131 patient evaluations for Carbidopa-Levodopa

1,113 members have decided to share their profiles only with other members of PatientsLikeMe.

Napiejoe
30221 thumb
Napiejoe
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Napiejoe's full Carbidopa-Levodopa history

Nov 10, 2016 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25-250 mg Five times daily
Cost: $25-49 monthly

May 26, 2015 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 25 mg-250 mg Daily
Cost: < $25 monthly

May 19, 2013 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: I use a talking alarm watch to help me take my medication on time.
Cost: < $25 monthly

May 24, 2009 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: Take your pills on time
Cost: $25-49 monthly

  • 0 helpful marks
Tulabee
14440 thumb
Tulabee
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Tulabee's full Carbidopa-Levodopa history

Sep 23, 2016 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: Have stopped this and have been on Rytary since about August 2015
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia)

Oct 15, 2015 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: Rytary is better. It gives me a much smoother delivery.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia)

Feb 1, 2015 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: On the average, it is best to take 0.75 tablet every 4.00 to 4.25 hrs. If I am doing something physical like a long walk or if I have to keep moving my whole body for 2-3 hours, then 1.00 tablet. Do not do this if sitting at a desk-dyskinesia.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia)

Nov 8, 2014 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: It's the fall/winter season, and I made a med change. IT coincides with the daylight getting shorter. About mid-to late Sept I increase the Cymbalta(depression) from 60mg to 120mg. This seems to affect how the L-dopa is metabolized. For a few weeks I was taking 1 whole tablet (100/25), every 5-6 hrs. The 0.75 dose wasn't doing its work. I also start on modafinil for alertness. Due to Rx screw up I wasn't able to start in Oct, but had to start in Nov. I was maintaining, but now I feel better with the modafinil. Like someone turning up the TV brightness switch just a little bit. But now I think I am very sensitive to the amount of L-dopa. I will work it out.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia)

Apr 18, 2013 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost: < $25 monthly
Side effects: Jerky movements (dyskinesia)

  • 0 helpful marks
MossyRock
56174 thumb
MossyRock
Sex: M
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See MossyRock's full Carbidopa-Levodopa history

Jun 11, 2016 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (Muscle and joint pain, Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 12 x 25-100 mg Five times daily
Advice & Tips: During a month long stay in hospital I did not have a problem with the nausea and vomiting.
Cost: $25-49 monthly

Jun 30, 2013 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: In spite of the recommendation of taking the pills an hour before eating, I take it with food.
Cost: $25-49 monthly

  • 0 helpful marks
Trainman
6519 thumb
Trainman
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: none
I am: g
I have:
Parkinson's

See Trainman's full Carbidopa-Levodopa history

May 30, 2016 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (Jerky movements (dyskinesia), On to off fluctuations worsening, Balance problems, Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25-100 mg Five times daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Effectiveness
    Slight (for Tremor(s))
  • Side effects
    Mild (Nausea, Sleep problems)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

  • 0 helpful marks
Penni
7172 thumb
Penni
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
I am: n
I have:
PD

See Penni's full Carbidopa-Levodopa history

Apr 24, 2016 (Started Jun 30, 2012)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (Involuntary movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I look and feel better taking the meds.  My hand writing is much better.  I don't stare as much.  I move better.
Cost: < $25 monthly

  • 0 helpful marks
Bullydawg3
2212 thumb
Bullydawg3
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See Bullydawg3's full Carbidopa-Levodopa history

Mar 23, 2016 (Started Jul 16, 2014)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
rachenitsa
16686 thumb
rachenitsa
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
PD

See rachenitsa's full Carbidopa-Levodopa history

Jan 13, 2016 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for Balance problems)
  • Side effects
    Mild (Jerky movements (dyskinesia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Jan 10, 2009 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take as directed and call the doctor f there are any problems
Cost: < $25 monthly

Dec 14, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: take at least 1/2 hr before having a meal with protein - or wait about an hour after a large protein meal ....If Im in need of an extra boost I take with a high sugar beverage - adding sugar to water works just as well
Cost: < $25 monthly

Oct 20, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 19, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Aug 18, 2008 (Started Nov 25, 2006)

  • Effectiveness
    Major (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take it on time on a regular schedule that works best with yoour activity level in order to get maximum benefit
Cost: < $25 monthly

  • 1 helpful mark
Maribeth
7258 thumb
Maribeth
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See Maribeth's full Carbidopa-Levodopa history

Jan 5, 2016 (Started Nov 01, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 10 mg-100 mg Daily
Advice & Tips: Take it as long as you can
Cost: < $25 monthly

May 21, 2015 (Started Nov 01, 2013)

  • Effectiveness
    Can’t tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 10 mg-100 mg Daily
Advice & Tips: iDK.
Cost: < $25 monthly

  • 1 helpful mark
soccerkid300
Portrait default thumb
soccerkid300
Sex: M
Data Quality: 1 star
On
Mouth/throat: none
Arms: none
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See soccerkid300's full Carbidopa-Levodopa history

Dec 15, 2015 (Started May 15, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
daddytom
5757 thumb
daddytom
Sex: M
Data Quality: 3 stars
On
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
PD

See daddytom's full Carbidopa-Levodopa history

Nov 4, 2015 (Started Aug 02, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 tablet(s) Four times daily

May 31, 2015 (Started Aug 02, 2013)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 tablet(s) Four times daily

  • 0 helpful marks
Last updated:
Showing 10 of 131 patient evaluations for Carbidopa-Levodopa