28 patient evaluations for Carbidopa-Levodopa with a adherence rating of Usually

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Trainman
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Trainman
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: none
I am: g
I have:
Parkinson's

See Trainman's full Carbidopa-Levodopa history

May 30, 2016 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    Moderate (On to off fluctuations worsening, Balance problems, Dizziness, Nausea, Dyskinesia, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25-100 mg Five times daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    Mild (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • side effects
    Moderate (Dizziness, Nausea, Sleep problems, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Effectiveness
    Slight (for Tremor(s))
  • side effects
    Mild (Nausea, Sleep problems)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

  • 0 helpful marks
reikihh
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reikihh
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See reikihh's full Carbidopa-Levodopa history

Apr 24, 2016 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: The carbidopa/levodopa works the best for me to lessen the symptoms of PD. Other Rx drugs I tried didn't work as well or they worked well for symptoms but caused syncope or near syncope and left me feeling drained. It took many months to find the right med & the right dose. I do realize that carb/levo may cause tardive dyskinesia before it's over. But right now it is the best I can do & I want to enjoy it while I can. I can do quite a bit still . I owe that to the carb/levo.
Cost: < $25 monthly

Nov 26, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: My niece showed me how to set my iPhone clock to have a timer go off every day at 1pm to remind me to take my mid day dose of carb/levo & pramipexole. It works!!! It has worked. I have not missed a day since using the timer. I now am aware of "wearing off" of the meds. I never noticed it until a few months ago. At my last appt with Neurologist he increased my carb/levo to 1 1/2 TID. He said to increase gradually. I haven't increased just yet because I want to be firmly on the previous dose first which I am with this timer helping me. Soon I will try the new increase.
Cost: < $25 monthly

Jun 5, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: Now I am taking a new dose-1 TID-gradually titrating up from 1/2 TID. I still miss my noon dose although not as often. It is difficult remembering. I do notice the increase in dose is helping me stand up straighter longer & within about an hour of taking my dose. It is a pain in the neck to take 3 x a day but it improves my symptoms.
Cost: < $25 monthly

Feb 11, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Major (for RLS (Restless Legs Syndrome))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I no longer am seeing any improvement. Maybe I have just gotten used to it & no longer notice it. Maybe it is time to increase again.
Cost: < $25 monthly

Nov 10, 2014 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
Bullydawg3
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Bullydawg3
Sex: F
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See Bullydawg3's full Carbidopa-Levodopa history

Mar 23, 2016 (Started Jul 16, 2014)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
dixie pixie
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dixie pixie
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See dixie pixie's full Carbidopa-Levodopa history

Aug 28, 2015 (Started Jun 15, 2008)

  • Effectiveness
    None (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
patsfan
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patsfan
Sex: M
Data Quality: 1 star
Off
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See patsfan's full Carbidopa-Levodopa history

Aug 1, 2015 (Started Apr 20, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 6.5 x 25 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
archaeologist
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archaeologist
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See archaeologist's full Carbidopa-Levodopa history

Dec 19, 2014 (Started May 15, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly

Oct 17, 2014 (Started May 15, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: Timing is important, I is taking them every 8 hours and that is bad. Now I'm taking them about every six hours during the day and I don't get tired and have cramps in the evening. I still wake up OK. I use a pill box, 7x3 to help remember.
Cost: $25-49 monthly

  • 0 helpful marks
parkinohio
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parkinohio
Sex: M
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See parkinohio's full Carbidopa-Levodopa history

Oct 22, 2013 (Started Nov 15, 2005)

  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 6 x 25 mg-250 mg Daily
Cost: $25-49 monthly

Jan 18, 2013 (Started Nov 15, 2005)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 6 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
b4now
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b4now
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: g
I have:
MS

See b4now's full Carbidopa-Levodopa history

Jun 15, 2012 (Started Apr 01, 2011)

  • Effectiveness
    Slight (for RLS (Restless Legs Syndrome))
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 2 x 25 mg-100 mg Daily

  • 0 helpful marks
toby
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toby
Sex: F
Data Quality: 1 star
On
Mouth/throat: none
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See toby's full Carbidopa-Levodopa history

May 15, 2012 (Started Nov 23, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • side effects
    Mild (Nausea)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 4.5 x 25 mg-100 mg Daily
Advice & Tips: I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
Cost: < $25 monthly

  • 1 helpful mark
Shaky Paws Grampa
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Shaky Paws Grampa
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Shaky Paws Grampa's full Carbidopa-Levodopa history

Apr 26, 2012 (Started Jul 15, 2009)

  • Effectiveness
    Major (for Parkinson's Disease)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: 1. Use trial and error to find best frequency for you. 2. Do not withhold medication-there is no benefit to doing this and you could end up speeding the progression of the disease. 3. Clearly the most effective PD medication for me.
Cost: < $25 monthly

  • 0 helpful marks
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Showing 10 of 28 patient evaluations for Carbidopa-Levodopa