104 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis'

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yizbit
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yizbit
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See yizbit's full Natalizumab history

Mar 30, 2011 (Started Mar 17, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly
Side effects: Headaches

  • 0 helpful marks
DebbieBren
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DebbieBren
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See DebbieBren's full Natalizumab history

Mar 15, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Moderate (Whole body ache)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Tysabri was wonderful for my MS for two years, then I had a major reaction and neuro. suggested I stop the treatment.
Cost: < $25 monthly

Feb 1, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    Severe
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: Monthly

  • 0 helpful marks
Mary Beth
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Mary Beth
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: n
I have:
MS

See Mary Beth's full Natalizumab history

Jan 15, 2011 (Started Jan 18, 2010)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks
skedloe
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skedloe
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See skedloe's full Natalizumab history

Nov 28, 2010 (Started Nov 28, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Make sure to get tested for JCV antibodies and always report any adverse reactions and/or new symptoms immediately to your doctor.

  • 0 helpful marks
Oneida
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Oneida
Sex: M
Data Quality: 2 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Oneida's full Natalizumab history

Nov 11, 2010 (Started May 26, 2009)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    Moderate (Jerky movements (myoclonus))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: clicking noise in ears was very bothersome for my sleep
Cost: $50-99 monthly
Side effects: Jerky movements (myoclonus)

May 13, 2010 (Started May 26, 2009)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $50-99 monthly
Side effects: Jerky movements (myoclonus)

  • 0 helpful marks
Buddy'sMom
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Buddy'sMom
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: severe
I am: g
I have:
MS

See Buddy'sMom's full Natalizumab history

Nov 2, 2010 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: recommend - follow up with jcv tests
Cost: $25-49 monthly

  • 0 helpful marks
ylem
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ylem
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See ylem's full Natalizumab history

Oct 20, 2010 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Monthly

Sep 28, 2008 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly

  • 0 helpful marks
KwazyKelli
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KwazyKelli
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See KwazyKelli's full Natalizumab history

Sep 21, 2010 (Started Aug 19, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Severe (Weakness in hips, Weakness in left leg, Weakness in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal". Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Cost: < $25 monthly
Side effects: Weakness in hips, Weakness in left leg, Weakness in legs, Weakness in legs

  • 0 helpful marks
colgjs
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colgjs
Sex: M
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I have:
MS

See colgjs's full Natalizumab history

Sep 14, 2010 (Started Jul 08, 2010)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

  • 0 helpful marks
hank2555
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hank2555
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See hank2555's full Natalizumab history

Aug 20, 2010 (Started Oct 15, 2008)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    Severe (Vision problem due to fatigue heat and stress, Addiction, Loss of short term memory, Lose train of thought, Difficulty sleeping through night, Brain fog, Excessive daytime sleepiness (somnolence), Generalized weakness (asthenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Make sure that you have taken the new test to see if you have a chance of getting pml. I have been sick since October of 2009 with severe side effects if Tysabri. I had twenty four monthly treatments and shoul have had no more than 20 without a 6 month "vacation". From October through june of 2010 I spend most of every day in bed. I virtually have no memory of the eight months and was offered no assisatnce from Biogen or their partners it was as if I did not exist. every morning I awoke I felt blessed by GOD. I know that God healed me from the severe effects of Tysabri.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

Jan 11, 2010 (Started Oct 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Severe (Vision problem due to fatigue heat and stress, Addiction, Loss of short term memory, Lose train of thought, Difficulty sleeping through night, Brain fog, Excessive daytime sleepiness (somnolence), Generalized weakness (asthenia))
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: The treatment was effective for the first 23 monthly treatments. However the treatments have lost their effectiveness. I now have every side effect attributed to PML. I would not recommend this treatment side effects to dangerous to consider and fatal.I am still alive but been extremely sick since October of 3009, I understand a tet will soon be available that will tell if you can take Tysabri by testine for the antigens. positive test dont take negative test ok.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

  • 3 helpful marks
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