Dec 20, 2010 (Started Oct 11, 2010)
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EffectivenessCan't tell (for Participate in clinical trial)
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Side effectsMild (for Overall) (itching and rash from patch adhesive, lymphocytopenia (low lymphocytes))
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AdherenceUsually
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BurdenSomewhat hard to take
Dosage:
2 mg
Daily
Advice & Tips:
It's no problem for me, but my husband has so much to do that he forgets to thaw the medicine sometimes.
Cost:
< $25 monthly
Side effects:
lymphocytopenia (low lymphocytes), itching and rash from patch adhesive
Nov 20, 2010 (Started Oct 11, 2010)
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EffectivenessNone (for Participate in clinical trial)
-
Side effectsModerate (for Overall) (itching and rash from patch adhesive, lymphocytopenia (low lymphocytes))
-
AdherenceUsually
-
BurdenSomewhat hard to take
Dosage:
2 mg
Daily
Advice & Tips:
I feel like I'm getting worse more quickly, but don't know whether it is the study drug or riluzole.
Cost:
< $25 monthly
Side effects:
lymphocytopenia (low lymphocytes), itching and rash from patch adhesive
Oct 21, 2010 (Started Oct 11, 2010)
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EffectivenessCan't tell (for Participate in clinical trial)
-
Side effectsNone (for Overall)
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AdherenceAlways
-
BurdenA little hard to take
Dosage:
4 g
Daily
Advice & Tips:
I was afraid that the procedures for administering the drug would be difficult, but it isn't too hard for my husband to do and it is easy to schedule early in the morning and then before bed. I feel good about participating in a trial.
Cost:
< $25 monthly
Side effects:
lymphocytopenia (low lymphocytes), itching and rash from patch adhesive
- 0 helpful marks