113 patient evaluations for Topiramate

887 members have decided to share their profiles only with other members of PatientsLikeMe.

Monas21
99233 thumb
Monas21
Data Quality: 2 stars
Age: 58y
Gender:
Condition: Psoriasis
I am: b
BSA% 18
DLQI score: 14
I have:
Psoriasis

See Monas21's full Topiramate history

Mar 22, 2017 (Started Jan 04, 2017)

  • Effectiveness
    Moderate (for Nerve pain (neuralgia))
  • Side effects
    Mild (Very tired right after treatment)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: this medication may make you VERY tired. I tried 50 mg in the morning and slept for hours. Dr discontinued the daytime dose. Be careful with daytime dosing.
Cost: < $25 monthly

  • 0 helpful marks
LadySirona
97627 thumb
LadySirona
Gender: F
Data Quality: 2 stars
Depression: 2
Mania: 1
Emotional: 1
Anxiety: 2
Compulsion: 2
External Stress: Overwhelming
57 F
Function: Moderate
Distress: Low
I am: vg
I have:
Bipolar Disorder

See LadySirona's full Topiramate history

Mar 17, 2017 (Started Mar 05, 2017)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    Moderate (Anorexia Nervosa, Aphasia, Stuttering)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I suffered from crushing migraines for 40 years.... when i got the 100mg dose 2 x day my migraines disappeared, fir that i will put up with aphasia and stuttering and spelling errors to not have crushing pain for 40 years. i can now wean off the narcotics i took norco 10mg /325 to get pain control to 4-5/10 and now i am pain free it is a good trade.
Cost: < $25 monthly

  • 0 helpful marks
oneunusualchick
6078 thumb
oneunusualchick
Gender: F
Data Quality: 2 stars
Pain: Most
Fatigue: All
Sleep: Most
Stiffness: All
function: None
external_stress: All
Stickman: most
Description:F49y
CFS:6y Dx
FM:8y Dx
I am: b
I have:
Fibromyalgia

See oneunusualchick's full Topiramate history

Feb 2, 2017 (Started Jul 01, 2014)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    Mild (Carbonated drinks taste flat)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Twice daily
Advice & Tips: I'd tell them it makes soda, beer, & champagne taste funny but to me it's worth it. I went from nearly constant migraines to almost none!
Cost: < $25 monthly

  • 0 helpful marks
Srs2388
85822 thumb
Srs2388
Data Quality: 1 star
  • Gender: M
  • Age: 29y
  • Duration: ? yrs
Quality of life:
  • Mental: Severe
  • Physical: Severe
2 seizures
11 weeks ago
I am: b
I have:
Epilepsy

See Srs2388's full Topiramate history

Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks
joan53
21309 thumb
joan53
Data Quality: 2 stars
  • Gender: F
  • Age: 54y
  • Duration: 52 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
12 weeks ago
I am: vg
I have:
Epilepsy

See joan53's full Topiramate history

Dec 12, 2016 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I was Actually put on Topamax for my epilepsy. Controlling my headaches was the best side effect from a medication that I ever experienced. But I still find that getting a good nights sleep and trying my best to eat healthy helps a lot.
Cost: < $25 monthly
Side effects: Fingers Tingling

Jan 7, 2011 (Started Jan 01, 2005)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Effectiveness
    Moderate (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Side effects: Fingers Tingling

Mar 1, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Topamax has been a very good for me. When I first went onit it was just to controll seizures, but then I started having cluster headaches it was increased . I do my very best not to miss a dose of medication. I also try to get to know the people at the pharmacy(they know me by name) it helps me when I hve any probs.
Side effects: Fingers Tingling

  • 0 helpful marks
Seclorum
87330 thumb
Seclorum
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See Seclorum's full Topiramate history

Aug 18, 2016 (Started Jun 12, 2016)

  • Effectiveness
    Major (for Headaches)
  • Side effects
    Moderate (Frequent urination)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks
scorpio1975
34967 thumb
scorpio1975
Gender: F
Data Quality: 3 stars
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: Little
external_stress: All
Stickman: all
Description:F41y
FM:27y Dx
I am: vb
I have:
Fibromyalgia

See scorpio1975's full Topiramate history

May 9, 2016 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Migraine headaches)
  • Effectiveness
    Moderate (for Cluster Headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks
Wavewatcher
54429 thumb
Wavewatcher
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See Wavewatcher's full Topiramate history

Sep 7, 2015 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Headaches)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Cost: < $25 monthly

Jul 28, 2010 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Medication are set up a week in advance for 3 time a day. Had additional benefit of weight lose over a year of from 315 to 240. Quit smoking and put on 20 pounds and thyroid went out of wack and added another 25 lbs.
Cost: < $25 monthly

  • 0 helpful marks
Mirrianda
16480 thumb
Mirrianda
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: Most
external_stress: Some
Stickman: all
Description:F49y
FM:7y Dx
CFS:24y Dx
I am: g
I have:
Fibromyalgia

See Mirrianda's full Topiramate history

Apr 15, 2015 (Started Apr 15, 2015)

  • Effectiveness
    Major (for Migraine headaches)
  • Effectiveness
    Major (for Emotional stability)
  • Side effects
    Mild (Drowsiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: If you have migraines this has worked great for mine I have not had one for years I also needed to lose weight and I have lost weight on this medication it is not a weight loss drug I was already way over weight this just helped
Cost: < $25 monthly

  • 0 helpful marks
carlo
Portrait default thumb
carlo
Data Quality: 2 stars
  • Gender: M
  • Age: 73y
  • Duration: 41 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
111 weeks ago
I am: n
I have:
Epilepsy

See carlo's full Topiramate history

Jan 4, 2015 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: this has been a "miracle drug" for me no seizures.
Cost: < $25 monthly

Jul 28, 2013 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: take as directed. no seizures.
Cost: < $25 monthly

Apr 13, 2010 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: none
Cost: < $25 monthly

Mar 11, 2010 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: no seizures for the past 11 months.
Cost: < $25 monthly

Nov 19, 2009 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: it really worked for me. reduced my seizures to a few per yr.
Cost: < $25 monthly

  • 1 helpful mark
Last updated:
Showing 10 of 113 patient evaluations for Topiramate