45 patient evaluations for Vitamin E

164 members have decided to share their profiles only with other members of PatientsLikeMe.

colinmoss
2016 thumb
colinmoss
Sex: M
Data Quality: 1 star
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See colinmoss's full Vitamin E history

Oct 12, 2014 (Started Feb 28, 2002)

  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Mild (Diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: I have ALS with both upper and lower neurone damage yet my progression has been slow having survived 14 years from first symptoms and still have quality of life. The only side effect was occasional diahoria which I think was natures way of saying you have taken a bit too much. I would recommend people to take it as soon as possible after diagnosis. It needs to be natural vitamin-E. Look at Dr Carsten Hager and vitamin E on the internet to find out why I take it.
Cost: < $25 monthly

Jan 21, 2010 (Started Feb 28, 2002)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: Build up to the full dose over 2-3 weeks. The only side effect I have had is occasional diahorea which seems to be the body's way of telling you you have taken too much. I would advise plwMND to take it as early as possible (two thirds dose mid am and remaining 1/3 mid p.m)
Cost: < $25 monthly

  • 0 helpful marks
whatacall
67402 thumb
whatacall
Gender: F
Data Quality: 1 star
Pain: Little
Fatigue: Little
Sleep: Some
Stiffness: Little
function: Some
external_stress: Little
Stickman: little
Description:F55y
FM:4y Dx
I am: g
I have:
Fibromyalgia

See whatacall's full Vitamin E history

Jun 14, 2014 (Started Apr 15, 2007)

  • Effectiveness
    Slight (for Support heart health)
  • Effectiveness
    Moderate (for Support immune health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

  • 0 helpful marks
browncat87
58847 thumb
browncat87
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See browncat87's full Vitamin E history

Apr 15, 2012 (Started Mar 18, 2011)

  • Effectiveness
    None (for General health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 intl units Daily
Cost: $25-49 monthly

  • 0 helpful marks
faeroe347
33174 thumb
faeroe347
Sex: M
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: g
I have:
ALS

See faeroe347's full Vitamin E history

Feb 1, 2012 (Started Oct 07, 1980)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Moderate (Itching)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2000 intl units Daily
Advice & Tips: This is a vitamin supplement which I easily swallowed as gel capsules, with milk. I stopped only because I suspect it contributes to my itchiness.
Cost: < $25 monthly

  • 0 helpful marks
janik
3694 thumb
janik
Sex: F
Data Quality: 3 stars
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
I am: n
I have:
PLS

See janik's full Vitamin E history

Jan 31, 2012 (Started Sep 27, 1998)

  • Effectiveness
    Can’t tell (for General health)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 400 intl units Daily
Advice & Tips: I read that excessive vitamin E can worsen osteoporosis so I have quit taking the supplemental 400 iu daily for a year to see what affect it migh have on my bone density.
Cost: < $25 monthly

Dec 1, 2008 (Started Sep 27, 1998)

  • Effectiveness
    Can’t tell (for General health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 intl units Daily
Cost: < $25 monthly

  • 0 helpful marks
scart
106 thumb
scart
Sex: M
Data Quality: 2 stars
Bulbar: mild
Arms: moderate
Chest: mild
Legs: none
I am: g
I have:
ALS

See scart's full Vitamin E history

Dec 15, 2011 (Started Dec 01, 2005)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 800 intl units Daily

  • 0 helpful marks
Koendv
14514 thumb
Koendv
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
I am: vg
I have:
PMA

See Koendv's full Vitamin E history

Oct 17, 2011 (Started Feb 27, 2008)

  • Effectiveness
    None (for PMA (Progressive Muscular Atrophy))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 800 intl units Daily
Cost: < $25 monthly

Oct 1, 2009 (Started Feb 27, 2008)

  • Effectiveness
    None (for PMA (Progressive Muscular Atrophy))
  • side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Tom M
3089 thumb
Tom M
Sex: M
Data Quality: 2 stars
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
I am: n
I have:
ALS

See Tom M's full Vitamin E history

Oct 1, 2011 (Started Feb 20, 2008)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Dosage: 800 intl units Daily

  • 0 helpful marks
Navy Nurse
3557 thumb
Navy Nurse
Sex: F
Data Quality: 1 star
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
I have:
ALS

See Navy Nurse's full Vitamin E history

Aug 13, 2011 (Started Oct 18, 2001)

  • Effectiveness
    Slight (for General health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 intl units Daily

Nov 17, 2010 (Started Oct 18, 2001)

  • Effectiveness
    Moderate (for General health)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 intl units Daily

  • 0 helpful marks
Ziz
7225 thumb
Ziz
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: n
I have:
ALS

See Ziz's full Vitamin E history

Jun 29, 2011 (Started Nov 13, 2008)

  • Effectiveness
    Can’t tell (for Increase effect of another treatment)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1000 mg Daily

  • 0 helpful marks
Last updated:
Showing 10 of 45 patient evaluations for Vitamin E