54 patient evaluations for Betaseron

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Mamaw5
30389 thumb
Mamaw5
Sex: F
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See Mamaw5's full Betaseron history

Jun 24, 2015 (Started May 18, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    Severe (Injection site pain)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Advice & Tips: I have stopped taking the Beta. I'd been on it since 2009 and in 2014 I found myself in a horrible depression...NOT suicidal, but complete lack of energy, didn't care about anything, sat on the couch all day watching tv. Stopped cleaning house and letting myself go. Since I've been off of it I am back to myself!
Cost: < $25 monthly

May 25, 2015 (Started May 18, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    Moderate (Injection site pain)
  • Adherence
    Usually
  • Burden
    Very hard to take
Advice & Tips: I've been on Beta since 2009. At first it was easy to keep track, but as time went on, it became more and more difficult to remember to take my shot. Then I had a few injection site infections and I was running out of places to inject. If I did my arms or thighs, I had side effects, so I only injected in my belly or hips. Then late in 2014 I began to sink into a deep depression which can be a side effect of being on it for a long period of time. So I went off of it in November 2014 and am taking a break. I feel so much better!!!!!!!!!!!!!
Cost: < $25 monthly

  • 0 helpful marks
KKmom
31865 thumb
KKmom
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: moderate
Upper limb: none
Walking: none
I am: g
I have:
MS

See KKmom's full Betaseron history

Nov 10, 2014 (Started Jan 02, 2010)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Severe (Body Aches, Injection site reaction, Depressed mood)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg every other day
Cost: < $25 monthly
Side effects: Body Aches, Depressed mood, Depressed mood, Injection site reaction

Jul 2, 2010 (Started Jan 02, 2010)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Severe (Body Aches, Injection site reaction, Depressed mood)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Cost: < $25 monthly
Side effects: Body Aches, Depressed mood, Depressed mood, Injection site reaction

Mar 5, 2010 (Started Jan 02, 2010)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Severe (Body Aches, Injection site reaction, Depressed mood)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Advice & Tips: 1. I premedicate with oral Benadry, topical hydrocortisone cream 1%, and either acetaminophen or ibuprophen to reduce adverse reactions.
Cost: < $25 monthly
Side effects: Body Aches, Depressed mood, Depressed mood, Injection site reaction

  • 0 helpful marks
chasmengr
53779 thumb
chasmengr
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See chasmengr's full Betaseron history

Aug 11, 2014 (Started Apr 27, 2009)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Effectiveness
    Can’t tell (for Transverse Myelitis)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Advice & Tips: Dosing interrupted on doctor's advice during chemo therapy (Taxotere) because both drugs suppress the immune system.
Cost: < $25 monthly
Side effects: Headaches, Injection site redness

Dec 27, 2009 (Started Apr 27, 2009)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Mild (Headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.3 mg every other day
Advice & Tips: Prepping and giving shots myself (with auto injector) is easy even with my tremors. I use and rotate only the front 12 sites. Sometimes I hardly feel the shot; sometimes it feels like a bee sting; once in awhile a little blood surfaces. I typically get mild headaches on my off day - easily managed with Advil - no other side effects. It's nice that free sharps disposal is available in my town.
Cost: < $25 monthly
Side effects: Headaches, Injection site redness

  • 0 helpful marks
buterfly26
24105 thumb
buterfly26
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: g
I have:
MS

See buterfly26's full Betaseron history

Jun 26, 2014 (Started Jul 01, 2010)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Advice & Tips: After I learned how to give myself the injections it has been smooth. I do use a shot device so I don't have to look at the needle going into my body. I just have to remember to take it every other day, and that took some time, but now it is just part of my routine. I am conscious about taking it because I is told it would slow the progression of the disease.
Cost: < $25 monthly

  • 0 helpful marks
UfieDufie
31313 thumb
UfieDufie
Sex: F
Data Quality: 3 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See UfieDufie's full Betaseron history

Apr 15, 2014 (Started Nov 27, 2013)

  • Effectiveness
    None (for Multiple Sclerosis)
  • side effects
    Severe (Flu like symptoms)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 0.3 mg every other day
Advice & Tips: I hate injections. The injection site burned and the side effects never seemed to go away even after being on it for a while.
Cost: < $25 monthly

  • 0 helpful marks
tlheyne
13895 thumb
tlheyne
Data Quality: 2 stars
  • Gender: F
  • Age: 62
Condition: Transverse Myelitis 3 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: g
I have:
Transverse Myelitis

See tlheyne's full Betaseron history

Mar 9, 2014 (Started Apr 16, 2009)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Mild (Feel lousy, Injection site pain, Flu like symptoms, Bruising, Fatigue)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 0.3 mg every other day
Advice & Tips: I found that it helped with burning in my feet and legs and an overall feeling of well-being and alertness.
Cost: < $25 monthly
Side effects: Feel lousy, Flu like symptoms, Bruising, Injection site pain, Fatigue

Jul 18, 2009 (Started Apr 16, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    Mild (Feel lousy, Injection site pain, Flu like symptoms, Bruising, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Advice & Tips: They have a patient assistance program to help you if you can't afford the Betaseron. I pay $75 for a 3 month supply.
Cost: $50-99 monthly
Side effects: Feel lousy, Flu like symptoms, Bruising, Injection site pain, Fatigue

  • 0 helpful marks
sick of being sick
1584 thumb
sick of being sick
Sex: F
Data Quality: 1 star
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: mild
I have:
MS

See sick of being sick's full Betaseron history

Jun 1, 2013 (Started Mar 01, 2001)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • side effects
    Moderate (Occasional flu like symptoms, Extreme flu like malaise)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg every other day
Cost: $25-49 monthly

  • 0 helpful marks
grllongoria
59441 thumb
grllongoria
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: severe
I am: g
I have:
MS

See grllongoria's full Betaseron history

Apr 29, 2013 (Started Jun 15, 2001)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    Mild (flu like symptoms, weakness, fatigue, injection site reddness,pain and itching, Flu like symptoms, Muscle weakness, Fatigue, Injection site redness, Injection site pain, Injection site itching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.3 mg every other day
Advice & Tips: I had no new lesions while on the Betaseron. Never was in hospital for a excerbation. But I was ready for a change tried of waking up every morning feeling crappy. What to wake up and feel rested, do things, go places, drive again without my foot falling off gas pedal. I am trying another therapy to see if this one will help me accomplish my goals!!!!!!
Cost: $200+ monthly

  • 0 helpful marks
freka
49727 thumb
freka
Data Quality: 3 stars
  • Gender: F
  • Age: 40
Condition: POTS 3 additional condition(s)
Quality of life:
  • Mental: None
  • Physical: Moderate
I am: vb
I have:
POTS

See freka's full Betaseron history

Oct 22, 2012 (Started Dec 15, 2005)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Mild (Injection site redness, Stiffness/Spasticity)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 0.3 mg every other day
Cost: < $25 monthly

  • 0 helpful marks
jenniferjj
80857 thumb
jenniferjj
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See jenniferjj's full Betaseron history

Mar 12, 2012 (Started Feb 14, 2012)

  • Effectiveness
    Slight (for Multiple Sclerosis)
  • side effects
    Moderate (Numbness in tongue, Stomach pain, left side of tongue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.3 mg every other day

  • 0 helpful marks
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