Dec 12, 2010 (Started Nov 23, 2010)
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EffectivenessModerate (for trying to get scrip - delay progression)
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EffectivenessModerate (for slow deterioration)
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Side effectsMild (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
10 mg
Daily
Advice & Tips:
increased mental alertness, less fatigue than normal, slight decline in fvc [2%]. initial effects similar to too much caffeine but only lasts 48hrs. currently on 10mg in am, 20mg in pm with no effect on sleeping on cpap - actually, sleeping better.
dietary change around the same time to increase protein intake via drink supplements and eating more. much less fatigue but still in a chair most of the time. can still just get up and walk flat and level with a stick a little way - surprised because last week i thought it was all over for walking. fascics still there but not so noticeable.
Cost:
$100-199 monthly
Nov 24, 2010 (Started Nov 23, 2010)
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EffectivenessMajor (for trying to get scrip - delay progression)
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EffectivenessCan't tell (for slow deterioration)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
10 mg
Daily
Advice & Tips:
non pbs script is $103 per 28 tabs of 20mg. will take 10mg for 1 week and 20mg thereafter. local gp has offered to document condition changes for the record. will do bloods early dec 2010 as a baseline.
this is the start evaluation, and will continue regularly - each week at least.
Cost:
$100-199 monthly
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