Sep 22, 2010 (Started Oct 02, 2008)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (fatigue, nausea, acid reflux, dizziness, diarrhea, lightheadedness, heart rate low (bradycardia), flatulence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Don't know if I was really on the real drug or not, but it has been a very positive experience for me.
Cost: < $25 monthly
Side effects: heart rate low (bradycardia), nausea, diarrhea, dizziness, lightheadedness, fatigue, acid reflux, flatulence

Mar 22, 2010 (Started Oct 02, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (fatigue, nausea, acid reflux, dizziness, diarrhea, lightheadedness, heart rate low (bradycardia), flatulence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: I am in a two year double blind placebo study for this drug. I truly feel I am taking the real medicine. It has enabled me to literally start living my life again. I have relapsed while taking this drug, however, the relapses themselves have so mild, I have not needed IV steroids. In the past, while on other DMDs, I would have certainly needed the IV steroids. I am really looking forward to this drug getting FDA approved so others will hopefully have the wonderful benefits I have had.
Cost: < $25 monthly
Side effects: heart rate low (bradycardia), nausea, diarrhea, dizziness, lightheadedness, fatigue, acid reflux, flatulence

Feb 13, 2009 (Started Oct 02, 2008)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (for Overall) (fatigue, nausea, acid reflux, dizziness, diarrhea, lightheadedness, heart rate low (bradycardia), flatulence)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: For now and for me this drug may be a blessings, especially financially. It has come at a great time when I was out of options for DMDs with the exception of chemo and I wasn't ready or willing to do that. My advice for everyone who is thinking or doing a drug study, make sure you keep a journal, it is truly beneficial.
Cost: < $25 monthly
Side effects: heart rate low (bradycardia), nausea, diarrhea, dizziness, lightheadedness, fatigue, acid reflux, flatulence

Oct 3, 2008 (Started Oct 02, 2008)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (fatigue, nausea, acid reflux, dizziness, lightheadedness, heart rate low (bradycardia), flatulence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: This is a phase 3 drug study and is not approved by the FDA yet. Will keep a journal for those who may be interested in starting this treatment.
Cost: < $25 monthly
Side effects: heart rate low (bradycardia), nausea, diarrhea, dizziness, lightheadedness, fatigue, acid reflux, flatulence
  • 1 helpful mark