Dec 20, 2010 (Started Oct 11, 2010)

  • Effectiveness
    Can't tell (for Participate in clinical trial)
  • Side effects
    Mild (for Overall) (itching and rash from patch adhesive, lymphocytopenia (low lymphocytes))
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 2 mg Daily
Advice & Tips: It's no problem for me, but my husband has so much to do that he forgets to thaw the medicine sometimes.
Cost: < $25 monthly
Side effects: lymphocytopenia (low lymphocytes), itching and rash from patch adhesive

Nov 20, 2010 (Started Oct 11, 2010)

  • Effectiveness
    None (for Participate in clinical trial)
  • Side effects
    Moderate (for Overall) (itching and rash from patch adhesive, lymphocytopenia (low lymphocytes))
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 2 mg Daily
Advice & Tips: I feel like I'm getting worse more quickly, but don't know whether it is the study drug or riluzole.
Cost: < $25 monthly
Side effects: lymphocytopenia (low lymphocytes), itching and rash from patch adhesive

Oct 21, 2010 (Started Oct 11, 2010)

  • Effectiveness
    Can't tell (for Participate in clinical trial)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 g Daily
Advice & Tips: I was afraid that the procedures for administering the drug would be difficult, but it isn't too hard for my husband to do and it is easy to schedule early in the morning and then before bed. I feel good about participating in a trial.
Cost: < $25 monthly
Side effects: lymphocytopenia (low lymphocytes), itching and rash from patch adhesive

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