27 patient evaluations for Carbidopa-Levodopa with a adherence rating of Usually

reikihh
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reikihh
Sex: F
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See reikihh's full Carbidopa-Levodopa history

Nov 26, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side Effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: My niece showed me how to set my iPhone clock to have a timer go off every day at 1pm to remind me to take my mid day dose of carb/levo & pramipexole. It works!!! It has worked. I have not missed a day since using the timer. I now am aware of "wearing off" of the meds. I never noticed it until a few months ago. At my last appt with Neurologist he increased my carb/levo to 1 1/2 TID. He said to increase gradually. I haven't increased just yet because I want to be firmly on the previous dose first which I am with this timer helping me. Soon I will try the new increase.
Cost: < $25 monthly

Jun 5, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Can’t tell (for RLS (Restless Legs Syndrome))
  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    Mild (Headaches, headache)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: Now I am taking a new dose-1 TID-gradually titrating up from 1/2 TID. I still miss my noon dose although not as often. It is difficult remembering. I do notice the increase in dose is helping me stand up straighter longer & within about an hour of taking my dose. It is a pain in the neck to take 3 x a day but it improves my symptoms.
Cost: < $25 monthly

Feb 11, 2015 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Effectiveness
    Major (for RLS (Restless Legs Syndrome))
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I no longer am seeing any improvement. Maybe I have just gotten used to it & no longer notice it. Maybe it is time to increase again.
Cost: < $25 monthly

Nov 10, 2014 (Started Jun 30, 2004)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
dixie pixie
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dixie pixie
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See dixie pixie's full Carbidopa-Levodopa history

Aug 28, 2015 (Started Jun 15, 2008)

  • Effectiveness
    None (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
patsfan
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patsfan
Sex: M
Data Quality: 2 stars
Off
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See patsfan's full Carbidopa-Levodopa history

Aug 1, 2015 (Started Apr 20, 2011)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 6.5 x 25 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
archaeologist
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archaeologist
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: b
I have:
Parkinson's

See archaeologist's full Carbidopa-Levodopa history

Dec 19, 2014 (Started May 15, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly

Oct 17, 2014 (Started May 15, 2013)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: Timing is important, I is taking them every 8 hours and that is bad. Now I'm taking them about every six hours during the day and I don't get tired and have cramps in the evening. I still wake up OK. I use a pill box, 7x3 to help remember.
Cost: $25-49 monthly

  • 0 helpful marks
Trainman
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Trainman
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: none
I am: g
I have:
Parkinson's

See Trainman's full Carbidopa-Levodopa history

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side Effects
    Moderate (Sleep problems, Dizziness, Nausea, Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    Mild (Sleep problems, Dizziness, Nausea, Fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Tremor(s))
  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side Effects
    Mild (Sleep problems, Dizziness, Nausea, Fatigue)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Effectiveness
    Major (for Tremor(s))
  • Side Effects
    Moderate (Sleep problems, Dizziness, Nausea, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's Disease)
  • Effectiveness
    Slight (for Tremor(s))
  • Side Effects
    Mild (Sleep problems, Nausea)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: Dizziness, Sleep problems, Nausea, Fatigue

  • 0 helpful marks
parkinohio
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parkinohio
Sex: M
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See parkinohio's full Carbidopa-Levodopa history

Oct 22, 2013 (Started Nov 15, 2005)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 6 x 25 mg-250 mg Daily
Cost: $25-49 monthly

Jan 18, 2013 (Started Nov 15, 2005)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 6 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
b4now
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b4now
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: g
I have:
MS

See b4now's full Carbidopa-Levodopa history

Jun 15, 2012 (Started Apr 01, 2011)

  • Effectiveness
    Slight (for RLS (Restless Legs Syndrome))
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 2 x 25 mg-100 mg Daily

  • 0 helpful marks
toby
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toby
Sex: F
Data Quality: 1 star
On
Mouth/throat: none
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See toby's full Carbidopa-Levodopa history

May 15, 2012 (Started Nov 23, 2010)

  • Effectiveness
    Moderate (for Parkinson's Disease)
  • Side Effects
    Mild (Nausea)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 4.5 x 25 mg-100 mg Daily
Advice & Tips: I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
Cost: < $25 monthly

  • 1 helpful mark
Shaky Paws Grampa
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Shaky Paws Grampa
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: none
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See Shaky Paws Grampa's full Carbidopa-Levodopa history

Apr 26, 2012 (Started Jul 15, 2009)

  • Effectiveness
    Major (for Parkinson's Disease)
  • Side Effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: 1. Use trial and error to find best frequency for you. 2. Do not withhold medication-there is no benefit to doing this and you could end up speeding the progression of the disease. 3. Clearly the most effective PD medication for me.
Cost: < $25 monthly

  • 0 helpful marks
excalibur212
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excalibur212
Sex: F
Data Quality: 1 star
Off
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See excalibur212's full Carbidopa-Levodopa history

Jul 14, 2011 (Started Apr 25, 2011)

  • Effectiveness
    Can’t tell (for Parkinson's Disease)
  • Side Effects
    Mild
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-100 mg Daily

  • 0 helpful marks
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Showing 10 of 27 patient evaluations for Carbidopa-Levodopa