110 patient evaluations for Topiramate

844 members have decided to share their profiles only with other members of PatientsLikeMe.

Srs2388
85822 thumb
Srs2388
Data Quality: 1 star
  • Gender: M
  • Age: 28y
  • Duration: ? yrs
Quality of life:
  • Mental: Severe
  • Physical: Severe
2 seizures
this week
I am: b
I have:
Epilepsy

See Srs2388's full Topiramate history

Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks
joan53
21309 thumb
joan53
Data Quality: 2 stars
  • Gender: F
  • Age: 53y
  • Duration: 52 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
4 weeks ago
I am: vg
I have:
Epilepsy

See joan53's full Topiramate history

Dec 12, 2016 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I was Actually put on Topamax for my epilepsy. Controlling my headaches was the best side effect from a medication that I ever experienced. But I still find that getting a good nights sleep and trying my best to eat healthy helps a lot.
Cost: < $25 monthly
Side effects: Fingers Tingling

Jan 7, 2011 (Started Jan 01, 2005)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Effectiveness
    Moderate (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Side effects: Fingers Tingling

Mar 1, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Topamax has been a very good for me. When I first went onit it was just to controll seizures, but then I started having cluster headaches it was increased . I do my very best not to miss a dose of medication. I also try to get to know the people at the pharmacy(they know me by name) it helps me when I hve any probs.
Side effects: Fingers Tingling

  • 0 helpful marks
Seclorum
87330 thumb
Seclorum
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See Seclorum's full Topiramate history

Aug 18, 2016 (Started Jun 12, 2016)

  • Effectiveness
    Major (for Headaches)
  • Side effects
    Moderate (Frequent urination)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks
scorpio1975
34967 thumb
scorpio1975
Gender: F
Data Quality: 1 star
Pain: All
Fatigue: All
Sleep: Most
Stiffness: All
function: None
external_stress: All
Stickman: all
Description:F41y
FM:27y Dx
I am: vb
I have:
Fibromyalgia

See scorpio1975's full Topiramate history

May 9, 2016 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Migraine headaches)
  • Effectiveness
    Moderate (for Cluster Headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks
Wavewatcher
54429 thumb
Wavewatcher
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Wavewatcher's full Topiramate history

Sep 7, 2015 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Headaches)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Cost: < $25 monthly

Jul 28, 2010 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Medication are set up a week in advance for 3 time a day. Had additional benefit of weight lose over a year of from 315 to 240. Quit smoking and put on 20 pounds and thyroid went out of wack and added another 25 lbs.
Cost: < $25 monthly

  • 0 helpful marks
Mirrianda
16480 thumb
Mirrianda
Gender: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: Most
external_stress: Some
Stickman: all
Description:F49y
FM:6y Dx
CFS:23y Dx
I am: g
I have:
Fibromyalgia

See Mirrianda's full Topiramate history

Apr 15, 2015 (Started Apr 15, 2015)

  • Effectiveness
    Major (for Migraine headaches)
  • Effectiveness
    Major (for Emotional stability)
  • Side effects
    Mild (Drowsiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: If you have migraines this has worked great for mine I have not had one for years I also needed to lose weight and I have lost weight on this medication it is not a weight loss drug I was already way over weight this just helped
Cost: < $25 monthly

  • 0 helpful marks
carlo
Portrait default thumb
carlo
Data Quality: 2 stars
  • Gender: M
  • Age: 73y
  • Duration: 41 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
103 weeks ago
I am: n
I have:
Epilepsy

See carlo's full Topiramate history

Jan 4, 2015 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: this has been a "miracle drug" for me no seizures.
Cost: < $25 monthly

Jul 28, 2013 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: take as directed. no seizures.
Cost: < $25 monthly

Apr 13, 2010 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: none
Cost: < $25 monthly

Mar 11, 2010 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: no seizures for the past 11 months.
Cost: < $25 monthly

Nov 19, 2009 (Started Oct 10, 1988)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: it really worked for me. reduced my seizures to a few per yr.
Cost: < $25 monthly

  • 1 helpful mark
johannarothman
68116 thumb
johannarothman
Sex: F
Data Quality: 3 stars
Bulbar: none
Arms: none
Chest: none
Legs: mild
I am: n
I have:
PLS

See johannarothman's full Topiramate history

Dec 31, 2014 (Started Jan 15, 2011)

  • Effectiveness
    Moderate (for Oscillopsia)
  • Side effects
    Moderate (Pseudobulbar affect)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
johannarothman
68116 thumb
johannarothman
Sex: F
Data Quality: 3 stars
Bulbar: none
Arms: none
Chest: none
Legs: mild
I am: n
I have:
PLS

See johannarothman's full Topiramate history

Dec 31, 2014 (Started Feb 01, 2011)

  • Effectiveness
    Slight (for Dizziness)
  • Side effects
    Moderate (pins and needles, Dry mouth, Pins and needles)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily

Dec 20, 2014 (Started Feb 01, 2011)

  • Effectiveness
    None (for Dizziness)
  • Side effects
    Mild (pins and needles, Dry mouth, Pins and needles)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily

Apr 14, 2013 (Started Feb 01, 2011)

  • Effectiveness
    Major (for Dizziness)
  • Side effects
    Mild (pins and needles, Dry mouth, Pins and needles)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 400 mg Daily
Advice & Tips: Always make sure you titrate up slowly with this medication. If you come down, titrate down. Never jump up or down.

  • 0 helpful marks
tootse
73164 thumb
tootse
Data Quality: 0 stars
  • Gender: F
  • Age: 51y
  • Duration: 36 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Moderate
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
78 weeks ago
I am: g
I have:
Epilepsy

See tootse's full Topiramate history

May 19, 2014 (Started Jul 29, 2005)

  • Effectiveness
    Slight (for Epilepsy)
  • Side effects
    Moderate (Hair loss, hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 600 mg Daily
Advice & Tips: after trying 4 different kinds of seizure med gained 70 lbs I asked to go back to Dilantin . now they feel other meds or symptoms may be counteracting with my Dilantin from working , trying me on metformin for sugar to help with counteractions .
Cost: < $25 monthly

Mar 8, 2014 (Started Jul 29, 2005)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Mild (Hair loss, hair loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Advice & Tips: I have to take topomax reg DAW because the generic topomax causes me to have , pedimal seizures . No matter what the dr, or insurance co. tells you , the generic is not as safe , always found out many times with other meds .
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 110 patient evaluations for Topiramate