116 patient evaluations for Carbidopa-Levodopa

YOPD Warrior Princess
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YOPD Warrior Princess
Sex: F
Data Quality: 0 stars
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See YOPD Warrior Princess's full Carbidopa-Levodopa history

Dec 30, 2009 (Started )

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Advice & Tips: When taken alone, one dose lasts about an hour or so. When taken with Comtan, "ON" period is extended up to 2 - 2.5 hours. Needs to be taken on empty stomach. Proteins, fats, or a full stomach (even a moderately full feeling) disrupts effectiveness. Rate if absorption is decreased with presence of food in stomach or "ON" period is prevented altogether. Usually takes 40-50 minutes for a dose to kick in. Can be speeded up by disolving tablet in water first or by taking with a cola beverage. Unexpected benefits are when I am "ON", others have a hard time keeping up with me.

  • 7 helpful marks
wishpeace
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wishpeace
Sex: F
Data Quality: 0 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See wishpeace's full Carbidopa-Levodopa history

Mar 16, 2010 (Started Jul 06, 2004)

  • Perceived effectiveness for Tremor in hands: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: This drug, along with Mirapex, has controlled the tremor in my hands....get a bit of tremor rarely when really cold or on down times of meds. Dr. just changed me to extended release med due to some "twitching" i have been getting which he thinks may be related to too much of med. I was taking 2 (25/100) pills 4x daily. Now with extended release, which is 50/200, i will take 1 3x day. Will see if this helps.
Cost: < $25 monthly

Jun 7, 2009 (Started Jul 06, 2004)

  • Perceived effectiveness for Tremor in hands: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: taking generic of sinemet and using insurance is much less costly. this med was increased about 6 mos. ago due to slight increase in tremor and start of tremor in other hand. This med along with Mirapex controls my tremors .... off times are early mornings when first arising.
Cost: < $25 monthly

  • 2 helpful marks
TomBerdine
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TomBerdine
Sex: M
Data Quality: 2 stars
Off
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See TomBerdine's full Carbidopa-Levodopa history

Nov 13, 2010 (Started Dec 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Perceived effectiveness for Slowness: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: Have used some form of LDOPA since day one in 2000. Have used it in the following forms: 1. SINEMET 25/100 up too 8x daily 2. SINEMET CR 50/20 up to 6X daily 3. Generic LDOPA 25/100 *DR Jill changed this order to brand name only 4. Generic LDOPA CR 50/200 *DR Jill changed this order to brand name only 5. Neupro (Patch) I did very well on the patch and then they pulled it off the market. 6. PARCOPA 25/100
Cost: < $25 monthly

Aug 1, 2010 (Started Dec 01, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Perceived effectiveness for Slowness: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
rachenitsa
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rachenitsa
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See rachenitsa's full Carbidopa-Levodopa history

Jan 10, 2009 (Started Nov 25, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take as directed and call the doctor f there are any problems
Cost: < $25 monthly

Dec 14, 2008 (Started Nov 25, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: take at least 1/2 hr before having a meal with protein - or wait about an hour after a large protein meal ....If Im in need of an extra boost I take with a high sugar beverage - adding sugar to water works just as well
Cost: < $25 monthly

Oct 20, 2008 (Started Nov 25, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Sep 19, 2008 (Started Nov 25, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 x 25 mg-100 mg Daily
Cost: < $25 monthly

Aug 18, 2008 (Started Nov 25, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: Take it on time on a regular schedule that works best with yoour activity level in order to get maximum benefit
Cost: < $25 monthly

  • 1 helpful mark
Marshview
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Marshview
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See Marshview's full Carbidopa-Levodopa history

Jan 22, 2012 (Started Oct 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia

Dec 20, 2010 (Started Oct 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Very
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: Thus far, I have had done of the Dyskinesia that I feared. However I have read that it takes up to 4 years to get these uncontrollable body ticks.
Cost: < $25 monthly
Side effects: Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia

