Jun 5, 2012 (Started May 08, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1.2 g Daily
Cost: $50-99 monthly

May 24, 2012 (Started May 08, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1.2 g Daily
Advice & Tips: I have been taking DCA for about 14 days now. I take if 5 days on and two off (the weekend). The tingling sensation is gone so now I feel no side effects and no noticeable improvements.
Cost: $50-99 monthly

May 10, 2012 (Started May 08, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (feet tingling)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1.2 g Daily
Advice & Tips: I now have 3 days of DCA under my belt. I am taking 15 mg/kg = 1.2 grams. The only side effect is a slight tingling sensation in my left big toe. This is interesting because the first sign of progression in my limbs was a similar tingling sensation in my left pinky finger and left pinky toe, about one year ago. The neurologist dismissed this as irrelevant to my ALS but that is exactly where the weakness started about 6 months after that. I knew that is was indeed related to my ALS. It just wasn't normal. The tingling I am sensing now seems to be in the next digit 'on the list' for my ALS progression. This tingling, however, is barely perceptible. What is interesting here is that I presume the tingling is related to sensory neurons, not motor neurons. So why did I experience this tingling in the early stage of progression in that muscle group a year ago? This could be a good or bad sign. Is it a sign of some kind of 'bounce back' for neurons that are still alive but compromised or is it a sign of accelerated involvement of a certain group of motor neurons.
Cost: $50-99 monthly

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