave it the name Dopamax. I'm a writer and artist. I depend on my brain, needing it to work properly so I can have a happy and functioning life. I take my 3 pills all at once, 75 mg, at night before bed so I can write during the day. It was the only way I could do it. I still feel sleepy at times but I don't feel dopey... but I'm not on a lot either. The other thing I'd say is to be prepared for an entourage of strange sensory changes and sensitivities. I see in HD, as I like to put it, experience De Javu' all the time now, see titles on book come off the cover as though I'm wearing 3D glasses all the time, I taste smell and taste certain things at certain times of the day like burning fabric or the smell of metals like iron. I also cough for no reason and I am sneezing all the time now and it's not allergies... of which I don't have any. Should you take this med, I'd say take lots of notes, start slow, and keep the communication lines very open with your doctor.

  • 0 helpful marks
dizzytraveler
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dizzytraveler
Data Quality: 0 stars
  • Sex: F
  • Age:
Condition:
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: n

See dizzytraveler's full Topiramate history

Apr 14, 2013 (Started Feb 01, 2011)

  • Perceived effectiveness for Dizziness: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 400 mg Daily
Advice & Tips: Always make sure you titrate up slowly with this medication. If you come down, titrate down. Never jump up or down.

  • 0 helpful marks
InIt4theParking
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InIt4theParking
Data Quality: 2 stars
  • Sex: F
  • Age: 33y
  • Duration: 5 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
4 seizures
31 weeks ago
I am: b
I have:
Epilepsy

See InIt4theParking's full Topiramate history

Apr 1, 2013 (Started Dec 07, 2008)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: $25-49 monthly
Side effects: Memory and cognition problems, Decreased appetite

Mar 8, 2010 (Started Dec 07, 2008)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: Taking Topamax on time has been very important for me. I also found that once I moved up to 75mg in the morning and 75mg at night, it acted as an appetite suppressant and helped me change my eating habits, which in turn helped me lose weight!
Cost: $25-49 monthly
Side effects: Memory and cognition problems, Decreased appetite

  • 0 helpful marks
Itsalwayssomething
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Itsalwayssomething
Data Quality: 2 stars
  • Sex: F
  • Age: 55
Condition: Chronic Pain Syndrome 22 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: b
I have:
Chronic Pain Syndrome

See Itsalwayssomething's full Topiramate history

Mar 15, 2013 (Started Jun 01, 2011)

  • Perceived effectiveness for Migraine headaches: Slight
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: 100 mg Daily
Advice & Tips: I started taking as needed then, realized that it could be contributing to what I believe (self-diagnosed) was Serotonin Syndrome which, combined with everything else I was taking. If you find your condition (of any type) suddenly worse (within minutes or hours), start by asking your doctor about this first. It's taken me a year worth of specialists (who found nothing), psych tests (which proved I wasn't 'making it up'), and SELF RESEARCH to realize my problem. Miraculously, at least the symptoms that have been plaguing me since EXACTLY April of 2012 have gotten about 75% better within about 4 days. It happened so fast, I thought I had had a stroke or was going insane. Don't let this happen to you.
Cost: < $25 monthly

Jul 21, 2012 (Started Jun 01, 2011)

  • Perceived effectiveness for Prevent migraine: Major
  • Perceived effectiveness for Migraine headaches: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Helps when taken. My prescription ran out a few days ago and I haven't gone into the drugstore yet. Will be starting dose again soon. 8/2/12 Pharmacy informs me I haven't refilled since May. Oops!
Cost: < $25 monthly

Jun 30, 2012 (Started Jun 01, 2011)

  • Perceived effectiveness for Prevent migraine: Major
  • Perceived effectiveness for Migraine headaches: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
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