Mar 3, 2010 (Started Oct 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: It is like a night and day improvement. I wish that I had started on it earlier. Many of my symptoms have beem minimized.
Cost: < $25 monthly
Side effects: Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia

Feb 4, 2010 (Started Oct 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: Since beginning Sinemet in 10-09 I can tell a great improvement. When I was only on Mirapex and Azilect, I have many PD symptoms that were not under control. The medicine would only work for about 3 months and then the symptoms yould return. Now that I am on Sinemet, it is like a day and night improvement. The sinemet has almost made the symptoms disappear; something that the Mirapex and Azilect did not do.
Cost: < $25 monthly
Side effects: Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia

Nov 14, 2009 (Started Oct 21, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: I started taking Sinemet kickingi and dragging. I had been on Azilect andn Mirapex for over 18 months. My PD symptoms were increasing: the arm tremors were increasing, walking was turning back into shuffling, I felt confused, etc. I have been on Sinemet for about 3 weeks and I must admit that I haven't felt this good in years. I am talking better, less mumbling, I am actually moving more quickly.
Cost: < $25 monthly
Side effects: Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia

  • 1 helpful mark
browncat87
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browncat87
Sex: F
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: none
I am: n
I have:
Parkinson's

See browncat87's full Carbidopa-Levodopa history

Dec 21, 2010 (Started Jun 07, 2006)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Cost: < $25 monthly
Side effects: Dyskinesia

May 1, 2010 (Started Jun 07, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: suddenly became more dyskinetic and realized it was important to cut back on amount
Cost: < $25 monthly
Side effects: Dyskinesia

Feb 18, 2009 (Started Jun 07, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 800 mg Daily
Cost: < $25 monthly
Side effects: Dyskinesia

Jan 17, 2009 (Started Jun 07, 2006)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: Not at all
Dosage: 800 mg Daily
Cost: < $25 monthly
Side effects: Dyskinesia

Aug 19, 2008 (Started Jun 07, 2006)

  • Perceived effectiveness for Other: Major
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: 800 mg Daily
Advice & Tips: use exactly as directed to avoid side effects
Cost: < $25 monthly
Side effects: Dyskinesia

  • 1 helpful mark
EdSikov
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EdSikov
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See EdSikov's full Carbidopa-Levodopa history

Sep 18, 2011 (Started Aug 18, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 x 25 mg-100 mg Daily

  • 1 helpful mark
toby
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toby
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See toby's full Carbidopa-Levodopa history

May 15, 2012 (Started Nov 23, 2010)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 4.5 x 25 mg-100 mg Daily
Advice & Tips: I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
Cost: < $25 monthly

  • 1 helpful mark
SirShake
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SirShake
Sex: M
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
I have:
Parkinson's

See SirShake's full Carbidopa-Levodopa history

Aug 25, 2009 (Started Sep 30, 2009)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Advice & Tips: Try to close my eyes for at least 10 - 15 mins when I feel sleepy.
Cost: $50-99 monthly
Side effects: Sleepiness, Sleep problems

  • 1 helpful mark
Nannylittlegoat
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Nannylittlegoat
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See Nannylittlegoat's full Carbidopa-Levodopa history

Sep 22, 2010 (Started Sep 02, 2007)

  • Perceived effectiveness for slurred speech & walking like a drunk: Moderate
  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 5 g Daily
Advice & Tips: We have tried to take this time release sinament as one pill, one and half pill and one and one fourth pill. My energy level was definately effected by the amount I took. One and one fourth is best. Too muchmade me nervous and upset, too little made me lethargic.
Cost: < $25 monthly
Side effects: nervous energy, Toe curling

Jan 6, 2010 (Started Sep 02, 2007)

  • Perceived effectiveness for slurred speech & walking like a drunk: Slight
  • Perceived effectiveness for Parkinson's Disease: Slight
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 25 mg Daily
Advice & Tips: Be sure to check all drugs, even those not Parkinon's
Cost: < $25 monthly
Side effects: nervous energy, Toe curling

  • 1 helpful mark
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