105 patient evaluations for Natalizumab taken for the purpose of 'multiple sclerosis'

896 members have decided to share their profiles only with other members of PatientsLikeMe.

Apr 12, 2010 (Started Apr 02, 2007)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I take this monthly. I really have not noticed any change in my symptoms but last MRI had I was stable.

  • 2 helpful marks

Mar 28, 2010 (Started Nov 04, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have had no problems taking this medicine. the only annoyance is the one hour drive once a month to receive my injection. Any annoyance from the drive is negated by the outstanding effect this medicine has had for me. as of March 2010 (5 shots) I am no longer taking any of my other medicines. I have not has any single MS symptom and have actually felt more like what I felt like prior to MS. I just wish it would last forever so I will not have to be Dependant on medications again.
Cost: < $25 monthly

  • 2 helpful marks

Mar 13, 2010 (Started Oct 24, 2006)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Tysabri changed my life drastically to the good. Can't say enough good about it. I will never go back to doing shots.
Cost: < $25 monthly

Feb 22, 2010 (Started Oct 24, 2006)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I really like Tysabri. I had tried Copaxone and Refib. Once I started Tysabri, If I had known That Copaxone and Rebif made me feel as bad as I did I never would have started doing shots. Now I will never go back to doing shots.
Cost: < $25 monthly

  • 2 helpful marks

Mar 12, 2010 (Started Sep 19, 2008)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks

Feb 26, 2010 (Started Feb 02, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Much better option than the interferons in respect to side effects. I get a little boost from the drug for the first two weeks. I've been very happy with this medicine although it is a challenge to get it scheduled as a full time employee and it's challenging to keep up with the monitoring required due to the PML risk.
Cost: $200+ monthly

  • 1 helpful mark

Feb 15, 2010 (Started Feb 12, 2010)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: i am allergic.
Side effects: Sleepiness

Feb 12, 2010 (Started Feb 12, 2010)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild (Sleepiness)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: i got a rash 2 days later. a month later i got a blood test saying that i was allergic tysabri.
Side effects: Sleepiness

  • 1 helpful mark

Feb 2, 2010 (Started Feb 01, 2010)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Cost: < $25 monthly

Jan 14, 2009 (Started Feb 01, 2010)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I believe my MS is getting worse but still do feel the Tysabri is helping me.
Cost: < $25 monthly

  • 1 helpful mark

Jan 22, 2010 (Started )

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Back pain)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: I was barely able to walk before I started Tysabri. I tried most of the other tx's available prior to agreeing to try Tysabri. This is the bomb! I got my old life back! Yes, the side effects are bothersome, but not as bothersome as sitting in a chair all day, unable to get up. My veins are not very cooperative when it comes to the monthly infusions, but the tradeoff is huge. Be sure to get lab tests done often to avoid other problems, ie liver, vitamin D levels, ect.
Cost: $200+ monthly
Side effects: Back pain

  • 1 helpful mark

Dec 31, 2009 (Started Dec 11, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: I have just taken my 28th Tysarbri treatment on December 28, 2009. I am do ing great!
Cost: < $25 monthly

  • 0 helpful marks

Dec 29, 2009 (Started May 14, 2008)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Much better than the other MS treatments. Not having the issues with the side effects.
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 105 patient evaluations for Natalizumab