102 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis'

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Mary Beth
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Mary Beth
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: n
I have:
MS

See Mary Beth's full Natalizumab history

Jan 15, 2011 (Started Jan 18, 2010)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks
skedloe
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skedloe
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See skedloe's full Natalizumab history

Nov 28, 2010 (Started Nov 28, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Make sure to get tested for JCV antibodies and always report any adverse reactions and/or new symptoms immediately to your doctor.

  • 0 helpful marks
Oneida
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Oneida
Sex: M
Data Quality: 2 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Oneida's full Natalizumab history

Nov 11, 2010 (Started May 26, 2009)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    Moderate (Myoclonus)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: clicking noise in ears was very bothersome for my sleep
Cost: $50-99 monthly
Side effects: Myoclonus

May 13, 2010 (Started May 26, 2009)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $50-99 monthly
Side effects: Myoclonus

  • 0 helpful marks
Buddy'sMom
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Buddy'sMom
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: severe
I am: n
I have:
MS

See Buddy'sMom's full Natalizumab history

Nov 2, 2010 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: recommend - follow up with jcv tests
Cost: $25-49 monthly

  • 0 helpful marks
ylem
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ylem
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See ylem's full Natalizumab history

Oct 20, 2010 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Monthly

Sep 28, 2008 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly

  • 0 helpful marks
KwazyKelli
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KwazyKelli
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See KwazyKelli's full Natalizumab history

Sep 21, 2010 (Started Aug 19, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Severe (Weakness in hips, Weakness in left leg, Weakness in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal". Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Cost: < $25 monthly
Side effects: Weakness in hips, Weakness in left leg, Weakness in legs, Weakness in legs

  • 0 helpful marks
colgjs
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colgjs
Sex: M
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I have:
MS

See colgjs's full Natalizumab history

Sep 14, 2010 (Started Jul 08, 2010)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

  • 0 helpful marks
hank2555
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hank2555
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See hank2555's full Natalizumab history

Aug 20, 2010 (Started Oct 15, 2008)

  • Effectiveness
    None (for Multiple Sclerosis)
  • Side effects
    Severe (Vision problem due to fatigue heat and stress, Addiction, Loss of short term memory, Lose train of thought, Difficulty sleeping through night, Brain fog, Excessive daytime sleepiness (somnolence), Generalized weakness (asthenia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Make sure that you have taken the new test to see if you have a chance of getting pml. I have been sick since October of 2009 with severe side effects if Tysabri. I had twenty four monthly treatments and shoul have had no more than 20 without a 6 month "vacation". From October through june of 2010 I spend most of every day in bed. I virtually have no memory of the eight months and was offered no assisatnce from Biogen or their partners it was as if I did not exist. every morning I awoke I felt blessed by GOD. I know that God healed me from the severe effects of Tysabri.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

Jan 11, 2010 (Started Oct 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Severe (Vision problem due to fatigue heat and stress, Addiction, Loss of short term memory, Lose train of thought, Difficulty sleeping through night, Brain fog, Excessive daytime sleepiness (somnolence), Generalized weakness (asthenia))
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: The treatment was effective for the first 23 monthly treatments. However the treatments have lost their effectiveness. I now have every side effect attributed to PML. I would not recommend this treatment side effects to dangerous to consider and fatal.I am still alive but been extremely sick since October of 3009, I understand a tet will soon be available that will tell if you can take Tysabri by testine for the antigens. positive test dont take negative test ok.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

  • 3 helpful marks
lala2500
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lala2500
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See lala2500's full Natalizumab history

Aug 13, 2010 (Started Oct 02, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Mild (Headaches, Weakness in legs)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have been taking Tysabri for almost a year at first I did not see any real benefits to this treatment. I have now been lapse free for almost a year now. It has not helped with my current symptoms which remain the same.
Cost: < $25 monthly
Side effects: Weakness in legs, Headaches

  • 1 helpful mark
teejaygrl
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teejaygrl
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I am: g
I have:
MS

See teejaygrl's full Natalizumab history

Jul 20, 2010 (Started Nov 02, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • Side effects
    Mild (Mood changes, Fear of PML, Tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: THIS DRUG HAS HELPED ME GET MY LIFE BACK. I DON'T FEEL SO DOWN AND USELESS. SO MANY PEOPLE HAS SEEN SUCH A DIFFERENCE IN ME AND SO HAVE I. I REALLY DO FEEL ALIVE AGAIN AND NOT AS NERVOUS TO TAKE CHANCES TO DO THINGS. I KNOW I AM NOT "CURED" BUT EVEN FEEL SOME WHAT BETTER IS AND HAS BEEN SO WORTH THE WAY I FEEL.
Side effects: Tiredness, Fear of PML, Mood changes

Nov 2, 2009 (Started Nov 02, 2009)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    Moderate (Mood changes, Fear of PML, Tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: We don't know unless we try things. There are side effects to even taking an asprin so it all comes down to choice of the person.
Side effects: Tiredness, Fear of PML, Mood changes

  • 3 helpful marks
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